Sister diagnosed w/Pagets & in denial. How can i help?

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Amanaka
Amanaka Member Posts: 1

am looking for any info on Pagets and ways I can help my sister.

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2016

    Hi Amanaka,

    We're sorry to hear of your sister's diagnosis. We're sure that it's probably a pretty overwhelming time for your sister, and perhaps she just needs some time to process her diagnosis before making any decisions, or asking for help. You're very sweet for wanting to get answers for her and try to help her through this difficult time. Maybe in a little while, you can share this website and Community with her, in the hopes she can reach out to our wonderful members as well for support and answers.

    In the meantime, you may want to check out the main Breastcancer.org site's pages on Pagets Disease of the Nipple, for some information about what this diagnosis means. Also, there's a wonderful forum here for Caregivers, Family, Friends and Supporters, which may give you some insight on how to help your sister from others who have loved ones facing a diagnosis.

    We hope this helps and look forward to hearing more from you!

    --The Mods

  • Lorri70
    Lorri70 Member Posts: 191
    edited December 2016

    Hi amanaka, I'm very sorry to hear about your sister, I would maybe mention this website, I was diagnoised in September as possibly having Paget's had to have another biopsy then it took another few weeks for confirmation I really believed that it would be wrong I was in denial a bit I thought I was too young (46) didn't smoke not over weight, I found this website and it's been brilliant I've learned so much about my diagnosis I've researched my treatments I've found support here I can moan and express my fears.

    My own sister has been my rock she's listened to me moaning crying etc she's come to my appointments with me (even though I've a supportive husband) Sometimes he couldn't come with me and sometimes we both knew my sister would be better to come with me,maybe you could chat to her and accompany her to drs appointments all you can do is be there for her through all of this.it does get better.best of luck

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