Tpl neg, need dmx and chemo @ 27, advice? Ur story?

JXmom2

So as some of you know i was diagnosed with

Invasive ductal carsinmia, grade 3, Ki-67 90% cells high.

I seen the surgean today who said its moving fast and is ready to get things moving. Im HER2, est,pro negitive. And the size of tumor and my age i have a higher risk of it coming back.

So shes doing a double mastectomy with chemo.

I meet a oncologist, plastic surgean and a liver specialist (cuz i also am a liver transplant reciepent, so they have to work on the chemo where it wont hurt my liver) all next week and she said my insurence should accept our plan by 2 weeks so we will get started by end of month.

She says based on the mri/mamogram im bout to have and what the oncologist il either do chemo or surgery first.

Im 27 i want breast back she said il get reconstruction (tissue expanders) and go from there.

She mentioned 10-12 months by time everything is done (4-6 months chemo)

This is soooo much info for me and idk what to say or do!!!! I have a 2 year old the 3rd thing my bf says is how are you gonna take care of Jax.

I cryed!!! Idk he knows i will need help and i have ppl offering to come stay and help out snd such already. Im sure its hard with a toddler but i should manage.

How sick does chemo make you? Always lose hair ? How long do tubes or pain pumps stay in? and what are other things that will be hard as a women or challenging as a mother of a young one? How did you deal.

Kat1984

hiya, so sorry that you're but you've found a great place! I too was triple negative, diagnosed at 30 in September 2015. What a shock right! Wow you're already a fighter having had a liver transplant! I had chemo first, which I felt was good because I knew it was working, then a mastectomy. Chemo was a bit rough but doable. I think most chemos you do lose your hair after the first couple of weeks. I was most upset about that! I finished chemo in June and have a good amount of hair now though, it's an inch or so and seems to be growing fast. The different types of chemo have different side effects and everyone's body reacts differently. I was pretty lucky with minimal side effects and was able to continue working full time mostly. They'll give you some great pre meds to help with any potential nausea etc. fatigue was an issue for me but a lot of it was mental too I think, just being overwhelmed and afraid. The biggest things I've struggled with since is anxiety about recurrance and accepting my new body, I've found that hard. My reconstruction is booked for December so hopefully that will help! I had no pain pumps but did have 2 drains after surgery, one stayed in for about a week. They were annoying but pretty painless. If there's anything else you'd like to ask please fire away!