Anyone.Starting Chemo in October 2016?

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  • VLH
    VLH Member Posts: 1,258
    edited October 2016

    Gosh, Our forum is active right now. It's good to see how we're all sharing this experience .

    Bevsue, I'm sorry to read that the blasted side effects are kicking in. Hopefully, you'll feel better in a day or two.

    Nfullblume, great news on no metastasis, a smooth port surgery and, WOW, a promotion in the midst of all this chaos.

    DeeMendez, the food issue is challenging because what sounds good in one moment is completely unappealing the next. I guess we just need to be flexible and have a variety of choices on hand.

    JR74 both you and your daughters are lovely! Bummer on the poopy feelings related to the uncooperative hair. I do feel a sense of relief having mine shaved down, though I wish my friend had left a little more length. I played with a scarf, but it ended up a lumpy mess. Maybe practice will help, but I may need to go with pre-tied.

    Barb, we've both just completed chemo #2. It's nice that you could pass the time with tunes, Soduku and crossword puzzles. I downloaded an Amazon Prime movie to my Kindle fire. "Shaun the Sheep" is a sweet, silly animated film . I didn't want anything too heavy during my treatment. The gentleman across from me was moaning in his sleep He seemed quite perky when awake, but felt bad for him clearly battling an enemy in his unconscious state. The walk along the lake shore sounds wonderful. I'm sure it was disappointing to give up your classroom assistant position, but how nice that you'll have a job waiting when you return from treatment.

    Melindawv, I'm glad you've been able to work the past two days. Super!

    Babyruth, thank you for stopping by with encouraging words!

    BA, the drug you mentioned is the generic name for Zofram and you'll probably see that name used more. Who comes up with the names of these medications?

    I'm weak, queasy and tired today with a mild headache and the "Big D" thrown in, but am sure it will better with each passing day. I spent most of the evening sleeping so didn't drink as much as last time. I could tell because I had a slight red tinge to my urine this morning and that didn't happen last time. My dog, Gracie, typically loves to snuffle my head, both before and since having it shaved, but she approached to kiss me last night, then immediately backed away. The chemicals must have made me smell weird.

    Lyn

  • b2alicia
    b2alicia Member Posts: 64
    edited October 2016

    Barb, thank you so much for quick reply. This place helps SO much, knowing that I am not going through this alone! I'm glad to hear that maybe there are only 2 more days of nausea ahead, if yours went away around day 8.

    JR - You and your daughters make a beautiful family! Such pretty smiles , pretty eyes...great that they were there to get those shots with you!

    BevSue- I'm wishing I could give you a hug because I am sharing your feelings... Only trying to remember that these horrible SEs are slapping the cr*p out of the bad guys that escaped the tumor in my breast.

    Dee- I am feeling the same way regarding the food issues! It sucks, doesn't it?? The only thing that really tasted good in the past 24 hrs was half a cheese sandwich from the microwave. It was yummy.

    FightingTheFight - I certainly understand the nausea...we can moan and groan together! And I haven't felt like posting much either the past couple of days. But just knowing these same ladies are here, well, it helps.

  • Bock
    Bock Member Posts: 9
    edited October 2016

    Hello Ladies,

    I was just wondering if anyone is as surprised as I am by some of these SEs? I'm normally the last person to complain and am by no means a wimp, but here I am at day 5 calling my oncologist's nurse because I felt so darn bad so suddenly. The overall weakness, dizziness and general yuckiness just hit me like a ton of bricks and I wasn't sure if it should have hit me that hard after just one chemo. I have also had bad knee pain since day 3, starting about 24 hours after Neulasta pod injection. I felt a little better after talking to the nurse and her telling me that I was probably having a steroid crash day, but my goodness, I just wasn't prepared for todays new developments. Sorry, just needed to get that out of my system!

    Hope very one else feels better also!

