Paget's Disease

pauli36

I had surgery on April 19, 2016 - due to my having found my nipple and surround aerole were very firm. I did not have any discoloration or seepage or pain. After a mammogram and ultra sound, it was found I had cancer in those areas. There was a calcified area on the top of the breast (left) and the surgeon suggested having a mastectomy plus removing 2 lymph nodes. He said due to the calcification of pre-cancerous cells, I would not need radiation or chemo due to having the mastectomy. I stayed in the hospital 1 night and went home the next morning. I have not had any pain and do not take any pain medication. The drainage tubes were removed the next week and although i still am having fluid drained each week, it has begun to lessen. The tissue was sent to a pathogist to see if there was any other cancer cells in the breast. It came back negative and I was told the cancer area tissue would be sent to a second pathogist to verify if the cancer was a spreadable kind or a contained. To date, i have not been told of the results of this second report. I was sent to an oncologist who ordered an bone scan and a body scan for me. These reports came back negative with no other cancer cells showing up at this time. The oncologist showed me all the details of the report and said that I was at 8% of having a re-occurrence and would not need radiation or chemo. However, he wanted me to take a oral hormonal dug for 5 - 10 years. This is a small pill. Next he said he sat me up with an appointment for a second opinion. This is because the cancer was in the nipple area. So, I thought that is fine - I can not turn down a second opinion, but was concerned as to why? I did go to the second opinion, which to my dismay and surprise, it had nothing to do with a second opinion, but to set me up with a radiation schedule. This second opinion doctor was a radiation oncologist. Now I am confused and think I will look for a 3rd opinion before I do anything else. I have searched and found reports that state that if the percentage is lower than 39, I do not need radiation or chemo. Has anyone come up with this before?.