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Ronnie3001
Ronnie3001 Member Posts: 169
edited January 2017 in Stage IV/Metastatic Breast Cancer ONLY
Hi All, I was diagnosed with Breast Cancer Mets to the bone in August 2016. It has been a whirlwind of emotions for me and my family the last several months. Things have settled down a bit and it is time to get to work and gather as much information as possible to educate and become as knowledgeable as possible about this diagnosis.

I joined this forum last week and have found so much information and inspiring stories. I want to thank all of you for your grace, strength and support.

I look forward future communications.

Kind regards,

Ronnie
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  • Kandy
    Kandy Member Posts: 1,461
    edited January 2017

    I'm sorry you found yourself in the position that you belong here, but I'm glad you found us. There is a great group of ladies here that will support, educate, and surround you with love when you need it. I hope you have a treatment plan in place and it is going well for you. Wishing you the bes

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  • Ronnie3001
    Ronnie3001 Member Posts: 169
    edited January 2017
    Thank you Kandy I appreciate the reply! The treatment is going well thus far (3 months in)..

    Take care,

    Ronnie
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  • MSL
    MSL Member Posts: 101
    edited January 2017

    Dear Ronnie

    Welcome, though sosorry you find yourself here. I'm pretty new on the site (diagnosed Nov 16, de novo) and have found it a terrific source of info and support.

    It can help if you fill out some background about your particular diagnosis (ie. ER/HR status) which then shows up on the bottom of your posts, so people can give you targeted advice based on your circumstance.

    You'll find threads that are more relevant to you than others so jump on those.

    We've got a great thread called Stage V fitness which supports and encourages us all to keep up physical activity, so come and join us there if that takes your fancy.

    Take care and welcome again.

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  • zarovka
    zarovka Member Posts: 3,607
    edited January 2017

    Ronnie - Welcome.

    Introduce yourself on the Bone Mets Thread. Many people doing well, everyone working hard at staying well.

    >Z<

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited January 2017

    Ronnie,come on over to the Bone Mets thread that Z suggested. Incredible people over there! I'm just one year into this so I consider myself a newbie too, and I'm doing very well

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited January 2017

    I am so glad you have found this forum although I'm terribly sorry for the circumstances that brought you here.

    The initial weeks and months after a mets diagnosis are the hardest. Dealing with the shock and fear can be very difficult. But as others have said, over time it gets a bit easier, and you'll find many people who are doing well with a good quality of life!

    If it's possible, have the met(s) biopsied to see what their estrogen (ER), Progesterone (PR) and HER2 status are, since they may differ from the original cancer (if you were previously diagnosed).

    Even if you are hormone receptor negative (ER- and PR-) you may still consider hormonal therapy according to the latest (2014) National Comprehensive Cancer Network (NCCN) Guidelines.

    This is very important: Please remember to keep copies of all tests results and scans in case there eventually is a need or desire to have a second opinion from a specialist outside your medical network.

    You may also want to seek a second opinion at any point about treatment.

    I've compiled a 126 page booklet about Metastatic Breast Cancer treatments, side effect mitigation, and cutting edge research regarding the disease.You are welcome to request a complimentary copy by visiting the top of this page: https://community.breastcancer.org/forum/8/topics/831507?page=2#idx_32

    Two published books which you may want to read are:

    "Anti Cancer: A New Way of Life" by Dr. David Servain-Schreiber.The author, an MD, was diagnosed with a malignant brain tumor which he survived for nearly 20 years by following the science-based principles described in his book.It contains excellent information about diet and supplements, as well as emotional well-being.

    "Life Over Cancer" by Dr. Keith Block, an expert in integrative oncology who combines cutting-edge conventional treatment with individualized and scientifically-based complementary therapies.This book is an excellent resource for those who are interested in combining conventional and complementary therapies.

    Please post if you have questions, and wishing you a great outcome!

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited January 2017

    Ronnie, a whirlwind really describes what it is like in the first months after diagnosis. This forum is a treasure trove of insight, information and education, so I am glad that you found us and are looking around to see all you can learn to help you as you navigate these new waters......welcome.


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