Results of CT scan of abdomen and pelvis

Mary-Evelyn

I got some CT scan results this morning and am wondering if others have had a metastasis in the retroperitoneal area. I have a soft tissue mass in the retroperitoneum which is pressing on my ureters and causing mild urine retention. I also have liver metastases, about 30% of liver volume. This is bad news, I know. I see my surgical and medical oncologists later this week for treatment options.

Beatmon

I'm so sorry you got this report of progression. Please let us know what your docs have in mind for your plan.

blainejennifer

Mary-Evelyn,

All cancer is bad news, but disease volume isn't the indicator of prognosis that it used to be. You could have a good response to your treatment protocol, and the liver mets could very well drastically decrease. We've all seen that on this list.

Let us know how you are doing.

Jennifer

Longtermsurvivor

Hi Mary Evelyn,

Welcome, though we're always sorry that newcomers need to be here. Mets are a tough diagnosis and not many have peritoneal mets.

I suggest looking in two different directions:

When you have a treatment game plan or proposals you want to compare, please find the appropriate communities in this forum. Please let us know if you're having trouble finding what you need. You might want to write down the spelling of the treatments - both brand name and generic as many sound alike, but are very different.

Another direction to look is at a group specifically for those of us with peritoneal mets. We aren't many, but we have a wealth of practical and treatment-related experience that we are happy to share with you. It can be kind of heavy to read what can and does go wrong, but I believe that you too will experience understanding, hope and possibilities with our small community.

If you don't want to read it now, at least bookmark it for the future, should need arise.

Mary Evelyn, I hope you find what you need here - friendship, information, health, healing and well being.

warmest healing regards, Stephanie

Mary-Evelyn

Stephanie, thank you so much for your reply and for telling me about the peritoneal mets group - I would love to be part of it, as this kind of mets is not common. I have bookmarked it, and yes, I'll be writing everything I learn down as I plunge into the sea of information I know is coming.

Mary-Evelyn

Mary-Evelyn

I finally got my molecular markers report and am scheduled for my first dose of chemo, next Wednesday.

I'm HER neg, ER positive and PR neg. (A - androgen- R positive, but this isn't included in standard treatment.)

BTW, most people have a concise history of their cancer and treaments in italics below their posts. Where do I go to put one together and have it appear under my own posts?

I'll be getting an older, standard drug combo, known as FAC - 3 drugs: 5-FU (Adricil), Doxorubican (Adriamycin, aka "Red Devil") and cyclophosphamide (Cytoxan).

I was given a wig prescription but think I prefer hats. Does anyone have a good online site they can recommend for these? Also a slew of anti-nausea drug prescriptions. Now I'm nervous but glad to be moving ahead with treatment a month after the initial diagnosis. As I have widespread cancer in bones, liver, and retroperitoneum I really, really want this to halt the growth.

Mary-Evelyn