I just turned 40, and everything has happened so fast.

munlyn

I was diagnosed originally in 2013. DCIS in left breast and a tiny .4mm IDC tumor that had traveled to a sentinel and intermammary lymph node 1mm or less in size. I did it all all you can see from my treatments. I bounced back and was walking 3 miles a day, raising my 4 kids and working.

All of a sudden last year around Thanksgiving, I started to feel different. It hurt a little to bend over, I stopped being able to do much than house work. I resigned from my job of 18 yes in March. All the while My Dr.s kept telling me I was fine, to be thankful for my little diagnoses. I tried to be.

We decided it was time for a DIEP Flap. Of course the scans for that showed innumerable tumurs in my liver, lower spine, sternum, possible peritoneum involvement. I had just one to process this, when I collapsed from a blood calcium level of 16.5. This was in August, and I have not felt good since. I have been on 2 oral treatments. Xeloda, and then Ibrance. Both failed. I had my left lung drained in September and after literally saving my fluid from the trash bin. I insisted they anylyze it.

I just found out that my Dr. failed to read the adendum that mentioned that my tumor is now HER2+. That is why nothing has worked for treatment. So I switch to a new oncologist and just had my first Herceptin/Perjeta/Carboplatin also once a month Xeloda treatment a week ago. I don't feel better yet. I have to have fluid and Zofran infusions daily. I hope to start improving. I have lost 20 lbs from vomiting and no appetite. I can't care for my kids. Thankfull for my DH he does it all.

I guess if anyone has a similar story please give me some advice. Maybe hope if you have gone through this

Thanks!

gramen

munlyn,

I'm so sorry you are going through this. I hope treatment starts kicking in soon.

You will hear soon from others here, it's a great place for support and encouragement.

I may not be the best one to provide advice, but we are in somewhat similar situation. The most important thing is that you have a new Dr. And a wonderful family, husband. Focus on moving forward, and try not to dwell on the past. I've been spending way too much time blaming myself, Drs, crying, and for what?

Sending you positive thoughts and a cibernetic hug.