My Husband, My Life, My Love, My Family, My Cancer

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  • SheliaMarie
    SheliaMarie Member Posts: 302
    edited December 2018

    Mae - I’m here! Trying to find a place to sit in this pocket, but it’s so full! And, have I told you lately how much I admire your spirit? Not sure I have, but trust me, I do!

    Parry - thank goodness you finally checked in. We were all getting worried. I’m so sorry about your skin mets. but I’m so happy for your upcoming weddings!!

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  • runor
    runor Member Posts: 1,798
    edited December 2018

    Mae, fingers crossed and I hope you allow yourself a goodie after making it through this stressful time, like a nap or an ice cream cake.

    Mary Liz, we travel with you as you get face your next treatment. Hugs all around.

    Muddling, hope all goes smoothly an no more snow days!

    Masons maw, why can't they just say stuff in plain English? Like, your head is stuffy, or whatever. I know the tension these unclear results can cause and I am sorry for it.

    Hello to all. I read you here daily.

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited December 2018

    Skitz, I haven't seen Kaption or any postings about her for quite a while. If I am not mistaken, she stopped all treatment and went on hospice several months ago. I do not know anyone who would be in contact with her. Prayers to her.

    I got my TM results this morning. I was hoping they would go down and be below 2000, but instead they jumped another 310 points this month to 2961. Sigh. Hopefully, my scans will be good next month. I have decided to stop looking at results of blood smears because I don't know what some of the results mean other than things that are found shouldn't be there, and Google doesn't really explain the significance in any detail. Maybe that is a good thing. I will try to remember to ask MO next month. In the meantime, I will plow ahead with my numb chin up and enjoy the holidays.

    Parry, No wonder you haven't posted lately. Your wedding is getting close. It sounds like you are marrying a very special person. One who is loving, caring, and devoted to you.

    Muddling, Are you expecting that big rain storm that is heading south?

    Mason, I am lifting you up in prayer. I hope the source of your sinus problem turns out to be something that can be easily resolve without any long-term impact. Your MO should be able to tell you the best thing to take for the D. You are wise to call for guidance since so many medications can interact with others.

    Micmel, I am glad you decided not to visit your dad when you were sick. Not only would it tire you out and hinder your recovery, your dad should not be exposed to germs either. I hope you feel better soon

    Hugs and prayers from, Lynne


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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited December 2018

    Lynne, praying your tm's aren't at all accurate! Hugs!

    Grannax, I'm right there with you PET tomorrow, results Tuesday!

    Mae, with you in thought and prayer!

    Micmel, hope you're feeling better!

    Parry, so excited for you to be getting married! He sounds like an awesome guy!!!


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  • Parrynd1
    Parrynd1 Member Posts: 408
    edited December 2018

    I’m imagining giant pockets of rocks making that crunching noise, haha. I’d love to see the look on people’s faces if this were real.

    Mason, my scans showed something similar and it turns out I have a chronic sinus infection that would require surgery to scrape out all the stuff. Don’t know how long I’ve had it and have no symptoms so I’m going to leave that for when my plate is less full. Good luck to you. I’ll be crunching in your pocket alongside everyone else :)

    Welcome Marian! This is such a lovely group of people and I’m glad you found us. Cheers to the good week! Good weeks are much needed breaths of fresh air. We have a small traditional American wedding (we aren’t getting legally married though for insurance reasons)in San Francisco on 1/9 and then traditional Indian wedding in Vancouver, BC on 1/12. I’ll post some pictures once we get them :)

    Illimae, sending you good thoughts and wishes for your scan. I almost don’t want to have scans before the holidays. Let me be blissfully unaware for a minute, but better safe than sorry. I’d worry anyways! Good luck and maybe say a few words about it being close to Christmas and presents coming early and all that..couldn’t hurt 😉

    Micmel, you are always so sweet thank you. Cancer has made me much angrier than I was before. Not just for me but for all of us. I keep waiting for the moment I can accept my fate like many seem to have, but it has eluded me. I wish we didn’t need BCO but I’m also glad to have connected to everyone here. If we ever come up with another team we could name it the sour patch kids like the candy. Sweet and sour fits I think.

