My Husband, My Life, My Love, My Family, My Cancer

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  • Micmel
    Micmel Member Posts: 9,450
    edited June 2018

    I only have two men in my life that have ever really made an impression on me. My father left when I was four, came back into my life until 13 years old ... and then since I began to Have a brain for myself ... I saw the step monster for who she was. So I told her. She didn't like that. So. I lost my father again. Second Time. Years went by with no Communication and when I was 20 we started to talk again but I had to apologize to the step Monster. It wasn't very sincere. But I missed my father. Things were ok for a while, I got Married had two kids and then the divorce was on the horizon. She didn't like that either. Tried telling me what to do. With my kids. Ah no! So again I told her. And again there my father went. This time for good. Losing him a third time during my life. My step father whom I adore and have since I was age seven has always been a good man to me. I love him. He is one that never left. So to him I can say Happy Father's Day.

    My DH is the best man, father and person I have ever even met. I Idolize the ground he walks on. Always have. So he is the other man that made the difference in my life. Most men do not do what they say they will do. So in my life I have learned and try tolive by. Actions speak louder than words. Happy Father's Day to the good ones.

    Much love ~M~

  • illimae
    illimae Member Posts: 5,710
    edited June 2018

    I all, went to a friends pool party today, totally wasted now on a sampler 12 pack of beers., ugh. So hard to type. Had a good steak and DH’s potato salad thought. Goodnight all!

  • Micmel
    Micmel Member Posts: 9,450
    edited June 2018

    lol Mae, I am very happy you had a good Time. Pool parties were always my favorite too. Nothing quite like some Hot dogs and hamburgers and homemade potato salad. I'm so jealous. You're always doing something fun! All of you ladies put me to shame. It has to be the ibrance. It just has to be. Hope everyone's else is safely enjoying your weekend.

    Much love ~M~

  • Grannax2
    Grannax2 Member Posts: 2,551
    edited June 2018

    I had a really fun visit with my little family today. As well as Father's Day, it's also my DS birthday today. He got double the gifts, cards and hugs. They were on their way out of town for another vacation. This one is family camp at Pine Cove for a week. It's in east Texas and it's just beautiful there. I know they will have a great week. I'm keeping their dog, a Chihuahua Mix. No problem except I have to keep her separated from my cat.

    The remodel starts tomorrow. Yay!

    ,

  • Micmel
    Micmel Member Posts: 9,450
    edited June 2018

    Grannax~I am happy to hear you had a great time with your family today. I did as well.. ever notice that father's day gift isn't really a gift at all?But something to put them to work, or to make dinner, or to build things for others and generally always thinking of others! Sounds like you're going To have your hands very busy this week with the added puppy. I remember before they didn't get along too well. Hope it is better this Time. Yay for remodel Time tomorrow! Hugs to you ~M~

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited June 2018
    I have to go to a baptism next week and needed a new outfit due to my weight gain ( thanks Letrazole). I tried on a couple of dresses and a pants outfit, nothing that would be considered strenuous activity. Between the chronic tendinitis in my right foot and the arthritis in my left knee, and the constant sweat running down my neck, ( thanks again Letrazole) I ended up having to sit in the furniture department for about 45 minutes before I could get up. My head was so sweaty it looked like I just got out of the shower and my face was beet red. Several people stopped to ask if I was ok and a lot of people stared. My husband was with me and is SO supportive, but he didn't seem to get why I was so embarrassed. I had a meltdown and cried because I couldn't even last for an hour in the store. The old me could shop for hours. Just another reminder of what cancer has stolen from me.
  • 50sgirl
    50sgirl Member Posts: 2,527
    edited June 2018

    Lynnwood, What a terrible experience. After all that suffering, I hope you found an outfit. It is bad enough to have MBC and the SEs from treatment, but you have arthritis and tendinitis, too. Ugh! I used to tell my kids that life isn't fair, but this goes way beyond that. If your weather was anything like ours, it was probably really hot out. That doesn't help any because the stores usually have trouble keeping their buildings cool when high temps begin to hit. I tend to get "hangry" at times, and that condition rears its ugly head when I go shopping. My DH is convinced that the Snickers commercial was wriiten by someone who had accompanied me on a shopping trip. Now when he sees it starting he suggests a snack break. I always take a bottle of water with me when I go shopping. It helps to keep me hydrated. I have gained weight since my diagnosis, too, and it is so frustrating. So, when I go shopping, I don't feel the effects of arthritis or tendonitis. Instead, I am an overheated, hangry, thirsty woman whose spine mets hurt after standing too long and who is convinced that the people in the stores have changed the sizes on the tags of all the clothes because I can't possibly really need a bigger size now. As you can imagine, I am a joy to shop with. I know the shopping trip was miserable for you, but you should realize that none of it was within your control. You shouldn't be embarrassed since you did nothing wrong. Think of it this way. If anyone noticed, and it probably wasn't noticed by nearly as many people as you imagine, you will probably never see them again anyway, so who cares. People did ask if you were okay, and that is because they were concerned about you. That was not negative attention at all. It was genuine concern. Your husband didn't understand why you were embarrassed because he understands that you did nothing wrong. You did nothing to cause the situation, so he sees no reason for the embarrassment. I am glad he was there and was supportive. I have had my share of meltdowns and crying episodes. We all have. You need to just put it aside and move on. You are normal. You are still here, cancer and all,. You will have more bad moments ahead of you, but you will also have many good ones.

