Just LCIS diagnosed - embryo transfer on hold

NicolaSue

Hi Everyone,

I was just weeks away from having an embryo transfer. Hubby and I created some embryos least year and our protocol for that was due to start March this year. Then I had really just as a precaution a breast screen. LCIS was picked up on core biopsy and then confirmed via vaccum assisted biopsy/excision.

I'm in the UK. Treatment here seems very variable according to region. I asked about chemoprevention and was told the only option is yearly mammograms. Doesn't feel quite right based on the literature (I've done a lot of reading!)

I had just one area of LCIS just under 1cm. Does anyone know if that rules out an embryo transfer (frozen embryo hence you need lots of external oestrogen to assist for about 12 weeks). My obstetrician has never dealt with someone with LCIS.

Nicola

Moderators

We're really sorry to hear that you have to deal with this at a time that should be much joy. A lot will depend on what they feel is the best approach for you. You may find this page helpful: LCIS Treatment .

We're thinking of you.

The Mods

NicolaSue

Dim question I know but I was only diagnosed this month - should I be seeing a breast surgeon or a clinical oncologist? My first appointment (I'm in the UK) was with the local breast team. A radiologist did the biopsy/excision and then I got results from a registrar but they simply said to pop back in a year for a mammo. As it was LCIS for sure I don't think that's sufficient and I'm seeking a referral on to a specialist. Just don't know what kind to see....Sue

Freya244117

NicolaSue, do you have a GP (general practitioner). They can point you in the right direction as to who is the best type of specialist to see, and provide the referral. Best wishes.

NicolaSue

Just in case anyone's interested, I've (sadly) abandoned the idea of the embryo transfer. I've taken views from a number of specialists now. No one can tell you categorically that in the context of LCIS a further pregnancy is harmful but since for me this would be in context of IVF and oestrogen exposure they can't say it won't be.

And as I face a Caesearean at the end of it I don't think the stress of a tricky operation AND worrying about oestrogen exposure is something I can deal with. I'm trying to see the positive side of this which is I might have been in a much worse situation if I had the embryo transfer this month and then discovered LCIS in pregnancy. At the moment though, I'm seeing the glass as more half empty than half full. Sue

farmerlucy

Sue - I'm so sorry your dreams have been put on hold. I can feel your sadness. I'd have a hard time seeing anything in the glass if I were you. Life send us these curveballs and stops us in our tracks.It sucks. Allow yourself time to grieve. Sending you a gentle hug.