Anyone read this new study?

MTwoman

Anyone read this new study?

Title: Efficacy of Blended Cognitive Behavior Therapy for High Fear of Recurrence in Breast, Prostate, and Colorectal Cancer Survivors: The SWORD Study, a Randomized Controlled Trial. The entire journal article is behind a paywall, but a nice description is here:

http://www.medpagetoday.com/hematologyoncology/othercancers/65251

SelinaWilson

Does anyone know if this is worth scaling the paywall?

Maybe not even this article in particular, but if the site has high-quality information, does good research, etc.

BarredOwl

Hi SelinaWilson:

The Journal of Clinical Oncology is a reputable, peer-reviewed journal. It is the official journal of the American Society of Clinical Oncology (ASCO), which also publishes ASCO guidelines.

I don't know if this particular article is worth it, but it currently only costs patients US $2.00 using the patientACCESS option, with free registration with the Copyright Clearance Center via Rightslink. Go to this page at J. Clin Oncol. to access:

http://ascopubs.org/doi/pdf/10.1200/JCO.2016.70.5301

Scroll down and click on the patientACCESS option.

The "Quick Price" is displayed at the bottom of the page.

If you would like to purchase a pdf copy, go to upper right of the same page and click on "Create Account" to register via Rightslink, and then order the article. A pdf version is delivered by email.

I registered with Rightslink and have obtained copies of several other articles at the reduced patient price in this way.

BarredOwl

wallycat

I can try to do an inter-library loan of the article if anyone is interested. Libraries have paid databases and a consortium with other libraries to share info. (former medical librarian, signing off )

wallycat

Is this the full article? Sorry my cat was just put down and I am walking around like a zombie:

https://pdfs.semanticscholar.org/1295/ce5d09a7898c...

BarredOwl

Hi Wallycat:

I am very sorry to hear about the loss of your pet.

The 2015 paper you linked above is highly relevant in that it describes the study design and methodology in great detail:

"This paper describes the development of the intervention and study protocol for the SWORD-study (SWORD is the acronym for Survivors' Worries of Recurrent Disease)."

The language regarding patient recruitment and outcome assessment is in the future tense, indicating the study had not yet commenced.

Results have now been published in the May, 2017 issue of the Journal of Clinical Oncology (see above). The current cost for patients via patientACCESS is minimal (two dollars) and registration is free.

BarredOwl

wallycat

Barred Owl, thank you for the empathy.

I won't try to order this article unless I see interest. I'll be re-checking back here on Tuesday.

cp418

wallycat - I'm so sorry to hear about your cat. I'm a fellow cat, dog, horse owner and know about the loss of a fur friend. Sending hugs to you.

sas-schatzi

Wallycat condolences on your cat baby. It's so hard. Hugs

sas-schatzi

Mtw, and all. I see great application for this info here i.e BCO community forum.. We all have social home threads. Where we deal daily with our own and others worry. The Technical threads have the same thing. Then the Newbies that very commonly post for the first time, their fear and worry are jumping off the screen.

What members do in each scenario is different, but if we had a thread that had the worry scale on it, we could direct folks to it as one of the suggestions.

Question: does the worry scale have a legend or guideline instructions that if you are between 1-10 we suggest this, 11-20, we suggest this, 21-30 we suggest this? In nursing there are many practical forms that use this approach i.e. Alcohol and Drug withdrawal assessment. Assessment one side where the scoring is done. Then the action/intervention based on assessment score is on the flip side.

I have lot's of folks running in memory right now. Folks that needed intervention, but were hard to convince. This takes the onus off individual members of doing interventions. I have done lots' on various problems, but recently found out outside observer(s) think me overstepping bounds. That's probably why, I think having a dedicated thread with the worry scale on it. would be very helpful.

On my Pain and Other Things thread, the way I organized it was a history of the pain assessment. Description of how to use the pain assessment, and then a section on recording. On the Steam Room thread, essentially the same approach is stated in the topic box. Both are useful tools that are self explanatory.

Mtw what do you think? Would you be up to creating a thread?

I'll link the threads, I referred too, as examples of two different approaches to structure.

Steam Room

https://community.breastcancer.org/forum/102/topics/833446?page=48#idx_1411

Pain and Other Things

https://community.breastcancer.org/forum/136/topics/839123?page=7#idx_205

sas-schatzi

Mtw if you are up to doing a thread, we can talk about the ins and outs of how to do it. I've learned a lot about how to structure them over the years. Some I have to interact with members i.e. Constipation. Some are structured where they manage themselves. i.e. Steam Room.

The " manage themselves" type thread has the advantage that if you are gone, the member can still use it and get to an answer, resolution, or needed action.

MTwoman

I do think I'm up for it (anxiety is right up my alley anyway). I'd like to peruse through your structures, read through the SWORD protocol and maybe pay for the pdf to include anything pertinent (or the entire thing if it's a good read). Funny, I neglected to select this thread as a favorite and am just now seeing the discussion. I agree on the number of newbies with (understandable, and sometimes clinical) high levels of anxiety and being able to direct them to a thread instead of re-writing the same thing might be nice Will put my head down and see what I come up with. Would love some input on a draft before I post it. Maybe I could message it to you?