Recently diagnosed with IBC stage IV , devastated

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liz2528
liz2528 Member Posts: 15
edited May 2016 in IBC (Inflammatory Breast Cancer)

Hi

I am recently diagnosed with IBC stage IV , can you please recommend me a good hospital/oncologist . I am in Scotland ,i am not satisfied with the doctors here because they delayed in diagnosis ,I have read n heard that research in USA is far better particularly in IBC . can you suggest me any hospital or the oncologist you got the treatment from.Send me a private message if writing here is inappropriate.

Thanking in anticipation

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  • ml143333
    ml143333 Member Posts: 658
    edited May 2016

    Liz - I live in Virginia so I can't help with a doctor in Scotland, but I wanted to tell you that we are here to help support you.

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  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited May 2016

    If I was going to travel the world to find the best expert in this disease I would either go to MD Anderson in Houston to the IBC clinic: https://www.mdanderson.org/patients-family/diagnos...

    or to Chicago to this doctor (he set that clinic up and now is at Northwestern): http://cancer.northwestern.edu/news/cristofanilli2...

    (312) 695-0990

    250 E. Superior, Suite 4-420

    Chicago, IL 60611

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  • liz2528
    liz2528 Member Posts: 15
    edited May 2016

    ml143333 Thanks for your response but my question was that which is the best Clinic in USA . and thank you PurpleMinion for the information . Best wishes for both of you

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  • bluepearl
    bluepearl Member Posts: 961
    edited May 2016

    John Hopkins University in Baltimore. You can contact them through their site "Ask an Expert" John Hopkins Breast Cancer Clinic. Just put a request in on how to get seen by them. In Canada, Vancouver has excellent breast cancer research and treatment centres.....there is even a place near by for cancer patients to stay, lovely rooms, three meals a day...snacks...coffee, tea, hot chocolate always available....lots of nice things to do too....I paid $55/day...includes everything. I can get the information for you and kitty corner to it is the Cancer Clinic and two blocks away Vancouver General Hospital....there are free rides to and from appointments as well. Jean Barber Cancer Lodge.

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