Misdiagnosis Mammogram

dimetriamajor1

I trying to be Brave but sometime I'm so scared I don't know how to think I don't know what to say, and people don't understand what is like to be in the situation that you have no control over. I was diagnosed with breast cancer basic lobular carcinoma in December 16th 2016 in my left breast , I have had a full mastectomy of the left breast and it's really different for me right now, I'm a Christian woman I know Jesus is on my side I that I do know I'm trying to keep my head up and my hopes up . I told my grown children and my family about it , my church family knows as well people has been praying for me but how do you get past the Lonely Nights the constant crying the hopelessness in the night when there's nobody there but you going through this . I don't want chemo I don't want radiation I don't want to lose my hair, I don't want to be nauseous, throwing up, weak, can not do anything, I have it a full life, I'm working full-time, how do I get through this how do I get through this.

I have a long road ahead of me, chemo comes after I now have to get a port put in for chemo how can go on I look at myself every single day and ask the question why happened to me but I have to tell everyone I've been getting a mammogram every year for since 2009 and on top of that a breast ultrasound also but the hospital that I went to miss the mark because they're mammogram equipment was so outdated they never seen anything when I found the long myself it was a 4.0 cm that means it was a little larger than a strawberry I think that's what they was telling me and it was in the front of my chest so, I wondered why I ain't get a chance when they was one centimeter to get the ahead of this instead was for 4.0 cm and that's when I presented it back to the same hospital and then they said all this looks suspicious now at stage 3 when I've never seen stage 1 or stage 2, doctors are saying the hospital should have caught it at stage one, they dropped the ball and they didn't give me a chance the fight it in the beginning they didn't give me a chance to get it at stage 1 or 1 centimeter so now my head is swirling but I'm stronger than I think I am and I just wanted just feedback from someone that experienced something similar to me thank you ladies

Anonymous

My prayers are with you, dimetriamajor1. I too had 5 clear mammos that gave me false negatives--no b.c. when indeed I found my problem by a routine self-exam in 2011. I was so angry; I had no idea mammos could miss things. But ILC grows differently than IDC and does hide from scans. I too was terrified of chemo and losing my hair; I lost 12 lbs from chemo but most of us respond really well to the anti-nausea drugs so it's possible you won't be nauseous at all. I lost my hair but wore a wig to work and no one even knew I was bald. It began to grow back during chemo--amazingly--about 3 months into my 5 month tx a little fuzz began to appear again. I kept my hair short for years I liked it so much--had never had it short before. There are some remarkable newer treatments for b.c. these days and women (men too) are doing so well. A dx of b.c. isn't the horror it was in previous decades, even though we are all terrified with that awful news. Never give up hope, ask questions, get fierce about your treatment. If you are stage III, there is a discussion board for stage III below. You'll find lots of support there--see the link below.

I've also included the link to the discussion board, diagnosed with a recurrence.

You can private message me if you like. It's good you have a support system; it helps us fight this stuff off again.

https://community.breastcancer.org/forum/67

https://community.breastcancer.org/forum/106

Hugs.

Claire in AZ