    Hugs and prayers from, Lynne


  • Micmel
    Micmel Member Posts: 9,450
    edited June 2018

    Lynnwood ~ oh honey. I am hugging you very bear like! I know exactly exactly exactly what this is like. It literally happens to me Every single time I shop anywhere for anything. I know exactly how that felt. I always end up sitting and needing to gather myself and wipe my entire red Face down, until it only looks like I didn't blow dry my hair after I stepped out of the shower. It's so very very embarrassing and upsetting. I think I feel embarrassed also,because I don't want any unneeded attention and I don't want people giving me. Me that weird “what's wrong with her? “Face! I am with you my spine mets are the same way. I understand each and every emotion you mentioned. Like 50's always eloquently puts, we all go through it at one point or another. The heat only makes it worse. Cancer is definitely a thief in the night! Love you beautiful special ladies. ~M~

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited June 2018
    Lynne and Micmel, thanks so much for your kind words! That’s why I love our space here so much... you guys get it! And yes, it was very hot that day. The heat really bothers me. I did finally find an outfit. I went with black pants and a dressy black and white top. Not sure about footwear. I have a custom brace that I wear for my tendinitis,
    It fits into my sneaker and dress shoes are impossible. Another loss... I lived in flip flops in the summer but that is no more because I need the brace to walk. I hate to go to the church and party all dressed up and wearing sneakers. I have a pair of flat sandals that I might try to wear for a while. I’ll take my brace and sneakers and leave them in the car if the pain gets too bad. It really helps me to see that I am not the only one having issues with things as simple as shopping. Sometimes it all just gets to you, Saturday was my day. Love you ladies!!
  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited June 2018

    I left this thread because on the 31st I posted I had a bone scan the next day and was nervous and the response was...total cricket sounds. Not one single person said “be thinking of you” or “good luck” or even “get lost”! So I figured I wasn’t going to find any support for anything else I had going on, and everybody else had so much going on I thought the best thing to do was just to leave. I have since gotten some support from some of you on other threads, but I gotta tell ya, that hurts! Especially when you really thinking there’s is something going on (there was, my cancer has moved into the the brain abd liver). I really could have used some support

  • Micmel
    Micmel Member Posts: 9,450
    edited June 2018

    Lynnwood~ I try everything possible to avoid going to any store. I always send people. Because I hate feeling like I have no control over the heat flashes. As long as I am still I can keep them under control. But the second any activity or movement happens. It's like a trigger to start sweating. I also hate. Any clothin because nothing looks good at all ever!! I am so glad you found something! I am sure you're going to look beautiful!😊

    Gracie~ oh my sweet friend. I am going to say how sorry I am that I even missed your postings. I do not usually ever allow that because I try to answer everyone individually. Because I genuinely care about how you're feeling. You're feelings are very valid, and I just want you to know how very sorry I am, you ever felt that way here, also thank you for being honest. I am sending loving hugs and support. I know it's overwhelming and scary. I am with you, and I think of you everyday. I'm going to take ownership for my part because I was devastated about my daughter and honestly at the time didn't see the relationship recovering. I was beyond broken hearted and scared. I am truly sorry if you felt you didn't matter, or wasn't noticed. Because you were. I adore you my friend. I welcome you back any second any time, any minute, and would feel in myHeart as you had never missed a beat. Hugs and love my precious friend. ~M~