  • JR74
    JR74 Member Posts: 44
    edited October 2016

    Hi friends! Today is a better day! I went ahead and let my girls shave my head last night. It's rather odd looking but feels much better. And feels like I have a bit of control back! I went for a visit to my plastic surgeon this morning and got my expanders filled for the first time since the mastectomy. He is hilarious and always has something to say that brightens the mood. I'm sorry to hear some of you are feeling yuck. Unfortunately I will be joining the club as my second treatment is tomorrow. Ready to get it over with but also dreading it. Much love and healthy non nauseous vibes to all!! Xoxo Jenn

  • chickdudefood
    chickdudefood Member Posts: 51
    edited October 2016

    Hi everyone,

    My first chemo was yesterday, and I left with a pretty bad headache and a steroid surge that had me doing the laundry, visiting with my housemates, and generally feeling pretty good for the rest of the day. The headache was bad enough to keep me awake during much of the night, but if I elevated it enough it eventually subsided enough for me to sleep. No nausea so far, and I'm drinking so much liquid that I feel like I'm peeing every hour.

    I accidentally knocked out the Neulasta pod last night, clumsy me, so went back to the hospital today for the shot. Honestly, I'm just waiting for some SEs to kick in, and in the meantime doing anything preventative that's been recommended. I know the compazine makes me sleepy, but it really works on me for nausea, and I'm trying to juggle the steroid pills that jazz me up way too much with the compazine to make me feel a little less jumpy.

    My lymphedema sleeve arrived yesterday so today I was able to get back on my yoga mat, which is my main source of peace. It also means I can do a bit more vigorous exercise on the treadmill (it's getting pretty cold in the Boston area for outdoor walking) and depending on how I feel over the next few days, I may even try a yoga class in addition to my own practice.

    My daughter visited from New York over the weekend, we had the conversation about my BRCA 2, and on Monday she had genetic counseling and a blood draw. It turns out that there's a lot of breast and other cancers in her father's side of the family, which I hadn't known until I emailed him later in the evening. Because of this, they'll run a full screen on her, not just BRCA. But she took all the news like a champ and has decided not to worry about any of this until and if she has to. I'm really proud of her. This is a big deal to find out about at age 25.

    The arrangement I have with my housemates is that if they see that my light is on when they come home, no matter what the hour, they need to check on me. Same if they get up in the night for a snack. I do tend to wake up around 1:30 every night anyway, but it's good to know that in our unorthodox, very independent household, I've got watchers. They've also unblocked their phones so that if I need to call one of them in the middle of the night their phone would ring (and I'd only do that if I were unwell enough not to be able to get out of bed and knock on a door. This all makes me feel pretty safe.

    My heart goes out to all of you who are experiencing physical and emotional pain. I'm sure to be joining you at some point, but for now, I'm enjoying the moment and planning on what to eat a bit later, after I finish my saltines and ginger ale snack.

    Love and light to all,

    Kate



  • Connie1230
    Connie1230 Member Posts: 192
    edited October 2016

    My hair started coming out in strands yesterday, more today. I'm taking this harder than I expected. It will definitely be shaved off before this weekend is over. It would have been tonight but there are choices to be made and the Cubs game takes priority for me....not my husband....but me. We grew up in IL and have been Cubs fans forever.

    For those of you with queasy stomachs, has anyone tried the Queasy Drops? I believe that it was someplace on this forum, under chemotherapy but not in this October group that I first read about them. They said if you email the company and tell them you have BC and are in chemo, they will send you a free box. So when I was getting suggested things together, I did this. They actually sent it once and then again. I haven't needed them yet but whoever suggested it in the beginning said they really helped. I believe you can also order them on Amazon. I think they were meant for pregnancy queasiness in the beginning. It might be worth a try.

    They told me I could take that Ondansetron to prevent the nausea. I took it every 8 hrs for 5 days starting right after chemo last time and am doing the same this time. Perhaps that's why I haven't had the nausea. Maybe it's all about staying ahead of it

  • Ella22
    Ella22 Member Posts: 39
    edited October 2016

    Day 7 after first Chemo. The day after the Neulasta shot and for the next 4 days were the worst! SE bone aches and headache and D. Monday i called the Dr. to give me pain meds. Finally got a nights sleep! Today was so much better!

    B2alicia- saying a prayer for you tonight.

    Abracadabra- Sorry your SE are back!

    Some days its just hard to keep up with everything


  • Ella22
    Ella22 Member Posts: 39
    edited October 2016

    deemendoza- sounds like you and me have had the same SE from the Neulasta shot. Im sorry you are so overwhelmed! I finally was able to take a nice walk and that seemed to help at least my mood.

