My Husband, My Life, My Love, My Family, My Cancer

NO1-2NV

Waving hello. Just had to take a break for awhile. I have been reading the last few weeks posts and I am seeing such great summer adventure postings. I have had a relatively quite summer without adventure. Unfortunately not by choice. I had radiation to S2 and S3 and have again changed drug treatment that is for some reason just rough. I am tired. I am also very moody and I am sure it is drug induced. I just need to get out of this funk.

Camping this weekend and I have no energy to get things ready.

Micmel

NO1~welcome back beautiful... we all have our funks and times we get so tired of fighting everyday!! I feel the same way you do. Constantly tired and a bridal shower Saturday that I don't even want to think of. It's sommething so special I want to be able to enjoy it. I'm always afraid I'll be miserable and won't be able to fully enjoy myself at all. I just and hoping against hope I get a good day for the reception and the shower. I'm sorry you're having a hard time. I just came out of my hole actually. It sucks. But you're not alone not even close.... sending big hugs. ~M~

Lynne

NO1-Good to see you back. I'm sorry you are having a hard time with your new treatment. Can you get someone to get everything for your camping trip ready for you? Just ask for help. I totally get it. I now only get my stuff ready (my husband does his own), and he gets the food ready and packs the rest, when we go away. I just can't do it anymore. I've had 4 kyphoplasties and have another compression fracture that is too high to fix. It causes pain, but I've learned to live with it. I had radiation on 2 of the vertebrae for 2 weeks for pain, and it didn't help me. I later had those 2 repaired. I'm sorry your down. I hope you have fun camping. i haven't been since our kids were little. My favorite part was the fire, and we have a fire pit here. BIg Hugs!

Micmel-Good luck with your daughter's shower. It will all fall in place for you. Hoping for good weather for you!

Lynne

GracieM2007

MJH, love the pictures! Thank you so much for sharing. And it’s great to see you back on the boards. Have been thinking about you.

Lynne (man), you have really been through it! I would love to get on a bike again, but those days ended when I lost Tom, so I say go, go, go, for as long as you can!!! You are always in my prayers!!

Am going back slowly so I know I’ve missed a lot of your posts but will try to catch up!!

runor

Micmel, you're out of the hole and dancing? hell, I'll drink to that! It will be coffee, but I'll drink it anyway in gladness that a little bit of light has found you, in your room, getting ready for a shower, as you get your groove on. A link for you my friend. And now....I must jive!!!!

Micmel

Lynne(Man)~Thank you. I am a little nervous. Of course I have been so careful with our new carpet and I really try to prevent stains. Well...last night my dog got a Taco seasoning packet. And my carpet is beige.. I was defeated and sunk. So my DS and I did the best we could do with scalding hot water. My DH And DSS are coming tomorrow to help prepare the house for the party. DH is going to get the deep cleaning shampoo. We have an excellent shampooer, if it wasn't for that. My carpet would be ruined. The week of The shower. This dog of mine is a real thief. He would steal anything to eat, then think later. Yuck. That stressed me out. Feeling that today!

Runor. Hello darling. Thank you for your sweet words for me. I was thrilled I felt so good. My new room has lifted my spirits and if I am honest I really have no pain that's constant. If I push myself I can feel it... or if I do too much. Then my spine screams at me. Then I lay off. My sweet DH prepared a beautiful room for me. I truly love it more than I even knew I would. He bought me a beautiful end table. And we had an old rocking chair in the corner that anyone would hate sitting in for more than 20 mins it just wasn't a chair that was offering a long stay in. So I got my DH a surprise thank you. Which was what I thought was the perfect chair and thank you. I want him in here with me always. I hate being away from him. So. I am saying thank you with this ..... tell me what you think ladies please. !! Runor?? Love you guys!

Micmel

This is the chair. A heck of a lot more comfortable for him, so he can stay longer in here with me. My cabinet comes tomorrow! Then I'm almost done with my new room! I love it! ❤️ ~M~

MuddlingThrough

Micmel, that chair looks so comfy and pretty too. PLEASE tell me you didn't haul it up the stairs!I

He will like sitting there and keeping you company.