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited June 2018
    Gracie, I am very sorry that this happened to you. Speaking only for myself, it is very hard for me to keep track of everyone and all that is going on. This is one of the reasons that I don’t post very often. I have trouble scrolling back to make sure I address everyone . I have often worried that people will think I don’t care because I don’t mention their posts, pictures, concerns and celebrations. I hope all of you forgive me. I truly do enjoy everyone’s posts and care about you all. I have considered taking notes but honestly that seems like a lot of work. I’m sorry to hear of your progression and that you had to go through this feeling like you did not have our support. I truly understand and deeply apologize to you and anyone that feels I have slighted them. I hope you give our group here another chance, this is where I “ hang out” the most because I have felt like you do now in some other threads. Hugs!
  • 50sgirl
    50sgirl Member Posts: 2,527
    edited June 2018

    Gracie, I too am sorry that I did not address your scans. It has happened to me, too, so I know how it feels. That should have made me even more diligent about supporting you. I wish I could go back in time and change my actions, but that isn't possible. I have no excuses. Thank you for letting us know what drove you away.

    Hugs and prayers from, Lynne


  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited June 2018

    I don’t for a minute think anyone did it on purpose, so please don’t think that. But it isn’t the first time on this site (other threads) that I’ve been completely (and I do mean completely ) ignored. Not necessarily by all of you but after it happens a couple of times I just say ok that’s it. Done. Got enough on my plate to deal with

  • MuddlingThrough
    MuddlingThrough Member Posts: 726
    edited June 2018

    Gracie, I'm still kind of new here and not yet finding the rhythm of posting, replying, etc. Please know that I read all posts and send up prayers for you and for all who report new bc trouble when I read the post. I value your posts here and on other topics.

  • illimae
    illimae Member Posts: 5,710
    edited June 2018

    Gracie, I’m sorry the silence was hurtful but I’m happy to hear that you know it wasn’t intentional, this thread just moves fast and sometimes a post gets buried. It’s nice that you’ve found additional support though and I know I’ll see you in some of the slower moving threads 🙂 I think everyone would agree that we understand taking a break but welcome you to jump back in anytime.

  • holmes13
    holmes13 Member Posts: 214
    edited June 2018

    Gracie I'm sorry that I wasn't there for you but you were talking about stopping treatment if it progressed and I didn't know what to say. The reason I didn't put a call out from you is because you said you were taking a break from the thread and I was giving you that space. You were in my prayers and I knew you had scan coming in June. I am very glad you decided to stick with treatment. You will always be in my pr

  • Micmel
    Micmel Member Posts: 9,450
    edited June 2018

    Lynnwood~I always try to make sure, I welcome and mention everyone, in my opinion it was just crappie timing. Everyone who knows anything about me, knows I am all about family and this being our family. Our second family. I never really thought that this thread moved fast at all, ibrance, bone mets and etc. move at lightening pace. It's no ones fault, we all need to feel Supported and loved. Which both you and Gracie are for sure !


    Mae~ Hi there darling. I hope you're doing well! Did you have your Sunday night dinner? What was on the menu. I realized I haven't eaten today. It's 5:00 wow. Loser I am ? Just so tired. DH and DSS arrived Friday night and left this morning.... I always stay up Really late when he is here. Try to get ever second I can! Much love ~M~

    Muddling~ Welcome to the thread! Thank you for your thoughtful comments for Gracie.... she is an amazing person. It's obvious, you're pretty ok too, you were so kind to post support for her. Thank you. My pleasure to have met you here!

    50's~ you sweet woman always include everyone. You're wonderful in all that you do. You're part of the family for sure. Thisstool is your stool only! I'm holding it! Love you!

    Holmes~ sweetheart, after what your family went through, seriously. We are even lucky that you can think straight. You suffered greatly, but still offered support as much as you could. Youre just simply precious.

    I adore you all! Oh yes I do. Bigbhome missing you. Haven't seen Divine either. WTH Is going on!!

    😞 much love to all ~M~

    Grannax~ Hello Darling. Smiling at thinking of the good day you had Sunday. How is the dog/cat thing going ?

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited June 2018

    Gracie, I am sorry to learn of your progression. I want to say thank you for coming back to this thread rather than blow us off. I think it says a lot about you. We erred and you’ve allowed us to admit our mistake and we can discuss the matter and hopefully make amends. I’m sorry you felt ignored, sorry you were hurt by it.

    It is sometimes a fast moving thread. What I wish is that more or all of us would use an avatar, a picture, above our screen name. I grasp more when there’s a visual attached to a name, and it doesn’t have to be a photo of one’s self. It could be a flower, a cartoon character, a peace symbol, you name it. Looking at a white screen with black letters can sometimes lump things together and the avatar pictures help break that up. If you can’t figure out how to add one, ask someone to help you. Of course, it’s only a suggestion, so do what you feel.