    JR74- Your girls are beautiful just like their mom!

    Abracadabra- Happy your 2nd chemo went good, sounds like you had a nice seat . I too love to be able to see outside while getting chemo.

    My SE have gotten better! Taking one day at a time..

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited October 2016

    Good morning,

    I decided to take my new wig out for a spin yesterday, so I went to do groceries. The wig looks fine but I'm still more comfy in scarves. Anyway, it went well until I started getting a huge wave of nausea and hypersensitivity to smells. I hurried out to my car, and had to drive home with all of my windows open (reminder: I'm in Montreal and its really getting cold here!!!). I felt just like when I was a little kid, green from car-sickness and trying to hang on until the car got home!! It all ended well, but whew! Thought those days were over with ...

    Feeling good so far today. Wish the same for you. Gentle hugs to those of you struggling.

    Barb :)

    p.s. Lyn - drink more water! Gracie has spoken!

  • deemendoza
    deemendoza Member Posts: 84
    edited October 2016

    b2alicia, It does sucks cheese balls, But this too shall pass my dear friend.

    Bock No need to apologize, that's what were here for to hold each other's hand and support one another. Sometimes I find it easier expressing how I feel here because I don't want to worry my family anymore.

    JR74 Hugging you through treatment #2, keep us posted.

    chickdudefo… Sounds like a great arrangement with the mates… I will pray that even if they don't see the light on that they quietly occasionally check in on you.

    Connie1230 (Sad face) I'm sorry, I'm trying to be positive about the cold capping but don't have much hope it worked or will work and although I may think I'm mentally prepared for losing my curls I think nobody will ever be ready. I keep looking at myself in the mirror and saying it's just hair Dee, it'd grow back, but even that doesn't seem to calm my spirit. So, I can only imagine what you're going through. I'm from Chicago so also rooting for the cubbies, even though after a full day of work and a quick stop to a dollar store last night I was wiped out and didn't watch the game. I should incorporate taking those "just in case nausea meds" they gave me regardless to help prevent any nausea. I only took them once, one dose the day after chemo. Thinking now why the heck didn't I just take them to help with the nausea (what a big dummy I am). Thanks for the queasy drop info. I emailed them this morning.Here's the link if anyone else is interested. http://www.threelollies.com/ContactUs.aspx

    Ella22 you b2alicia and I seem to have started on the same day. I thankfully I'm feeling better today minus the heartburn. My ONC said to buy prilosec which I did but that hasn't worked, will be calling her today for something stronger.

    Abracadabra… I'm sure you looked stunning, if you feel comfortable please post a pic, sorry about the nausea.

    Have a great day ladies.

  • Al12
    Al12 Member Posts: 79
    edited October 2016

    Hi everyone!! I have been reading everyone post but haven't been able to post. Work is busy for me right now. I'm on day 7 after 2nd chemo and I have to say It going better then the 1st chemo. Only problem now is a lingering nausea through out the day and today woke up with a headache. I took advil but it has not gone away other then that I'm doing good and able to come to work. The only other side effect that I am able to notice and I am not sure if that is a SE is that I am more irritable and emotional. I know the stress of having cancer but this feels different, it almost feels like when I was postpartum with my first child. Also I have not felt any SE from the Nuelasta shot but I have been taking claritin everyday. I'm keeping my fingers crossed that SE for that will be minimal. Last time it kicked in on day 8. Since Monday I have been wearing head wraps to work and today I found a cool hat to wear. So far I have been able to change up my look everyday. My head feels like velcro when I sleep and now I'm hoping for what is left on my head to go away so my head can be nice and smooth. I ordered a skull cap for sleeping hopefully it comes today. Good luck to everyone that is going through their 2nd chemo or their first soon. wishing all of you well.

    Alla

  • Rebeccam
    Rebeccam Member Posts: 6
    edited October 2016

    How are you doing Lyn? My cancer is similar to yours... I am in decision making process, encouraged by encologist to do Chemotherapy..Oncy test result 19. If I do Chemo, It will begin in about 2 weeks..

  • b2alicia
    b2alicia Member Posts: 64
    edited October 2016

    Hi Ladies,

    NEEDING FEEDBACK, PLEASE.

