Waiting......

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kayrnic
kayrnic Member Posts: 1,708

......on scan results. Same old story. I think I am a little extra nervous this time. I was diagnosed in 2012, had progression in 2014, and now it's two years later, so I am waiting for that call saying I have progression again. I hope not. I know you all understand. I see the doctor on Friday. Fingers crossed!

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  • Tina2
    Tina2 Member Posts: 2,943
    edited March 2016

    Fingers and toes crossed for you, Kaymic!

    Tina

  • steelrose
    steelrose Member Posts: 3,798
    edited March 2016

    Kay, I've got everything crossed for you! And around and around and around we go with our scans… it's a wonder we're all still sane! Well, kinda sorta…

    I'll be thinking of you on Friday.

    xo

    Rose.


  • Kandy
    Kandy Member Posts: 1,461
    edited March 2016

    Hoping that you get an awesome report. Hang in there.

  • Kessala
    Kessala Member Posts: 189
    edited March 2016

    Kayrnic, I hate hearing you're waiting four days for results (I assume you were scanned today, Monday). No way would I put up with that. It's bad enough we have to deal with being scanned but waiting for results is nothing short of torture.

    I insist having an appointment with Oncologist the day after any scan so I can get results. No waiting for days. That's crazy. If Oncologist doesn't have an appointment available the following day I won't schedule the scan.

    Just the way I do things...

    Kessala

  • Kjones13
    Kjones13 Member Posts: 1,520
    edited March 2016

    crossing fingers and toes for great results!

  • Heidihill
    Heidihill Member Posts: 5,476
    edited March 2016

    Sending thoughts of all-clear!

  • LindaE54
    LindaE54 Member Posts: 2,054
    edited March 2016

    Waiting with you and crossing finger and toes!

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited March 2016

    Waiting is the WORST!!! I hate it!! Fortunately my onc knows that it causes me anxiety and calls the same day with results, last 2 times she called within 2 hours of the scan.

  • sueopp
    sueopp Member Posts: 1,541
    edited March 2016

    Do indeed understand K, waiting is just awful. Hoping for an excellent report - sending good karma. SUE

  • kebab
    kebab Member Posts: 873
    edited March 2016

    Sending you strength to deal with the waiting, and good vibes for a great report. You're in my thoughts this week.

  • Bestbird
    Bestbird Member Posts: 2,818
    edited March 2016

    Waiting is a form of torture, and I hope that your results are well worth the wait!

    That said, many people are unaware that they can obtain their report in person from the Imaging center, usually the same day of the scans. It generally involves filling out a form. For those who live too far for this to be realistic, by speaking to the representative at the Imaging center, and by filling out a form, you can potentially receive your report the same or next day via email.

    Some insurers or health providers construct a web portal whereby the patient can access their results immediately after they are posted. You may want to check with your insurance company and/or the location where your tests are done.

    Best wishes!


  • teacher911
    teacher911 Member Posts: 853
    edited March 2016

    Kay, I hope you can keep yourself, body and mind occupied while waiting. I am also fortunate, I see my oncologist the day I have my scan. She sets up the appointment that way. I wish all doctors would do that or at least call. Sending positive thoughts your way. Michele

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited March 2016

    fingers crossed for you.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited March 2016

    Kay, hoping for good report for you.

  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited March 2016

    Hoping you get good results Kay. We are waiting with you.

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited March 2016

    Keep checking in, hoping for those great results!

    *susan*

  • car2tenn
    car2tenn Member Posts: 515
    edited March 2016

    I go to Jacksonville, Fl. to U of Fl. to have my CT and PET scans because I get to talk to the Radiologist on the same day. Here in Nashville, Tn. you wait a week. Thanks Bestbird, I did not know that you could petition to see it shortly. Carolyn from Music City

  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited March 2016

    Oh Kay...I read you loud & clear! I had first recurrence at 2 year mammo & mets dx 1.5 yrs after that, so when I reached the next 1.5-2 years, I faced the dread you face (will we ever not face it?)...but time to start a new 2 year tradition! Praying Friday is the good news we hope for!!!!

