Can lumps grow on the cords that form?

Anonymous

Can lumps grow on the cords that form?

carmstr835

I am very worried that the nodule that grew on my under arm cording could be re-occurance. It is on the side I had a lymph node dissection, so it can't be a swollen lymph node. Anyone else have this issue? I will be seeing my oncologist's nurse tomorrow and she will examine it and order scans if need be, they said. But sinse it is the nurse and not the Doc, I am a bit worried about it and hoping it is properly diagnosed and treated. It is painful even when not using my arm, but not really bad, about a 2-3 on a scale of 1-10. It does not hurt to touch it.

MinusTwo

Cam - as I said on another thread, I think a trained LET - for lymphadema is very important. Since you say you don't have lymph nodes, the fluid could be backing up. Cording is often caused by LE.

I know you said it was a long distance to a certified LE PT/OT, but maybe worth to get relief started. Otherwise I think you said you were going to talk to your RO? My RO is the one who ordered the LE treatments for me and they were at the radiation center. Below is the site again which I believe I posted on one of your other threads. See if there is someone closer on this resource.

http://www.stepup-speakout.org/

BTW - if you stay on one thread, people cal follow the story. It's hard to go back & research all that was said on several other threads, but I believe I mentioned that a Stanford lecture pointed out the average MD has a total of 15 minutes of training about LE during their 12+ years of schooling. Good luck tomorrow. Let us know what happens on whichever thread you pick to continue.

hugz4u

Carm. What did doc say. Hoping for best outcome. Yes you need to work out your cording by a qualified pt/therapist

carmstr835

Tomorrow I go I will post tomorrow night.

carmstr835

Minus 2,

No one commented on my issue of the lump, just cording...., they said that I needed a lymphodema specialist. I know that and I knew that before I posted. There are none here in my town. I am worried if this is a reoccurance. I do believe a lymphodema specialist might know, but even if I got an appointment 79 miles away(closest I can find) I won't have an answer as quickly as a community member might be able to share their experience with lumps and cording. I am sorry I am flooding the forum with what you believe is an unnecessary topic, I believe they are necessary. However, if I could find this info anywhere else, I would not bother the community with this topic. When I know the answer, they will have a resource to check. I will share my experience. There are no topics I could find in the lymphodema forum regarding lumps, I checked. I have been searching the internet for nodules on cording since the 17th when I first noticed this, and no results. I am worried and concerned and if there is someone with this issue and can tell me they had this and it was a cording issue, I would sleep better tonight, thinking it is probably not a occurrence.

hugz4u

carm. I have no experience on your lump and I bet a le therapist would say you need a onc or doc opinion on why you have a lump. The lump concerns me but I can't advise you. Please let us know what happens. We will try to support you especially if it's a cording le issue. I hope for the best and wish you sound sleep during your stressful time.

Just a thought. I don't know how big your lump is but it could be scar tissue. My scar tissue feels gravel like. It scared me at first until I found out what it was.

It will be so worth the drive to see a le/pt therapist if they are well qualified. They can solve your cording and have a look at your arms and trunk and breast for possible swelling and advise you. You don't need full blown le to get the benefit of seeing one. I used a le therapist monthly just to get drained and to keep a eye on me. It was about five years later after lymph node surgery that I was diagnosed. I have been going once a month since 2004.So smart to be proactive

carmstr835

Thank you Hugz4u,

I saw my oncologist today and his nurse. They measured the lump it is 2.3cm x1.7. I seemed to grow overnight. But maybe I just never noticed it, I saw a glimpse in a mirror as I was getting dressed on the 17th, just by chance. They are concerned and have me scheduled for an ultra sound tomorrow they don't want o subject me unnecessarily to any more radiation. They will call me 30 min later for results.

If it is cancer, they are thinking to let it be and to watch it because it grew during chemo and today I got 3 new chemo drugs and they took cytoxin away and added carboplatin as well as herceptin and projenta. I am still on taxofere. They want to see if the new drugs affect it. That arm had the lymph node dissection so healing might be an issue.

I had no problem with this infusion except it was delayed for the initial echo cardiogram, before the herceptin, and the dr. appointment was a very long one. Then the pic stated leaking after I left and had to go back, now my left arm is swelling, I think I have some serious issues with my only good arm now. I have an extra compression sleeve I am going to wear it on both arms now for a while. I can't go to PT until the lump decided so no PT appointment for 3 weeks I will not be getting any more pokes though, they are putting in a port for the next infusions and blood draws.

My infusion began at 2PM and ended at 11:15PM. Very long and my head is very frozen and I am very cold from the dignicaps that keep your head at 20-30 degrees for all that time. I hope I don't suffer from frost bite damage on my face and scalp.

I will post when they decide what this lump is, hoping it is nothing serious. But the looks on my onologist face and the sudden change of treatments when he has always been so conservative makes me think otherwise. He also increased the cycle to 6 instead of 4, then the radiation for 6 weeks. Now I have to find a way to pay for 2 more dignicaps to keep my hair.

Thanks for the encouragement and comments.

Sincerely and concerned

Cindy

hugz4u

carm. So glad you got that checked out asap. Looks like your doc is on the ball. Yes once you get cleared you should get your cords addressed. Check out some really good threads in bco to get help with non le issues. The people on bco are amazingly supportive. Your on the right track. Hope your feeling bit better in a few days after your chemo.

MinusTwo

Thank heavens you're getting a port. I too had TCHP, and was so glad to have a port because the Herceptin goes on for a year after the others drop off. Please let us know once you hear about the ULS.

carmstr835

Hey I got great news. It is fluid filled and 3.2 cm so very happy It will complicate the LE treatments. I got in at the hospital to see a LE specialist. She will work with me when I go there and found me a local one to go to. I need daily treatment for a while and then regular 3 days a week . I have an appointment to start on July the 6th. Thank you everyone! My surgeon even called me personallyto share the good news. He cautioned me not to let them message the seromas. Either one. I have one in each axilla. The other one is 3.6cm. They don't want to treat them now.

Denise-G

Carmstr835 - so happy to heart this good news!!