    Although I started my first chemo on the same day as Dee and some of you others, October 20th, I think my side effects may be slightly different. My number one misery has been my MOUTH. Oral Mucositis. It has been so bad, that yesterday I cancelled one of my two clients at work because my mouth was hurting too much to talk. And last night at 9:30 pm, I called the triage number at my clinic and had the doc on call return-call me to give his ok for me to take PERCOCET so I could get some sleep. Today was my one week follow-up with the P.A., and luckily, I was able to get her , and my darling pharmacist, on the phone together, and figure out the Magic Mouthwash so that it would only cost me $25 instead of $100 (not covered by my health plan).

    So...If you have used this, did you swish and spit? How long did you swish? How often did you swish? Did it help you ? How long did you have to wait before it helped? Same day? Next day? I have swished and spit once, and cannot really tell much improvement yet. :( Thank you for ANY light you may be able shed on this. I've been just miserable.

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited October 2016

    Betty,

    I used it and it helped my mouth by the second day.

    I was told to swish and swallow (15 to 30ml each time). I swished for a good 1-2 minutes (or as long as I could), then swallowed and avoided eating or drinking anything else for the next 30 minutes. I used it 3 times on the first day (instructions said up to 4 times daily), and then once more the next day and my mouth was fine (and has been fine since). The doctor told me not to use it all of the time ... only when mouth sores were a problem. I keep it in the fridge for the next time I need it. The label says that it is good for about 1 month, and to shake really well before using it.

    I had soreness along my tongue, on the roof of my mouth and starting into the back of my throat. The magic mouthwash was great. The only other thing I'll mention is that apparently there is more than one 'recipe' for magic mouthwash, so what I got and what you get may not have the same ingredients.

    Hoping that it helps you, and that you're feeling relief soon.

    Barb

  • Miles
    Miles Member Posts: 62
    edited October 2016

    Hello everyone.

    Al12: You amaze me. I am inspired by your courage to cover your head and do life! It is so much easier to shrink from living. You are facing it and doing it! Feeling the fear and doing it anyway is my definition of Courage. You inspire me.

    Lyn: I hate that you are going through this alone. I live alone also and can relate to your time on the "less than pristine floor." Remember that tears cried alone are prayers may the love of Angels and those who have passed before us surround you.

    Welcome ParkCityPhoto

    Nfullblume: I hope all went well with your port placement. Brilliant idea on the port placement! I wish I would have thought of that. My Surgeon put my port under my bra so I have to remove it or pull it way down before using it. I hope it goes well for you. I have my port on my left side (cancer was on the right). I had to sleep propped up for about a week. When I would lie down I would feel pain in my left shoulder. I am an E cup so if I take my bra off the weight still pulls on my port cite and causes pain. Good luck.

    Connie1230: Love and empathy to you. I too have cried over the hair loss. I know that I am crying over milk that hasn't even spilt yet… I know that the milk is going to spill and I am the waiting for the milk to spill is making me crazy…. I want to just spill it and get it over with but I'm just not ready to do it…. it is coming soon…

    Charlene1: Ahhh…. Suckie! I thought that the SE's were going to go down with each infusion…. I'm glad you told us… I will be better mentally prepared knowing it can get worse… Oh such an awful adventure…

    Kate: 'No Hair Day' (is on Amazon); I am so watching it tonight. You amaze me. I think that we all go through many phases on this adventure. I believe that taking care of you is the most important thing you can do right now. Thank you for including us in your journey. It sucks that you are missing your retreat. (((Hugs))

    Ella22: I'm impressed that you are out walking already. Good for you. I love the sunrises and the Sunsets; Such a gifts we get every day…

    deemendoza: Yes! Yes! Yes! Yes! Yes!!! All of the the symptons you experienced hit me. I really couldn't keep any food at first. Then today: 9 days after my first Chemo I felt like I could eat but had 0 desire to eat and nothing sounds eatable… But what are we going to do… live or die? Yes… Live… that is why we are doing the Chemo right?.. so I ate why? It is what we have to do to get through this… no Bueno… but Say La Vi … the Chemo Adventure continues….

