Pagets diease of the breast

Bay21004

I was just diagnosed with Paget's disease of the breast on May 12th 2017 .At the time I had a biopsy done on my nipple and the results came back saying I have Pagers diease of the nipple on May 19th. I underwent surgery to remove the nipple and areola area and some surrounding tissue around. It is being sent to pathologhy for more testing. I want to know if anyone else is going through this and what was their next step in treatment? Did anyone do reconstruction surgery?

Moderators

Hi Bay21004-

We want to welcome you to our community here at BCO. We're sorry you find yourself here, but we hope you find these forums to be a place of support!

We have a fairly active thread on Paget's that you mind find helpful: https://community.breastcancer.org/forum/137/topic.... Also, some info from our main site on the disease and treatment options: http://www.breastcancer.org/symptoms/types/pagets.

We hope this is helpful!

The Mods

Lorri70

Welcome Bay21004, I'm sorry you are joining us here, I've recently finished my treatment for Pagets Disease, I had 3 cm of Dcis also I had a lumpectomy In October 2016 and another in November as we didn't get clear margins I then had 20 sessions of radiation and I'm now taking Tamixofen for 5 years started that in march 17.

It's a really scary time but Pagets is very treatable, there is a Paget's disease of the breast section here with info from people like me who have been through this.

I thought the world was going to end when I was diagnosed, I was devastated and it's been a long road of emotion and upset but I'm at the other end now.

I haven't had reconstruction yet but I am having it hopefully in November as the dr said needs to be 6 months after radiation then he said 6 months from now even better he is going to round off my Pagets side and reconstruct a nipple then lift the other side to match.im really looking forward to having this done as that's really the end of my journey