    Thanks you for all the thoughts and wishes everyone. Glad I know you ladies are here as sucky as it is.

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    I napped and now I feel like ass. My head is foggy and I feel worse than when I went to sleep. But I do need the nap. I am turning into a night owl anymore. I never want to go to bed. Once I'm fully awake at night I feel like doing things. I'm basically useless. I sleep all the time.

    This ibrance really kicks the buttocks. I hate it !

    I am also glad I didn't go to see him today. Although he did just call my phone a couple of mins ago.... I wonder what he wanted. Now I am going to call back. I think he will want me to come up to visit. I don't feel like moving. Ever. My soft warm bed is where I want to go.

    You ladies are lovely. Ty for manning this storm together.

    Lynne(50's) you're on my mind. I will be thinking of you for sure!

    Mae thinking of when the next round of snacks comes down to your pocket... waiting here with you!

    Parry. I know what you mean about insurance purposes. Lots of that have effected many of my decisions.

    Gracie~ slowly coming out of the fogg.

    Love you all ~M~

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    muddling~always good to see you. When ever I see your name, I think,boy isn't that the truth for sure. It's exactly what we are forced to do. on target that name of yours is! With you tomorrow with your blood work and XGeva shot. Have you taken your Claritin!????

    Waving to Sheila Marie~Hope your dd and you are ok!!

    Runor~ love you girl!

    50's~My Dad just called my phone. I was sleeping so I called him back. He sounded like he was lonely and I heard him coughing a lot. He's not doing his nebulizer. Enough. I have to push myself to get up there to see him. Monday I'm hoping. This is one of the hardest things to go through. I am going to have a private talk with your markers. Tell them to get lost. !! I hope against hope the scans will tell the good story. Some tms for people just aren't accurate at all! Sending hugs.

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited December 2018

    Masonsmawmaw. One of my scans said something similar about my sinuses. I've had lots of sinus infections on Ibrance. I have a referral to go go to ENT but have not done it yet. Too much stuff going on at the same time. UGH

    My MO is so focused on AA I have a feeling she will want me to start it on Monday. Your SE sounds miserable. Yes, you need to call your MO. I could lose some pounds and be happy about it but not that way. You might even be dehydrated. I hope you can take something to help.

    Macie we are on the same or similar schedule. I won't forget to pray for you for sure.

    I would rather wait till all tests and pathology comes back to start TX. But I just know my MO is not going to want me two wait any longer. I'm pretty positive I will be on the AA thread on Monday.

    Don't worry I still still post here. 💞

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    Grannax~Hope AA kicks butt! I also hope that you don’t get those mean side effects. It’s always something. I also get a lot of sinus infections. I was told it happens more in the winter because of the dryer heat and it irritates an already irritated mucus membrane due to our oral chemo accumulating over time and treatments. I do agree that my mucus membranes since heavy chemo have totally changed. Right down to the lining of my stomach. I cannot have orange juice, ketchup, hot wings, anything spicy at all or acidic. I loved!!!! Tomatoes. Now I can really even eat them. Plus my mouth is always sore. Yogurt does help that I’ve noticed for sure. I hope you do continue to post here. You’re apart of the family our super 🌟! Hugs to you lovely lady.... ~M~
    I am sorry to hear that Kaption was entering hospice. Geeze. 💔🤲
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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    i also realized that we haven’t seen stilllivin in a while!!!! I hope you’re doing well. Thinking of you my friend !

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  • illimae
    illimae Member Posts: 5,710
    edited December 2018

    Thanks everyone, tight squeeze in those pockets, hope everyone is comfortable, lol.

