Another new one :(

BlueKoala

I'm moving from the 'not diagnosed but worried' to 'just diagnosed'. Hooray.

I see the breast surgeon this afternoon.

I'm 35 with three young kids and a super husband. Possible family history on my (deceased) fathers side, but not sure.

Found a lump 27th Feb. Went to the dr as soon as I could. Mammogram and ultrasound 11th Mar. Biopsy 14th March. Diagnosed 'probably invasive lobular carcinoma, possibly ductal' 15th mar.

Fairly nervous about everything lying ahead of me the next few months. But trying to not panic and just take one step at a time.

sensitivehrt

Blue,

I'm sorry to read this. I'm new to the BC site myself, only being diagnosed on March 7th. Waiting is the worse. I don't have my consultation to the surgeon until the 31st. I'm glad that they are getting you in quickly. I'm right there with you, one step at a time and trying to keep a positive attitude (as positive as you can with cancer). Sending good thoughts yours way.

Skittlegirl

I am sorry that you have found yourself here.

Yep, one step at a time.

How old are your kids? Mine have done fine with me going through treatment. It's just the new normal.

I hope that the BS meeting goes well. I felt a lot better after I talked to mine and got an idea of what treatment would be.

msphil

sorry u had to join us here but we are here to support u things will ease once treatment plan is in place be zInspired i am now yr Survivor Praise God. nsphil idc stage 2 0\3 nodes Lmast chemo n rads n 5yrs on Tamoxifen. Positve thinkin n Plenty of Hope got me thru.

BlueKoala

my kids are 9, 5 and 3. I've told them I have to get something cut out of me that could make me sick if I leave it there.

My own dad died of cancer when I was just shy of 6, so that adds an extra dimension of stress for me.

mselli

I have just been diagnosed with IDC. Got a biopsy on Friday, February 19th, and my husband passed away on the 22nd with cancer of the colon. Now I have been diagnosed with breast cancer,  awaiting surgery on early April. Having these 2 stressful situations at the same time,  and no family close,  and now no hubby to talk things over with. Difficult to say the

BlueKoala

Wow mselli. That is horrible. I am so sorry.

vbishop

Wow - lots of newly diagnosed in such a short time.  Sorry ladies!  Just know that once you have your treatment plan in place and started, things calm down and you feel more in control.  It does get better!  Promise!

BlueKoala -  ILC is different than IDC and treatment options differ as well.  I am a bit concerned that the biopsy reports have the terms probably and possibly.  They should know.  Regardless, here are some of the bigger differences between ILC and IDC:

ILC is slow to grow and has probably been there for years

ILC is hard to find on most imaging tests

ILC presents itself mainly as a thickness and not as a lump

If ILC is found in one breast, odds are it is/will be in the other breast as well

Odds are that the final pathology report, post surgery, will include more ILC tumors than you know about.  We found three on my diagnostic mammogram and ultra sound, but there were actually six total in one breast.

If IDC metastasizes, it goes to bone, liver, lungs, and brain; ILC goes wherever it wants to.

Some doctors lump these two cancers together and don't differentiate in treatment.  Please ask for a second opinion if your doctor fits into this category.

Several things go into determining treatment options:  stage, grade, estrogen receptive, size of tumor, sometimes location of tumor, family history, lymph node involvement.  The doctor may suggest a sentinel node biopsy.  That will check to see if the cancer has spread to the "gate keeper" aka sentinel node.  The doctor may also order a PET scan to look for distant recurrence, mainly as a precaution and to have all the information required to determine treatment. 

Have you seen an oncologist yet?  He/she really drives the bus at this point.  It isn't uncommon to see the breast surgeon, but I urge you to also see an oncologist before any surgery is performed.  These doctors should work as a team and consult one another regarding your treatment. If a MX or BMX is in your future and you are considering reconstruction, then your plastic surgeon becomes part of the team as well.

Sorry to see all of you here!  Wishing you all the best of luck, great doctors, and speedy test results.

Fe_Princess

Hi Blue, Mselli and sensitivehrt,

Welcome and I am sorry that you are here. Yes, waiting for the final, final diagnosis is really hard as your mind plays out the worst case scenarios. The women on this site were a tremendous support to me during that time. I really relied on their support and experience. From my early experience, the one thing I would say is take your time deciding your treatment options, educate yourself about breast cancer but be careful where you get information. If you have doubt, seek a 2nd opinion. I learned how to really advocate for myself during this process.They are our bodies and we get to decide. If your early stage, demand a DxOncotype genetic test from your oncologist. It might save you from useless chemotherapy.

Mselli, I am so sorry you are alone. My heart goes out to you.

Please all of you keep us updated on the results. It is so scary but we all make it through.

BlueKoala

I have some updated results!

It's confirmed as ILC. Estrogen positive, progesterone positive, both greater than 90%. HER2 negative. Dr thinks it will stage 2b or 3a.

I'll get an MRI and a CT scan in a few days time.

At the moment we are talking chemo, then surgery. Most likely a mastectomy because the tumour is quite large, and we will talk later about whether to get both off at the same time.

marie5890

(Hi Blue. Just wanted to give you the link to the ILC forum, too, now that you are beginning to get a clearer picture of what you are dealing with. Between the "Just Diagnosed" and the "ILC" boards, you will start meeting the those who can help guide you with where you are at. Wishing you the best. You can do this. As you poke around on the board, you will find forums for chemo, mastectomy, and even the Er+/PR+. Now is a good time for you to start browsing the different boards that reflect what you are learning about your cancer )

ILC