Awaiting Oncotyping results and DIEP flap pains

WGraf

I posted this in another group but hoped to lean on some ladies that have ILC. I had BMX on 12JAN2017 with bilateral DIEP flap reconstruction. I had a total hysterectomy with ovaries in June 2016. Started HRT and 5 months later I have a 2 cm palpable tumor on my right breast at 46 YO. I had a negative mammogram one year prior as well as a breast exam in June 2016. I found the lump myself and got an appt with GYN and next typical tests, US (gyn), diagnostic mammogram, US, and Bx. Eventually had genetic testing and learned I'm BRCA2+. Crazy as I am the only person on either side of my family with BC. I had complications during my DIEP reconstruction and my PS had to remove part of my 4th rib. In doing so she came upon one of the Internal Mammary Lymph Node that was very large and hard. She sent it off to pathology for review and it came back Metastatic Carcinoma - 2.5 cm. I had 5 sentinle nodes removed as well. Not sure I understand it but the left side was all negative and the right side came back with 2 nodes with isolated tumor cells. I guess I don't know how those aren't considered positive if they see tumor cells in it. I'm sure I have indicated it incorrectly in my summary. Also, my diagnoses changed a bit from biopsy (single cancer of ILC) as it is now Infiltrating Pleomorphic Lobular Carcinoma, Grade 2, also, a second cancer with Lobular Carcinoma in Situ. The BS said I am likely Stage 2; however, PS says Stage 3 since it met the requirements of the "tumor of any size that has not spread to distant parts of the body but has spread to the internal mammary nodes (IMN)". I'm nervous that my BS is minimizing my cancer because I have the "ideal" kind of BC being that I'm ER+/PR+. The BS wasn't even the one that identified the IMN. I was sent for a PET scan last week and thankfully it was NEG. I was told I will now have to do radiation. I will meet with MO and RO on 2/8 at which time I will receive my Oncotype DX results. Hoping to get some answers soon. I'm having issues with the abd incision opening up and weeping serous. My PS said if it continues to open that she will have to pack it and place another wound vac. My breast also have the weird wave of feeling so tight and start contracting that it feels like I have an underwire bra on that is 3 sizes too small. Anyone else experience this? Also, she said I couldn't do any additional revision surgery for 6-9 months following radiation. That was quite a hit because if Chemo is needed it will occur before the dreaded 6 weeks of radiation. I feel like cancer just keeps trying to break me, but I will fight for my family (mom of 3- 14 B, 12 G, 10 . I just pray that the treatment they decide upon is the right one and I can put this awful year behind me.