waiting yet again, seems like this never ends,

Beck68

2 yr ago, mastectomy, diag IDC IIB, plus 2 DCIS, chemo rads etc etc, broken foot that didn't want to heal, postponed 2nd mast because of sickness, then found several lumps so rushed to 2nd mast little over a month ago. got cellulitis, and Seroma that is having to be drained manually. have had back issues and have degenerating discs enough so to flatten my cord. have pelvic/right hip pain and serious pain between shoulder blades enough to take my breath if I move the wrong way. also have lump in right side of neck. Rt breast returned with no pathology suggestive of disease. few months ago during a scan was said to have "sclerotic foci" it was downplayed, meanwhile I am having massive headaches, numbness and tingling up my spine and into my shoulder and face. Pet scan revealed lots of goodies including "anterolateral focal osseous activity" with speculation of mets. My docs I guess are used to "diagnosis anxiety" I think they have been around many who need to be bottle fed as to how much one can take at a time as far as diagnosing is concerned, but that's not the way I'm wired. Id rather the whole shebang be put on the table so I can file it in the necessary bins. I can't take the drawn out one step at a time. I have noticed a different post in my patient portal. It had my deep bone biopsy of my back listed since it was done last week it has a pending date of biopsy and no report to view yet to look at. however, this afternoon I notice a new entry with a pending date with about 2 days out further than the actual biopsy pending day and it has "ERPR addendum report". I'd already squared myself that something IS up, seeing this kinda makes me lean to the report that it IS mets and they are checking to see if ERPR, my BC was ER+. I know everyone on the panel mostly are folks like me, and not med professionals but what is the thoughts on this? I don't think they would be doing an ERPR addendum if it were not mets?????? ANYONE with ideas????? there killing me, these results were suppose to be back Friday but Monday at the latest. Right at the end of the day I called to check cause we were at the close of the furtherest day of their remarks and the triage nurse looked and mysteriously said let me check then came back on and said no those aren't completed yet and when they are someone will contact you with the results..........UGH SIGH

edwards750

Bless your heart Beck your anxiety is certainly understandable. While I'm glad we now have another means to check our medical reports with mychart.com and other websites, it also brings with it another source of nervousness. Waiting on THE phone call is brutal. I often wonder if those nurses ever go through the pain of waiting for test results. I understand they are not the doctor but sometimes they are almost flippant and that's uncalled for not to mention cruel.

The only thing I can say to you given I'm not a medical professional is do your level best to keep busy. Your fears about what it might be could be unfounded. It does seem however that the results are posted before you hear from the doctor. Keep checking. It won't change the outcome but at least you will be prepared.

My husband went through something similar with a test for Parkinson's Disease. We knew he had the syndrome from his results in my chart so by the time he saw the doctor it was old news. Not the result we hoped for but the fact is it is still not for certain he has it. He exhibits some symptoms that are not the result of his meds so he is seeing a specialist next month.

Keep the faith. It's tough but it's what got a lot of us through the process and beyond.

Diane

Beck68

thank you much and best of luck and blessings for you both