Breast MRI day - 2 years out

jules72

Hello everyone,

I just wanted to pop in for some morale support. I am 2 years out from a DCIS diagnosis. Had nipple sparing mastectomy in right breast so MRI today was in my left. Just awaiting results. Most days I just go on living my life, appreciative that I just had DCIS and will likely never experience BC again. I have mammogram every year and MRI every year - scattered so every 6 months I have one or the other. But, on days like today, where I had the MRI and am waiting for the results, it's still so emotional and difficult. The "what ifs" creep in and it's just hard to wait. My DCIS was ER/PR- and that alone scares me, like I'm on an island of unknown because it's more rare and I hear that it's more likely to recur than er/pr+. I decided to take the rest of the day off from work as I'm just emotionally drained. I should have results yet today. Anyone else feel like this? Also does anyone have more info or resources on er/pr- DCIS

Chrissylyn

Hi Jules,

I have never posted on here before, but I was glad to find your message. I was diagnosed with extensive DCIS last summer, followed by a unilateral mastectomy. Next week, I will have my first MRI and mammogram follow up since surgery. I am so anxious! I was wondering if other people felt the same way when it comes time for screening. I drive myself crazy thinking about the possibility of getting bad news again. It took a while for me to believe the doctor's "got it all" and it was not truly not invasive ( thats another story), but the more time that passes makes it easier. Until now! I'm sorry I don't have any info about er/pr- DCIS. I just wanted you to know that I felt comforted by reading your post. Did you get your results? I hope you heard good news. I totally understand being emotionally exhausted by the waiting and the uncertainty. I wonder if it will feel like this every time. Let me know how things turn out for you. Hugs.

jules72

Hi Chrissy, Yes my results came back fine. My doctor contacted me at 9:00 last night to let me know - she is so awesome and understanding. I really only get anxious around testing time, beyond that I don't think much about it honestly. I will say that each time I have tests and the results come back okay, I am more and more confident and prepared for the next time. For instance this time I remembered that I had this same feeling the last time, and that all came back okay. And I kept telling myself that the chances of something appearing in my opposite breast are really extremely low. And IF worse case scenario were to happen, it's something we'd catch extremely early. Then I remind myself this is cautious, proactive monitoring and I'm lucky to have that option. Then I think about all of the people that have "real" issues to deal with. I think anytime we're getting tests there will always be that little pit in our stomachs as we wait for results. But it will get easier with time. I hope this is comforting as you have your tests next week! Hugs