how was your ubc diagnoised

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betty1972
betty1972 Member Posts: 4

Am concerned about 22 year old daughters symptoms a ultasound was ordered am just curious to how others have been diagonosied Thank you

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  • Kicks
    Kicks Member Posts: 4,131
    edited January 2017

    Do you mean IBC - Inflammatory Breast Cancer? I'm not familiar with a 'ubc'.

    A breast US is a good start for looking for BC of any type in younger women. BUT quite important is to find out what very serious issues are going on with ' large amounts of bright red blood from rectum and coughing up blood' and needs to be DXd and TXd sooner rather than later.

    What tests/scans have been ordered for this potentially deadly situation? Also all the long list of issues you say have been going on for several months Unexplained bleeding internally is a big concerned that needs to be addressed.

    US is a first step especially for younger women. IBC will show more often on an US than a mammo in all ages. Then biopsies are required for a confirmation, IF there is anything that is suspicious for any type of BC. Depending on the age of the person, a for older women (even with a recent mammo) a mammo may be first but is not 'good' for showing IBC as it often misses IBC. Then an US which is better at showing it. IF there are suspicious areas then they are biopsied. This can all be done on one day or over several days. A breast MRI is also a possibility.




  • Bravenurse13
    Bravenurse13 Member Posts: 39
    edited January 2017

    I have been lurking for awhile on this site, have found it useful, now I feel I need to  share.

    I had found my right breast had been slightly larger than the left for several months.  I had been told my breasts were very dense and in past had one biopsy, that was negative and had remained in that status for five years.  During my last mammogram in August of 2016, the tech noticed a noticeable difference in the size and firmness of the right breast, did another scan, which involved squeezing the breast, and alerting the radiologist.  Within two days my primary doctor was alerted to order an MRI. My primary ordered one to be done ASAP, but the technician stated since I was on hormone therapy I was unable to  have my the procedure done until hormones were completely out of my system as well as my herbal supplements.

    Within a week and a half I had red swollen, bruised, painful and more swelling in the right breast. I my primary put me on 1 week of antibiotics with no result, then another; needless to say it got worse, the doctor did an override and asked for the MRI to be done immediately.  Unfortunately the MRI was done on a Friday, and by Monday radiologists had not yet  read the results until late Wednesday evening!  Will not fill you in on the errors in-between (will save for another thread).  I had to wait until the following Monday to see the surgeon.  Biopsy and consult revealed localized inflammatory breast cancer with lymph node involvement.  Saw oncologist 3 days later, port inserted (collapsed lung after insertion) and chemo started immediately.

    My advise to others do not ignore even subtle physical differences.  Do not accept mammogram as only way to diagnose breast cancer.  I feel the squeezing of the breast accelerated my condition along with techs that postponed my MRI entirely unnecessary!

    I have since finished chemo, treatment of Herceptin until November of this year,I have a PET scan scheduled before I see my surgeon to schedule surgery, and am meeting with radiologist for radiation for 7 weeks.  Also started anastrozole a few days ago. 

    I have worked this whole time, I am a nurse, and my hours are full time; so I try to keep my life as normal as possible. My co-workers are quite supportive, not only are they co-workers but they are true friends.  You truly find out who your friends really are when a situation arises.

    I have excellent care and doctors, and feel quite fortunate despite the errors that occurred during diagnosis. 

    betty1972 it has been awhile since your post, I hope your daughter is doing fine, sometimes reading these posts can be frightening at times.  My advise is to stay as positive as possible, but always be aware of symptoms.  I will send positive vibes to your daughter and to yourself. Let us all know how it went.   

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