    The MRI itself went well, although the IV hurt 😢. I’m always amused by the sounds from the machine, this time I imagined Homer Simpson as a TV show sound engineer, playing with all those buttons (knock, knock, knock, whoop, pong, ding).

    Results tomorrow. So happy my docs are cool about giving me quick results, they seem to really understand the mental issues of waiting.

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    Mae~ I am sorry about the IV. I know I hide my arms and shake my head no no no no! Sometimes they need an ultrasound machine to find a vein and bring in an IR specialist. That sucks!!!! I honestly had fun in your pocket with everyone. Good snacks. Hoping for nothing but the best! ! Hugs ~M~

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    imageRemember these ladies ???? Oh my Goodness!!

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  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited December 2018

    Illiemae, how long was your MRI? Mine was well over an hour along with many problems getting IV nurses for port issues. I found the one in June bearable and this last one barely bearable and will ask for an Ativan Rx if I have to it again.

    Yesterday the IV nurse gave up accessing my power port for blood work and the tech managed on try 2, to get a vein. Today the nurse had trouble accessing the port for my chemo but I got up and waved my arms and chest around and yes! A year in I hope the port stops acting up because I love my port. MIcmel and Lillimae, why no ports or were there problems?

    Week 2 for reduced dose Paclitaxel 127 mg and one more on the 20th then off until 2019.

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  • illimae
    illimae Member Posts: 5,710
    edited December 2018

    marianelizabeth, I have a port and love it too but regretfully didn’t use it today. Last time it wasn’t bad and the wait for the specific port access staff is usually more than an hour. It would have been worth the wait this time and unfortunately I’ll have to go through it again Sunday as my body CT is scheduled before they port access office opens. Ugh, but hey, there are worse complaints to have. I guess i needed to remind myself why I hate IV’s, lol

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    Marian~I also have a port and it works great thank goodness. Sometimes the staff they need around to access them aren't around during your scan. Exactly the same reasons Mae gave. Honestly. lol. I laughed at the arms moving. I also have had to resort to aerobic movements to get mine to work sometimes. Most times it just needs a good cleaning. And flushing. They use that heprin. I believe it's called. Ok bedtime for real this time. Goodnight ladies. ! ~M~

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    waiting here for you Mae! Sorry for the crumbs on the floor. Much love

    Shout out to::

    Bella....egads....Runor..SheilaMarie....masonsma.............Edwards....GP....JKL.....JFL....Divine.....Grannax.Sweet Parry our bride to be❤️....Chelle..the Lynne's...MJH......Gracie.....elleonwheels..sandybeach....footprints...MissBianca....Minnie....Tanya......Marian.......Delvzy......skitz.....pots....Lynnwood....Daniel&Leslie.........Muddling....scwilly, I hope you're doing better. Haven't seen you either. Getting concerned my friend🌷...stillivin.....I am hoping I got everyone. If I didn't. Then I'm hopeless lol love you all ~M~

    I know someone is getting XGeva today and. Blood work. Hoping good numbers for you my friend

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  • illimae
    illimae Member Posts: 5,710
    edited December 2018

    mostly good news. No new lesions and all previous ones are gone, except for a remnant from treatment in April. The remnant in question “may have” increased “slightly”, so we’ll watch it until the next MRI in a couple months.

    Great job in my pocket, now let’s all jump over to grannax and gracies!

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited December 2018

    Yay for Mae. I'm done w my PET, drinking my first cup of coffee. I'm starting to feel human again.

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    Mae~Thank goodness. I am so glad you’re results are in. I know that is an awesome wait time. Kudos to your docs for that! Outstanding patient care ! Congrats! Well keep an eye 👁 out with you! Hugs my friend.

    Grannax~ Glad you’re done with your pet. I know when I can’t have my coffee. I become a bear! In your pocket wishing all good things. Hugs to you as well.

    Much love to both !


