Stage IV HER2.....skin mets????

Grannyof3

Hi all!

I just got diagnosed with skin mets. Woohoo! I'm Finding out its pretty uncommon. Tumor markers a few months ago were fine, as was all other blood work. Talked with MO about getting very close to that 5 year, take a breath, calm down a bit milestone. Got a strange rash on my radiated skin that was biopsied.Now 3 months later I'm stage IV. The tumor marker test failed me. I asked my MO what the hell happened? In 3 months I go from cautiously happy to totally devastated. He just shook his head and said sometimes the tumor marker tests aren't accurate. Really? REALLY???

I'm finding very little info on skin mets. Dr. Google scared me more with words like terminal and 6-9 months life expectancy, so I won't be googling anymore.

My ct scan was clear , so no organ involvement. Waiting on bone scan and mri results. Hopefully they're clear as well. Will start chemo soon. Uggg

Is there anyone else out there with skin mets? I'll take any info I can get.

Thank you!!

Moderators

Hi Grannyof3,

We're so sorry to hear of this recent diagnosis! You're sure to meet many other members here who have experience with skin mets.

In the meantime, you may want to check out the main Breastcancer.org site's pages on Recurrent and Metastatic Breast Cancer Treatment Options.

We hope this helps and please keep us posted on your treatment plan and how you're doing!

Big Hugs!!!

--The Mods