Bilateral mastectomy short / long term side effects and QOL

dragonsnake

I need help to decide on treatment. I was originally diagnosed with 3 cm DCIS, high  grade, comedo necrosis. I did a left breast lumpectomy, The original extracted piece had two involved margins. Surgeon cut around the piece , the originally bag margins were cut out, but the margin on the good side showed mode DCIS. I did a second lumpectomy, the newer DCIS was found and excised. I'm waiting for details about margins. I was thinking on doing a left mastectomy or  a bilateral one after learning that my DCIS is multifocal, and was not picked p as such on the mammo. My surgeon did not want to do MRI because it's not very conclusive, according to him.  I do not want radiation due to my previous expose and long-term side effects. I cannot do hormonal treatment due to a big uterine fibroid + many small ones,  although I might consider a total hysterectomy. My question is: what are the long-term side-effects of a simple BMX without any reconstruction in terms of pain , neurological symptoms, numbness, inability to use hands, lymphedema, etc. ? I really do not care about the looks, but I'm very concerned about my quality of life: I do not want to be in pain, with  lymphedema, mentally and physically non-functional. I have a very intellectually demanding job, I cannot afford not being able to concentrate. I need to be able to do advanced math and physics at high level. As I see it now, I can keep cutting pieces of my breasts as they become cancerous, or cut out everything at ones in a hope that that's will be it. Any advise on this matter will be very helpful. Thank you