Diagnosed last week with triple negative ILC

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yellowlab88
yellowlab88 Member Posts: 3
edited February 2016 in Just Diagnosed

Hi All, I was just diagnosed with triple negative ILC after my surgical biopsy. I have a second surgery scheduled on 2/24 to remove the sentinel lymph node as well as additional margins since one side of my lumpectomy was less than 1mm. I'm 45 with no history of breast cancer in my family and have two elementary-aged kids and own my own business. I am scared and looking for some community.

I submitted my spit for genetic testing last week and hope to get those results within 3-4 weeks. My first meeting with the oncologist is scheduled for 3/8 and I'm anxious to hear what she recommends for me going forward.

Thanks in advance for any and all advice/reassurances!
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  • Smurfette26
    Smurfette26 Member Posts: 730
    edited February 2016

    Sorry you have found yourself here yellowlab88. I was diagnosed with Multifocal ILC last September. It's a very scary journey to be on but you will find lots of good information and support here. Feel free to private message me anytime if you would like to "talk". Hugs Donna.

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  • yellowlab88
    yellowlab88 Member Posts: 3
    edited February 2016

    Thanks Donna. It feels like this part is so full of uncertainty (how many more surgeries will I have? will I have radiation? Chemo? mastectomy?) I want to know what I am facing.

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  • Lily55
    Lily55 Member Posts: 3,534
    edited February 2016

    Triple negative ILC?  That is quite unusual.....might be worth your while looking for others on here to share notes with......

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