Just diagnosed and impatiently waiting for staging MRI

chelle44

I found a small lump and let my doctor know. She sent me for further testing. I am 44. May 30th Mammogram showed nothing but dense tissue. Ultrasound immediately after showed a lump and they determined it was solid. The radiologist attended and I could tell that he was concerned. He did a core needle biopsy and five days later the diagnosis came in. Invasive Lobular Cancer. That was Friday June 3rd. I am now very anxious while I wait for the staging MRI. I have felt under the weather for the past six months. Unable to describe what was wrong. But exhaustion and deep bone pain in my hips. Could hardly lay on either side at night from the ache. I am fit, healthy and very active and now I am wondering if the past six months of issues are related. My family is a mess. More so than I am. My kids and husband are emotional and I just feel like we are in limbo waiting for the next appointment. I have read through many threads in this community and already feel very much supported by such a great online community. I will update once I have my MRI.

Moderators

Dear chelle44,

Welcome to our community. We are so sorry for your recent diagnosis but so glad that you reached out. There is a good deal of support and information shared by those with similar experiences. Please keep us posted. We are sending you and your family warm hugs and positive thoughts. The Mods

Blueorange

Hi chelle,

I was diagnosed on May 23rd and still waiting to get an appointment for surgery. The waiting is the worst! I'm sorry you and your family are going through this.

I had the same issue of not feeling well for several months. It was the feeling that I was about to come down with the flu, like my body was fighting something off. I believe it's related.

Wishing you all the best possible outcomes. Please keep us posted.

Gaea

chelle44

Thanks for your reply. I got my MRI date for this Friday. I will update when I know more. It helps having the next step booked. I need to take the guessing out to help me process this better. I hope you have your surgery soon blueorange.

dtad

chelle....sorry you have to be here but welcome. I know you will find this forum both comforting and informative. Are you having a breast MRI? Try to remember that it shows many false positives. The waiting is the worst. We all know how you feel. Try to stay busy and surround yourself with people that make you happy. Good luck and keep us posted....

Ingerp

I've described this process as a series of exercises in patience. Always waiting for the next medical appointment, next procedure, next surgery, next pathology report, . . .

chelle--this is a great place to update/vent/complain. Best of luck with the MRI results (and yes--my BS told me they have a 30% false positive rate--"those things light *everything* up"--so don't panic whatever the outcome).

The staying busy part is good advice. As these things go, one of my kids is getting married, at my house, on the 24th, and we're hosting a party for ~125 people the day after. At first I thought, "Really? This stuff hits NOW?" but it has been a *great* distraction the past several months. Cannot imagine having nothing else to think about and obsessing only about the BC stuff this spring.

chelle44

Wow you guys are so awesome. It's wonderful to feel so supported by people who have all walked a similar path. Thanks for the advice regarding the MRI. I'm hoping the ILC diagnosis is just the small area they have already found on the ultrasound and biopsied. It will make this easier to face. I am worried of course due to how I have felt for the past six months. Basically going from a very fit and energetic mom to lethargic and barely able to function. I'm hoping its unrelated. But like I said,having the full picture and a treatment plan will help me. My family is still having trouble and that seems like the saddest part of all this. Thanks again everyone

chelle44

the MRI showed nothing we didn't already know. Which is fantastic! Doesn't appear to be in my lymph nodes or anywhere else. Phew. I meet with the surgeon tomorrow. Such a relief. I feel so grateful which sounds funny but I really do.

Trvler

Great news! Keep us posted.