Reposting here. Think I was in wrong forum

Mamajen60

Mamajen60 wrote:


I don't know if diagnosis is still being tagged at bottom . Don't want to go through it all. Cancer ibc and idc. In 2013. brac 2 .stage 3 b er pr - Hers 2 +. Had 3 doses of Herceptin but as dr said it poisoned my heart. So the portal was pulled. It took so long for matrial valve to come back up . No more chem for me . Also damaged muscle , cardiomyopathy. Had total mast. And complete hysterectomy. Seems like permanent anemia. And nuerathophy hands and feet. For a year I felt movable and ok. Then had congestive heart failure . Then in sept 2015 I just couldn't go my more. hypothyroidism was in range. Lots of tests . No reason. Also,back pain in spinal and around , lumbosacral spondylitis with radiculopathy,and osteoporosis degeneration. Use pain patches ladicaine . Kept telling drs not feeling well. Fell a few times . Great hubby doing everything . I was in bed. Same scenario up to June 2016 , er with breathing problems , heart flopping feeling. In hospital with adnormal ekg , normal for me. So diagnosed with first afib, then paroxysmal atrial flutter. 1 aspirin a day and high blood pressure med decrease. Got to have sick humor here , also diagnosed with moderate, major recurrent DEPRESSIVE episodes. Ya think? on depression meds and anxiety meds . In June of 2016, the GFR was 44, then 4 months later 35, up again to 57, its bounced around since June . In February 2017. Finally drs diagnosed me with ckd stage 3 b . So no energy, no nothing. 0 Appetite, lost weight , hair, restless legs, Yeah I'm on the neg side. Having symptoms of the ckd . No prognosis. I'm pretty sure it's more poison damage. I can't help but wonder how long do I have. Thanks Jen


Any one have anyone have similar "stuff". No longer worry only about recurrace. Could be heart or kidneys now. Have a new fancy roller walker! Je

mistyeyes

Mamajen60 - so sorry to read all of this. I hope things get better for you.