Side Effects AFTER Tamoxifen - How Long?

JoAnn_K

At nearly 62 years old, I am now close to two full years post-Tamoxifen treatment. I still have unpredictable bone and joint pain, with increasing intensity than during my treatment. I suffer dizzy spells in my sleep, when exhausted, making me unable to function the next day. My head started to tremor right after treatment and this continues. I have had test after test, but no other determination can be made of these symptoms, except for the withdrawal of Tamoxifen treatment.

It has negatively affected my life. My libido has never returned. I ache so badly somedays, it is a real effort to stand, in addition to sometimes being wobbly, having head tremors, and being off-balance. I also get stressed very easily and get anxious or depressed. I wish there was something I could do to take these symptoms away. I work full-time, was actively involved in community activities before this, and now am reduced to working and keeping myself from being exhausted.

Has anyone else experienced this? Does it get better or go away entirely? Is there any sort of treatment that is safe and eases the symptoms?