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  • Minnie31
    Minnie31 Member Posts: 501
    edited December 2018

    image

    Christmas Party today. Had some fun with the girls! Exhausted but enjoyed it. That's it till New Years eve

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  • MuddlingThrough
    MuddlingThrough Member Posts: 726
    edited December 2018

    yay Mae! Now cut loose to celebrate!🍸

    Lynne 50's, saying a prayer for you. You *always* have the best things to say to all of us. I want you to feel better.

    Had blood work and Xgeva today. Wouldn't look when the nurse weighed me and told her not to tell me. She said blood looked good and I'm going to try not to look at it myself. I'm going to ignore the whole shebang until my next appointment, which will be in a new year and that first visit will reach deeeeeeep into my pockets. Cha ching 💲💲💲Yikes, that will be nightmare time but having time off until then.

    Waving to runor and Micmel and Shelia and Grannax and Minnie, looking so pretty with two other pretty gals in that photo. Hi to everyone here and I'm sorry not to write the full list. I do think of you and often say a prayer for you. Sometimes I wake up for no reason I can tell and start thinking....Then recall one of you here with an issue or with good news and say a prayer for help for you or in thanksgiving.

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited December 2018

    Done also! Now for the wait to Tuesday! Mae!!!! That's great news!!! Woohoo! Now waiting with Grannax for her appt. Monday!

    Marian, I have a port too but never use it for anything but chemo. There just isn't the staff around here that's s qualified!!!

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018
    Minnie~Hello beautiful. I love the pic of your gang! You are something else my friend. I hope you had a. Nice glass of wine for me? Lol ibrance never agrees with anything like that. My DH used to make me a Bloody Mary every Christmas afternoon with some real good Gin. I had never ever enjoyed that before at all. But this I did! I believe you’re on the left? Some beautiful ladies for sure !! Ty for sharing wonderful times like those are the fibers of each day!
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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    Muddling~What a lovely thing to say. I wake up often and think of someone I forgot to mention and it bothers me. I care for you all very much. Such good ladies. Glad your XGeva and blood work is over with. Yuck yuck. At new deductibles again. 🤮🤮🤮🤮🤮🤮🤮🤮🤮!!
    Gracie~ Hello my friend. Thinking of you 🌷🌷
    Much love ~M~
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  • SheliaMarie
    SheliaMarie Member Posts: 302
    edited December 2018

    Grannax - in your pocket on Monday and yours Gracie on Tuesday.

    Muddling, you are so sweet! Mae - yay for good results

    My daughter, Caity graduates Georgia Tech in the morning. We have to leave the house at 6 am... yikes! But I’m so proud of her. She has completed her bachelors degree in 2.5 years and will graduate with Highest Honors!

    Hope everyone is well...

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    Sheila~ You have a lot of proud of mama moments going on lately. Congratulations to you. What a lovely thing and she certainly kicked some major rear end. Enjoy every moment and I hope hope to see some pictures of your beautiful smiling face....congrats to your entire family. 🎓 🎓

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  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited December 2018

    image


    Mohawk and colour today~~fun before Paclitaxel makes my hair fall out.

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    Marian~I love it!!! I actually chose that color when I was a younger teenager. It's very becoming of you. I am sorry you have to go through that. You look damn. Good. Both you and Minnie have such beautiful eyes. You're smile is catching. As I smile back😁. Hugs friend. Much love~M~

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  • Micmel
    Micmel Member Posts: 9,450
    edited December 2018

    Today was a special day to me. I was taking my nap as usual and my door bell rang. When I answered the door it was a woman who is associated with our hospital in the area. My social worker set up a delivery of gifts. It was so amazing. A car full of gifts for my son and I, some really great gift cards, two new blankets. Candles, socks, gloves, body washes and lotions. Deodorants. It was a very special thing. I was so touched. There are some wonderful people out there for sure. I met my own personal Santa today. It was exciting to see all that for our little family. I was so very touched. Never give up on mankind. They can surprise you. 💙~M~
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