    Jenn: So fun! Is this your first Granddaughter? My first Grand son was born 9-24-2016; 3lbs 14 oz. He is still on Oxygen but home from the hospital. It's awesome being a grandma.

    Barb: Are you a writer? Your words paint pictures. I read a lot of books. I often find myself being critical of the author's choice of wording but with you; I go on a mini vacation. Your words: "…watched the wind blow through the trees outside the window. Every once in a while the sun would break through and a golden beam of late-afternoon sunshine would slant across me, like a warm hug. It was nice." so beautiful and peaceful. I'm so glad that the nausea has been better for you this go round. I love your wooden Buda story. I spent most of my life being quite fit and then my stomach started to grow… my son who is autistic asked me if I was pregnant and I said "no I'm just getting a Buda belly." My son asked me what a Buda was and I explained to him about rubbing Buda's belly. So from that day on he would get face level with my belly and rub it and sing in a deep throaty chant "Bu-dHa… Bell- iEe… Bu-dHa… Bell- iEe… Bu-dHa… Bell- iEe…." (He is now 24 and I have since explained that rubbing my stomach will do nothing for him. But it was really cute and funny at the time.)

    Max: Hello my Friend…. How's your butt? Mine is sore but the flushable wipes keep it clean..

    Melinda and everyone else…. Today is the 10*27 and I am only on the 25th… I will have to finish reading later… But I wish everyone the Best!

  • Nfullblume
    Nfullblume Member Posts: 171
    edited October 2016

    Quick question..I'm can tend to get a little sweaty at night...anyone think that's a bad idea for my husband to be beside me if I'm sweating off chemo chemicals? Figured I'd ask on his behalf.

  • FightingTheFight
    FightingTheFight Member Posts: 75
    edited October 2016

    B2alicia - I'm so sorry your mouth is still bothering you so much. I'm saying a prayer for you right now. After, my first round of chemo my mouth bothered me too. It got so dry that the inside of my mouth felt like sandpaper and I once had to put on chapstick first to eat a sandwich because I couldn't open my mouth all the way, due to it being so tight. What I ended up using is Biotene mouthwash, recommended to me during chemo education. It's a gentle, lubricating mouthwash that doesn't burn. I swished it for 30 seconds and spit it out. I've now also added Biotene toothpaste and it's really gentle, and very, very mildly flavored with mint (which is a Godsend when battling queasiness and nausea).


    Also, I ordered some Tummy Drops on amazon (ginger drops for nausea) and some sea bands (I saw recommended on another thread to help with nausea) and the package was supposed to arrive today, but is delayed. And I'm super disappointed. I've been battling queasiness for days and was looking forward to trying something new for relief. It's been a week since my 2nd chemo, and queasiness by far has been the worst symptom this time around. I'll never again underestimate how miserable that one thing can make you feel. I feel like I'm balanced on a knife's edge and trying to keep full blown nausea at bay. Hoping that each thing I put in my mouth isn't the final thing to push me over the edge.


    During my second treatment I sucked on frozen grapes, to try to minimize my mouth being affected. And that did and didn't work. I haven't had issues with mouth sores or dryness, but it feels like most of my taste buds are muted. So that most things I eat are disappointing and/or bland. Like I know in my mind what things should taste like, but I can't get my tongue to discern a lot of flavors. And I feel like that, more than anything suppressed my appetite for a few days. But things get slightly better each day, regarding SE's. So I'm hoping that by the time I have my 3rd treatment in 2 weeks, I'll have a few days were my taste buds get at least a little close to normal. And once this whole ordeal is in the rearview mirror, I'll try to never again take for granted days where I feel just normal.

  • FightingTheFight
    FightingTheFight Member Posts: 75
    edited October 2016

    Nfullblume - That's an interesting question. I live alone, so I haven't had to consider that. But I would think that unless he starts to feel affected sleeping next to you, he's probably fine. I would have to think that if this were a concern, someone on your care team would have given you a heads up.

    Btw, lest it seem like I only come here to complain, I will mention that I got the chance to talk to a good friend today on the phone for a long time. It really energized me and made me feel a whole lot better (even physically). Amazing how much a lift in mood can affect your wellbeing, physical and mental.

  • Al12
    Al12 Member Posts: 79
    edited October 2016

    b2alicia, I'm sorry to hear your having mouth issues I hope you find relief soon.