Grannax2

Lynne. Where is your compression fracture? I had my C3 removed and reconstructed. It was very high but MBC was eating it up so what was I to do? This was back in 2000 and we didn't have all the new drugs yet. But, it would have been very risky to leave it there. I had rad x 10, too. Then, we went to plan B and I found a neurosurgeon who was willing to take the risk. It was hard but it's still holding my head on LOL so I guess I did good to make that choice.

Micmel

thank you muddling. I did carry the ottoman upstairs, but my DS was home for lunchtime. It was perfect timing. I can't wait for him to see it and see him sitting there with me in my bed. I just wanted to find something nice for him. He's always doing things for everyone. Else. He will be here tomorrow, which is nice. We are getting some pretty good storms right about now! Loving that as well!

Waving hello to Grannax, sounds like you're talking about some experiment or something. Hope you're doing well ! How's is your DD?

Can't believe the shower is Saturday. Invited 31 28 are attending. Wow. Seriously? Lol I'm thrilled for her though. It's going to be a lot of fun! Everyone be safe if out in stormy weather! Much love ~M~

holmes13

micmel- I love the chair and I'm sure your dh will too. I love this side of you! Dancing moving furniture (even though you shouldn't) your DD is going to have a great time and so will you. You will probably be exhausted the day after but treasure the moment.

gracie- I'm sorry about the hair. But I'm praying that this treatment will make you nead. You are a true fighter.

Micmel

Holmes ~ Hello darling. Ty for noticing this side of me. It peeks out once and a while here and there. This week has been great. I am hoping it's a sign of things to come ! He's coming Tomorrow, o I honestly hope he likes it as much as I do. My cabinet is arriving tomorrow and it will look even better in here. I ordered curtains and a curtain rod. One Painting.. and a throw blanket for that chair, when he sits with me. So hopefully the rod and curtains will arrive when he is here with DSS, so they can install them for me and I can have my light blocking curtains! Sleep here I come., plus it will make it cooler upstairs in the hot days. Which are upon us. Today was disgusting, when I walked out of my house, my glasses fogged up. Still lots to clean and lots to organize. Tomorrow I'll start the gift bags. I can do that easily. Sitting in my new room. 😁. I hope everyone sleeps well it's key to feeling half decent. Hugs to all.

Welcome back again NO1 & welcome pots. Parry is having a hard time, last time I heard she was in the hospital. So im sending her some thought through the miles.

Hello Mae!!!!!

Much love 🌷~M~

runor

Love that chair. So calming and peaceful looking.

Do you have a product in laundry section called OxiClean? It's my serious go-to product for all stain emergencies. I would try it on the carpet if you can't get that stain out. I have used it to save what I thought would be hopeless cases.

Love and hugs to you and all you ladies.

Daywalker

Hi ladies, greetings from South Africa! I had the biggest roller coaster during this last week. Went for routine CT last Monday, got the terrible news that I have progression in liver and lung, and possibly spleen, took a day to deal with the shock, and wrap my head around it as best I know how with my faith in my Lord Jesus. To be honest, it just did not make sense to me...Okay fast forward to this past Monday..Doctor orders ultrasound of liver to find tumour big enough to biopsy to send to Belgium for OncoDeep genomic testing, and whole body MRI for possible bone mets... Radiologist only sees cysts on my liver, and after I tell her about all the things that just do not add up, she decides to go through ALL my scans and spots, spends a good hour on my file, and lo and behold runs back, hugs me and proclaims "They are all cysts! You did have malignant tumour on liver last year Feb, but that disappeared long ago already and nobody noticed!" She revised the previous CT report to no visible mets, and the MRI scan revealed no cancer.I do have sinusitis that can explain the small lung infection, and spleen showed up clear. So I am actually NED, which is great, and I am extremely thankful, but I feel exhausted, mentally that is. Anyways, sorry for the rambling, but I just wanted to share this bit of good news with all you brave women xxxx

