Skin mets

Sheliahm

So I'm so confused, scared and ready to throw on the towel. Just a brief history. I'm brca+ and dx with tnbc. Completed first lone of treatments ac+t and bilat mastectomy. Before I can start rads i had a recurrence to the chest wall and superclavicar nodes. Nodules showed up all over the infected breast. We moved forward with rads but also chemo(cisplatin) at the same time. Finally finished both but had a bad skin reaction and low counts so I stopped chemo a little earlier than suppose to. Few things I noticed. After my first rads appt small nodules showed up outside the irradiated field. Doc said we'll keep an eye on them. Didn't want to radiate then just incase it keeps happening. Now the ones on my breast are gone as far as we can tell and my nodes decreased in size. Now I'm seeing activity in my other breast right near the mastectomy site. And again "we'll keep an eye on it" I can't do any chemo because my skin isn't healed yet. So now I'm thinking did the chemo even work? I'm trying to stay positive but this doesn't look good. Any advice.. I'll take anything.

Meadow

Sheila, I am bumping your thread so others can see it, and maybe respond with some advice or encouragement. I am glad your team actively treating you, and continues to "keep an eye on it". You have been through a lot, with chemo and rads at the same time. How are you feeling? are you eating well, resting too? Active treatment is very taxing. Do you have support at home? Unfortunately, skin involvement happened, and what does your Oncologist say? Hang in there. Hoping others respond soon.

Sheliahm

Hi meadow thankyou for responding. Other than the really bad skin burns I feel ok. Didn't get fatigue like I thought I would especially since I take public transportation everywhere. Im also out of work so I do get a lot of rest. As far as my eating habits not doing to well in that department I have a habit of emotional eating so i eat everyrhing in sight..not good. I stay with my sister so that's support right there I don't have to worry about paying bill or anything. She helps me out as much as she can. But other than that I'm all on my own. Feel kind of alone going through this but it is what it is. Now the skin involvement I don't know what to think. The ones one my back are progressing and starting to itch. The ones on my opposite breast is a little tender to the touch. My doc wants to start me on carboplatin, I don't know as a single agent or she's going to add something to it, I guess I'll find out when I go out. The crazy thing is I was planning on going back to work and try to get another apartment. But that was my plan. Sorry I rambled on I don't talk about this much and this site is really all I have.

---

---