    Miles, Thank you for those kind words. I read it to my husband and he cried it was very touching.

    Nfullblume, I think your husband will be fine. I've sweated at night through both chemo's and my husband was ok.

    Has anyone noticed their nails getting thin and breaking. My nails are breaking and they fill so thin like they are part of my skin. I wonder if by the time I start doing taxol that I'm the one who's nails will turn black and break off. Also does anyone know what could be taken to save your nails?

    alla

  • Miles
    Miles Member Posts: 62
    edited October 2016

    Betty: Battery acid is the perfect description for how my mouth feels… yes it Sucks! ((hugs)))

    Barb: Magic Mouthwash is what I want. Do I just ask my doctor for a script of Magic Mouthwash?

    Lyn: Thank you for sharing your ideas. I'm so doing the prime with my kindle and watching 'Shaun the Sheep' next time. Do you have any other suggestions?

    Bock: Hello. It does totally sucker punch you. All of my joints are giving me grief along with Back spasms and some electric like shocking throughout my veins. Total reboot taking place over here.

    Kate: Thank you for the tip about the Queasy drops. I'm going to try them. Hope you are well tonight.

    Nfullblume : I asked about the sweat being a problem and my Oncologist said that by the time it comes out of our pores it has been metabolized enough that it will not harm others.

  • Miles
    Miles Member Posts: 62
    edited October 2016

    FightingTheFight: You are so right about how much a conversation can lift our spirits. I also called a friend today. I cried for the first 5 min. and laughed through the next 45. It was wonderful.

    Alla: You are so beautiful. I have been told that using the 'gel' nail polish helps.

    I am coming to see that Barb is right that all of our hair, breasts, heath have been the focal point of our eyes and now that they are being taken from us we have been given new eyes. Eyes that can see that we are each so much more than these bodies that we are living in. Check out this video if you get a minute: https://www.facebook.com/neetasameer/videos/vb.707592717/10153615183587718/?type=2&theater

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited October 2016

    Miles - For the Magic Mouthwash, I'm sure your doc will write a prescription if you ask.

    I love your Buddha belly story ... when I was younger, I never had any particular interest in children, but as soon as I had my own, I found them the most fascinating creatures imaginable. I especially love those moments of connection ... what a nice memory!


  • Connie1230
    Connie1230 Member Posts: 192
    edited October 2016

    Alla, someplace on here I had read to use Avoplex Cuticle Oil and Nail Envy both by OPI. I can't tell you if they'll really work but at least it is a quality brand so perhaps they will.

    My husband buzzed off my hair yesterday. He might as well have shaved it as I still feel like there's a cloud of loose hair surrounding me but not quite as bad. I can't say that was my best day but not the worst either so I guess that was a win.

    I put on one of the bamboo hats on and I'm not sure I'm going to be able to use these. It just felt so hot and I really don't like having my ears so covered up. It's kinda cute as those things go but not sure for me.

    I was so tired last night that I could not keep my eyes open and then laid awake all night. I don't want to get on a backwards schedule but won't make it all day without some sleep

  • chickdudefood
    chickdudefood Member Posts: 51
    edited October 2016

    Hello all,

    I am so newly into this that I (first chemo was on Tuesday) and I'm just waiting for side effects still. My biggest problem is that something, maybe the anti-nausea steroids that I'm taking orally now, twice a day, are making me unable to concentrate or even to read. It's as if I've taken 25 cups of coffee. The other meds make me sleepy, so I'm really upside down in my schedule now, having trouble keeping my eyes open during the day but up a lot in the night. As in, most of it.

    I can definitely also feel the weight slowly coming on as I am really hungry in the night and am trying to limit myself to just one protein bar because I know that all those calories with so little daily movement will add up fast.

    Other than that, I am doing ok. Still can't quite believe this is happening, and that I've actually started to plan the bilateral mastectomy during a short break between chemo and radiation, since my BRCA 2 results came in after my lumpectomy surgery and I would have made a different decision had I known earlier. Still, I am kind of looking forward to going down to a B or C cup after being a 36 DD since age 13. I'll do the ovary and fallopian tube removal after all the breast treatment is complete.