Micmel

Daywalker~That is some fantastic news to share. Thank you so much for sharing with us. You have made my morning. You must have been ready to fall over after all of those confusing topics were finally put to bed!I understand the tired part. I am in remission, but I think someone forgot to tell our cancer those important facts! We should feel much better, but we don't. Exhaustion has become my middle name. 💐💐🌷🌹🌹😁 happy dance being had for you! And this should be you today!

much love to you and I'm so thrilled for You sweetheart. Now we need everyone to hear this from their doctors. Hugs and smiles, congratulations!! 🍾🎉🎈🎊 ~M~

MuddlingThrough

Daywalker, such good news. I know you're relieved and I'm also impressed at the extent your radiologist went to, to deeply study the images and to explain and reassure you. That is a blessing in itself!

Daywalker

Thanks so much for your kind words Micmel! Enjoy your day also xxx

NO1-2NV

Daywalker, WOO HOO! NED, how sweet those words are. I am praying you continue to hear those words for a very, very long time.

runor

Daywalker, that is fantastic news! But the emotional turmoil still takes a toll. Even good news can be exhausting!

MJHJAN1014

Micmel-the chair is so nice! You must feel like a queen in your new room!

Gracie-a big step with your hair-I went through it 4 years ago-quite a process. I got a wig which I wore for about 45 minutes. I loved the pretty "Abbey Caps" and wore those a lot. I also purchased cotton scarves from Anohki, expensive, but wonderful. So pleased that you had a nice time with your family.

Lynne(Man)-Frustrating when communication errors screw up treatment schedules. I was anxious to get started on the Xeloda when the Falsodex failed. It's not a great feeling to feel like things are growing. I did have Cytoxan first time around, with Taxotere. Doses are probably lower with MBC. I think my SE's were similar to what you have experienced during "hell week". Methotrexate and Flourouracil are older chemos. Not sure about them, but I think the lower doses might be more tolerable? Thinking of you.

Runor-what a painstaking ordeal you have been through with your daughter-glad it is copasetic right now. I never dreamed the things that happened with my daughter could even happen. All bets are off with mother daughter relationships-life gets so messy. It is a wonder that we aren't all mentally crippled.

NO1-oh man, what a rough spot you are enduring. It feels awful, but there are so many different phases and emotions with MBC. I'll be beseeching the powers that be for better times ahead for you.

To all of my other dear MBC sisters-much love and wishes for pain free peaceful days.

Love, Mary Jane

MJHJAN1014

A nest of baby wrens in my yard fledged today! So adorable!

MuddlingThrough

Has anyone heard from Bigbhome?

illimae

Good morning all, I’ve been going to the gym and cooking lately but not much news to share. Being retired is kinda boring so far but I love not waking up to an alarm clock 😀

Micmel

she posted a while back, her DH has a rough time of it with his surgery and recovery and she is also struggling to keep her life balance! She pops in from time to time. I had heard she had some questions on the brain mets thread... We sure do miss her beauty here. Hope all is well with you muddling! ~M~

Micmel

Mae~ my alarm is my dogs. 7:00 is like a choir. Ughh. I'm happy for you getting to the gym. Youreamazing. I just got up and you're going to the gym. You go girl amazing twin powers! ~M~

MuddlingThrough

Micmel, almost a week ago Bigbhome, herself, on another thread (Xeloda??? can't remember) posted that she was having funny symptoms,fluttering in heart area, and other symptoms. I've been hoping she's okay. Bigbhome, if you're reading, let us know how you are .

Micmel

good god. I don’t think I can handle anything not ok with her. I’m goin to look back and see how long ago she posted here. I love her. 💔 now I’m really worried !

Micmel

she has not posted since August 2 and, I see what you meant. 😞 why does cancer have to be so damn scarey? I hate this so much.

MuddlingThrough

Micmel, I know! I worry about all of us but with everything she's had going on, I think it stood out to me. I didn't mean to worry you though; you've got a lot happening now yourself.

Micmel

geeze. I hope she’s ok. 😞