Just diagnosed ILC

Reid9302

My name is Kim and I am 54 yoa, I got the call today telling me that that I have ILC and that it is also in my Lymph nodes. I do not know much except that I am that I am scared and feel numb.

I go see the surgeon in the morning to find out more and I am so nervous and god only knows what is going to happen from here. I am so glad that I am in this group to help with my fears, All I have been able to do is cry and wonder what is going to happen next

Icietla

Welcome, Kim. We are so sorry about your diagnosis, but glad you found us. BCO is the best place on the internet for information, understanding, and support about breast cancer concerns.

In the ILC Forum section of this website, you will find many discussion threads from which you can learn a great deal about ILC, including characteristics that you may want to take into account in your deciding on surgery. Take the time to read through at least some of the longest ones (the ones having the most posts), such as this one__

https://community.breastcancer.org/forum/71/topics/747515?page=1

I think you were going to be awake for at least most of the night anyway.

It is very likely that your Surgeon will want to review with you your surgical treatment options.

Icietla

Whatever it takes -- You can do it!

Hamhock

Hi Kim I know how you feel. I was diagnosed just 4 days before my 45th birthday with IDC. I know you feel that your world is coming to an end but its not. You get up everyday and thank God for waking you up every morning no matter how bad it may seem. If you've ever heard of the serenity pray you need to keep it with you and read it everyday. You will make it just stay strong.

Lily55

Hi Kim

5 years ago I was in your shoes, when I was just 55.........but five years on I am still here, I refused chemo but had surgery and did radiotherapy (which I regret doing but I do have a very over reactive body) and still on hormone therapy.  It is a roller coaster of emotion and does change you for ever BUT it is not as bad as you imagine, I certainly have been a lot healthier than I expected and I did a full Zumba class just 10 days after my surgery.......my advice is to hang out on this fórum wherever you feel the most comfortable, take someone with you to appointments who can take notes for you.

ILC tends to be very hormone dependent so that is an easier to manage systemic option than chemo should you decide on that route........also it is really important that you appreciate that right now you truly ARE at the worst possible stage as you are missing lots of information, missing the treatment plan and thus you are filling in gaps in your mind that are probably a lot worse than reality ever could be......I know its hard to believe but this IS the worst time emotionally........glad you are here.....take care......xx