    My friend who made the film "No Hair Day" was just saying to me that she loved pulling her hair out in the shower. If you see the film, you'll see that she's definitely a bit eccentric, which is why I love her, and she has just passed her 19 year from diagnosis date--honestly, Debbie is my inspiration for just keeping on going no matter what...there's also a rubber chicken scene in the film that is a miracle of metaphor and made me laugh and cry at the same time.

    I doubt I'll be so excited to see my hair go, but for the things I have no control over, I'm trying to just surrender. I'm at the beginning here, there's a path, and one day I'll look back on it.

    I love you all and someday will figure out how to answer more specifically--right now scrolling up and down is simply beyond my concentration skills.

    Love,

    Kate


  • Al12
    Al12 Member Posts: 79
    edited October 2016

    Connie1230 and Miles I will check out the nail polish I will also ask next week my onco if there is anything else to use unless they might have medication for that.

    chickdudefood , No hair day film sounds interesting I will check it out. I saw somewhere someone mentioned it's on netflix is that right? I also felt super drugged up after my first chemo. For about 3 days after I felt like I couldn't concentrate on anything if someone spoke to me it took me a while to register and I couldn't focus. I even stoped watching TV my husband was so relieved I finally stoped watching crappy tv like Bravo haha. I felt fine after that. Also after my second chemo I did not feel that so hopefully that gets better with you too.

    heres a pic of me today I came to work like this. My husband does art on the side and now he is into screen printing and he made me this shirt I think you all will appreciate it. wishing everyone a lovely day

    image

  • Abracadabra
    Abracadabra Member Posts: 1,369
    edited October 2016

    Alla - You look fresh and fierce! Fabulous!!


  • JR74
    JR74 Member Posts: 44
    edited October 2016

    Good morning friends! Again I wish I could reply to each one of you specifically but although I read everyone of your posts I simply can not focus!! Chemo #2 went good yesterday, I even slept through two of my infusions. The steroids keep me pretty amped up but I'm feeling exhausted as well. The awful taste in my mouth came earlier this time. It just feel scorched and even water tastes disgusting. I will definitely be requesting some magic mouthwash this time around!

    Miles, this will be my third grand baby and second grand daughter! My oldest son has a girl and a boy. They're the best and just so precious! I know many of you will get a kick out of my use of words like "precious" and "bless your heart" I am in southeast Texas so we apparently say funny southern things LOL. And also drink lots of iced sweet tea!

    I have a lot to do today so I'm about to eat some saltines get some Tylenol and choke down yet another steroid. Shake this $hit off and get busy! Hope you all have a wonderful side effect free weekend!! Xoxo Jen

  • Connie1230
    Connie1230 Member Posts: 192
    edited October 2016

    Alla, you look great and I love the shirt! I am also having trouble concentrating. I am a HUGE reader but reading in bits and pieces rarely instead of for hours at a time. I do watch tv but can't concentrate much on that either. Mostly I just mess around on the iPad when I'm not doing chores around here. Today all hair products were put into a tote to be hidden away for the duration and I am cleaning out bathroom drawers slowly but surely.

  • JR74
    JR74 Member Posts: 44
    edited October 2016

    Alla, I absolutely love the shirt!! And you look fabulous!


  • Al12
    Al12 Member Posts: 79
    edited October 2016

    Thank you guys!

    Connie, I did the same thing. My blow drier is now in a closet and I no longer need to spend money on expensive shampoos. My bathroom looks much neater then before. Now my kids and husband can fend for them selves regarding that department. I also enjoy reading and I'm not even attempting to pick up a book. I received magazines from friends and I haven't even looked through them. I am able to knit though and picked that up again. Making myself a turban hat. I am knitting in bed and that seems to be very soothing instead of watching TV.

    Jen, hope your able to feel somewhat better today. They give you steroids to take at home? I thought they just did that while your in chemo.

    I'm day 8 post 2nd chemo and I am still waiting for Nuelasta side effect to kick in but so far nothing. maybe that claritin is really doing the trick. Only an upset stomach where I have a bit of diarrhea but it's not terrible. I'm trying to figure out what to eat. I am really afraid this is like the calm before the storm and then all hell breaks loose. I wish we knew how it's going to be all the time, the wondering is also just as bad as the SE.

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