Is Lymphedema in breast only (not arm/hand) possible?

Maggerle

Binney4...So glad you are here for Cynthia B...I don't think I've ever met anyone that has such a wealth of information about "all things breast cancer"! Cynthia B...Click on Binney's links, and you'll get information that will allow you to feel empowered and have a voice...Our Binney4 is truly the Mother Theresa of Lymphedema...God bless Binney, and God bless you and your journey as you maneuver through this new challenge in your world...Hugs, Maggie

CynthiaB

Thank you! I have done a lot of research and am doing everything I can think of or get help for....but it is frustrating because my surgeon and physical therapist aren't supporting me. My oncologist was a little better. I'm working now with my primary care to find the support I need. The information that you sent from the doctor is spot on, so thank you. Finally, someone (YOU) who listened and didn't dismiss my concerns. I think that is the most debilitating part of this......being ignored and brushed aside. I'm tough and I'll make it through this. I really appreciate your kindness.

Cindy

Maggerle

CynthiaB...Isn't it stranger than fiction that so many in the medical profession swim in that river in Egypt (denial)...I finally went to my internist who felt I would benefit from seeing an LE therapist, and I did get some relief...However, I'm jumping through hoops in an effort to get a compression bra, and I've found it's almost a waste of time to get a manual lymphatic massage, and then just blow up the next day, because I don't have a compression bra...Hopefully, by next week I'll have one...After reading your post, I decided to ask for a referral, to an oncologist, out where I live, that has a satellite MDAnderson location (rather than downtown Houston) so I called them yesterday, and asked for a referral...The nurse called this morning and said it would be Monday before she could see weather my PS would agree to this or not...Why wouldn't he! I don't have an oncologist, mine died...Anyway, I wanted you to know we're all in this together, and we'll get through it one way or the other...These informed ladies are a blessing, to be sure...I'm hoping if I get this referral that I can get more support regarding whatever therapy I need...If I do, in fact, have lymphedema, I'm setting my sights on the flexi touch machine to aid in the daily massage to move fluid...Like you, I believe this experience has been harder than the cancer diagnosis and subsequent MX's...At lease they couldn't deny we had cancer...But for some reason, they don't want to admit we may have Lymphedema, and it makes one feel so frustrated and helpless...I'm glad you posted you got a little better response from your oncologist...That's what it takes, caring and sharing with each other...

Maggie