Going Off Scripts in favor of Alternatives

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I am new to the forum and looking for anyone willing to share their journey with both allopathic and homeopathic modailities.  I was first diagnosed in 2006 with BC.  Had lumpectomy, low dose chemo, and an array of herbal supplements.  I was cancer free and very active for nine years.   The it reared its head again and a bit more advanced.  At that moment in time, I opt for regular chemo regimen but stopped after the 3rd of 4 rounds.  Decline radiation again.  As a newly single mom with a disheveled life, I went with Femara for hormones, Affinitor (similar to chemo pill)  the side effects of these two drugs indicated the need to go on Metformin to lower blood sugar, and Prolia and then Xgeva to strengthen bones.  Ack. 

The side effects have been devasting to my quality of life.  I am so tired and in so much pain I can not enjoy even the simplest things in life and do not want to live this way.  I spoke with my Dr. a week ago and we agreed to stop affinitor and metformin, to take the next shot of exgeva and stay on Letrozole.  Well I took the shot and it has been so horrible this past week, scary even the way I feel.  So I have decided I am done with Big Pharma and uping my food game and detoxifying all this crap out of me.  I eat mainly homecooked organics, Juice, and am tying to stay away from my daughters home baked treats.  I also have a med mari card which is a life saver.  I am going rub some cbd cream on my sore areas now.  Need to schedule next acupuncture and stick with Chiropractor, hike, yoga...I want to change this around and get back to living.   Look forward to having a "conversation" around others experiences.  I am meet with my med team, including their natural path to come up with a plan on Wed. and I am trying to prepare. 

Comments

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited July 2016

    HI Marge,

    I wrote a long reply to your query at:

    https://community.breastcancer.org/forum/8/topics/...

    Hope it's helpful and that we can engage in conversation.

    You've hard choices ahead!

    warm, healing wishes, Stephanie

  • cb123
    cb123 Member Posts: 320
    edited July 2016

    Good morning MJG,

    Not quite stage IV so I'm responding on this thread.

    Sounds like Affinitor & Letrozole are kicking your butt. You should be feeling better soon, now that you and the doc have removed them from your treatment plan.

    The only type of relaxing treatment that I get and would like to suggest to you, is massage. I always feel completely reborn after my massage. I get them free thru insurance as preventative treatment for lymphedema, which I don't have.

    You'll feel better as soon as that chemo works itself out of your body.

    My side effects from the Arimidex have been almost non-existant. Only really noticing that my legs are hairier than normal. I believe the arimidex to be effective. It never hurts to take a nice, cleansing break and once you've regained your strength, maybe you can try something that's milder but still works.

    Heart

    cb


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