  • Micmel
    Micmel Member Posts: 9,450
    edited June 2018

    Gracie~I went back and read your posting and you're 100%.correct. I am more than convinced that it was timing was the total Issue. It was the same Time frame around my broken heart with my daughter, and my birthday was disrespected by them. Not that is any excuse for your feelings being hurt I just needed to say how bad I felt when saw the sentence and I am very sorry that I had missed that. I would never want to hurt anyone here that I care about. I adore you and respect your need for your space and I want You to Know, I am sorry, that I didn't see catch that, it bugs me very much that I missed your need. There will always be a stool at this table with your name On it. Much love as always. ~M~

  • Daywalker
    Daywalker Member Posts: 99
    edited June 2018

    Hi all, I have never posted on this thread, but I regularly read it, and love the way you encourage and care for each other. Even though we are loved by those around us, this particular experience is something only a person with mets can understand. For me the hardest part is the knowledge..sometimes I wish I just didn't know so much.. it is a daily struggle to balance the knowing with the living, and most of the time life is good, but when time comes for the bloodtest or the scan or some weird twitch somewhere, the thoughts tend to spiral out of control. You know the drill... But I love this site and all you brave brave women who are living with this disease xx

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited June 2018
    Welcome Daywalker! Glad to have you here with us! The ladies here are awesome!!!
  • Micmel
    Micmel Member Posts: 9,450
    edited June 2018

    Daywalker~welcome to our second home. It's a place I need to have to sometimes even make it through the day. It's very difficult juggling the feelings that come along with this life sucking disease. My problem was exactly what you said, no one understands and sometimes I find that people don't even really listen to what you're saying, because they just have nothing to say, or they don't know what we need or want to hear. Personally, I just want to feel like myself again. I catch glimpses of that person here. I need the support and humor and the bonds that have been made here.....are just so precious to me. We welcome you with wide open arms, we hope youll pull up a stool and get to know us. There are real relationships. Three of our lovelies have even met and have lunch. Which I am really jealous of!!! It's been wonderful getting to know all the special ladies here !

    Lynnwood~ Hi darling. Hope you're doing well. I am heading back to bed. The dogs darn tags are making noise. I love dogs. But they are like having a separate job! Ugh!

    I am thinking of those who may have scans this week!! We are with you in your pocket!!!

    Hugs and love ~M~

  • Grannax2
    Grannax2 Member Posts: 2,551
    edited June 2018

    The dog and cat thing is going well. Except the barking, Sally goes nuts every time the workers walk by her room. EVERY time. My DS says I'm supposed to spray her with the water bottle when she barks. Well, that doesn't work! Siam is happy as long as he gets to sleep with me. He sleeps all day anyway.

    The progress on the remodel was slow yesterday. But, the popcorn ceiling is gone and new texture is on. Today is the dreaded Kilz, I'm leaving, allergic to those fumes. They may put down wood laminate flooring in bath today.

    My kids are having a great time at camp. It's hardly camping, my DIL does not do camping. The cabins are Fixer Upper style. OMG so adorable. They had Maritime Mystery night last night. I'll post a pic of my pirate kids.

    Have a great day ladies. I plan to. For some wonderful reason, ibrance is not affecting me much this cycle. I'm going shopping!

  • MuddlingThrough
    MuddlingThrough Member Posts: 726
    edited June 2018

    DivineMrsM, thanks for the nudge to get an avatar photo. I found this four leaf clover this morning on my walk. Six weeks ago I never believed I'd be able to take walks outside again. I can't walk that far yet, but I'm working on it.

  • Micmel
    Micmel Member Posts: 9,450
    edited June 2018

    we all need a little luck good choice !!! Great work on that walk. Wish I could. Join you.

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited June 2018
    Tried to get a picture for my avatar, here’s hoping it works!
  • MuddlingThrough
    MuddlingThrough Member Posts: 726
    edited June 2018

    Lynnwood1960, I see it :)

  • Grannax2
    Grannax2 Member Posts: 2,551
    edited June 2018

    Here are my pirate kids having fun at family camimage

  • Minnie31
    Minnie31 Member Posts: 501
    edited June 2018

    Hi Ladies, all good for me today. Liver is stable. Hip shows a reduction in damage, either due to the radiotherapy in April, or the use of cbd? No other points. Bloods good. Usual 3 weekly trastuzumab, herceptin, and zvgeva. Onwards! Will fit in a cruise before next scan!!

    Gracie, I'm sorry I missed your post. We were in Ireland and unbelievably without internet for days! Don't want these newfangled things in some places lol

    Love and best wishes to everyone. Will try to find an avatar!

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