  • kayrnic
    kayrnic Member Posts: 1,708
    edited March 2016

    Thanks everybody! I am still waiting! I emailed the doctor today and said that I would appreciate a copy of the report ASAP. Usually no news is good news, but I would still like confirmation! The docs just don't get it! I do like the suggestions of scheduling a follow up appointment a day or two later! I may try that next time! Great idea!

  • Kjones13
    Kjones13 Member Posts: 1,520
    edited March 2016

    grrrrr! But I also think no news is good news! But it would be nice to know (in a loud yelling voice)

  • artistatheart
    artistatheart Member Posts: 2,176
    edited March 2016

    Let's go with no news is good news. But waiting does suck! Thinking good thoughts for you karynic.

  • sueopp
    sueopp Member Posts: 1,541
    edited March 2016

    Still waiting with you, K, and still sending good karma your way. And yup, I believe that no news is good news. Looking forward to a good weekend for you. Best, SUE

  • Laurie09
    Laurie09 Member Posts: 313
    edited March 2016

    Positive vibes for no progression!

  • kayrnic
    kayrnic Member Posts: 1,708
    edited March 2016

    Thanks for all of your support. I wish it was good news but it's not. I have progression. Several spots in the pelvic bones and one in the sternum. So I go back to monthly Zometa, and started Faslodex. We are adding Palbociclib as soon as it gets approved.....hopefully within the next couple of weeks. I'm going to hop over to the faslodex + ibrance thread and read about the treatment and new side effects I have to look forward to. This is all so overwhelming and of course in the midst of the progression my oncologist is retiring, so I have to break in a new one!

  • Heidihill
    Heidihill Member Posts: 5,476
    edited March 2016

    I'm so sorry for the crappy news, Kay. I hope the new meds will be as gentle as can be while kicking cancer butt. You can still reverse this onslaught! Sending hugs.

  • sueopp
    sueopp Member Posts: 1,541
    edited March 2016

    Oh K, I am sorry to hear this news. Remember my friend: one step back, two steps forward, we all must do a cha-cha! I'll bet your new regimen will kick the boogers into oblivion. Standing with you as you take on this new challenge and sending love. SUE

  • Tina2
    Tina2 Member Posts: 2,943
    edited March 2016

    Kay,

    Rats. I wish this were not so, Kay. You sound as if your head is on as straight as can be, which will come in handy!

    If you're just starting Faslodex, be sure to include the Faslodex Girls thread in your research. There are valuable tips at the top of the thread, all learned through the experiences of members of the Fanny Pack.

    Tina


  • artistatheart
    artistatheart Member Posts: 2,176
    edited March 2016

    Oh Kay, What a crummy day for you. I'm so sorry you had bad news. But as Sue and many others have said one step back, two forward. I am doing Faslodex and my scans the other day were stable. You also get to add the other meds so it should wipe those buggers OUT! Hard to start with a new Onc too. I hope you get a kind, compassionate and encouraging one. Take care.

  • Kandy
    Kandy Member Posts: 1,461
    edited March 2016

    I really hate that word, progression. I think we should take it out of the dictionary. I am so sorry you heard that word. I am praying that new treatment kicks it's tail. I have done faslodex now for 2 1/2 years. Not only has it worked for me but it is very easy as far as side effects. I essentially have no problems with it. I don't do ibrance so no advice there. I know you must be disappointed but as soon as your new treatments start working things will look a lot brighter. That's a bummer that your oncologist is retiring. I hope you find one that you like even better than him. Sending you a hug.

  • jobur
    jobur Member Posts: 726
    edited March 2016

    Kay, I'm with Kandy, hate that P word and sorry you had to hear it. On the bright side, progression is still bone only and Faslodex with or without Ibrance can be a fairly easy and very effective tx. I went from many bone mets to complete metabolic response in less than a year. Fingers crossed that you will see great results too! Having to change mo's is an added stress you didn't need right now, but hope your new doc and new tx will both prove to be positive changes in the long run. See you on the Fas + Ibrance thread.

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