Just diagnosed IDC multifocal

StaceySue2U

I don't think my friends would change their habits and check a different site every day but I'm not opposed to posting some updates on Facebook. I like to keep my FB as positive and cancer-free as possible but will probably let folks know when I'm done with my mastectomy and whether or not I have to have chemo, etc. If I have any complications I'll just share them with a prayer group.

"Good thing people don't die from that anymore." Wow. How uninformed can people be? If my friends and family start wearing more pink I'll take that as a gesture showing how much they love me. My sister offered to shave her head and I'm like "Ummmm......no. Looking at your skinny little bald head is not going to make me better but thanks for the offer!" LOL I'm one of the few who are not anti-pinkwashing. I think it's all the pinkwashing that led our local masonic group to donate millions of dollars to KU Med Center for cancer research, with a commitment to donate $100,000 - $200,000 every year from here on out. There have been a lot more developments since people became more aware, including herceptin which has kept my aunt alive much longer than we thought she would live.

Ditto on the "stupid" fears. Dying is not what I'm scared of - not being able to do the things that bring me great joy while I'm alive scares me more than anything. I'm pretty upset that I might not be able to ride horses again. I was thrown from a horse and fractured my pelvis in 5 places, 2 days after I found my breast lump. I imagine I might have some osteoporosis due to my early hysterectomy/oopherectomy. If my scans show osteoporosis I would never feel safe riding again. Also, I'm really really really going to miss having nipple sensation.

I've been walking and I've noticed my mood is much less depressed on the days I walk. My stepmom is recovering from a knee replacement that she had over a year ago and she hasn't felt like walking until I started, so we're helping one another out.

Skittlegirl

I set up a caringbridge page and really like it. It emails people when there is a new journal entry so they don't have to check every day. During chemo I would update once a week or once every two weeks or so. Now that I am past chemo, I usually update after a doc appointment.

What I have loved most is getting the messages of encouragement from my dad's co-workers. He passed away in May 2011. Since they are on the other side of the country from me, it means a lot that they keep up with my progress.

Pammac47

I will definitely check out caringbridge also. StaceySue2you- I so agree movement and fresh air are very good for mental health and just feeling better in general, plus sounds like a nice bonding with your mom as well. I just got the news for surgery it will be Wednesday next week, but alas I need a cardio and medical release, so I feel like a real mess there 😳 by wednesday?? I will try. More doctors, lovely. Anyway I do see surgeon again Friday, after MRI. So I guess I might know about that too. I won't get to relax till surgery now. Thoughts and prayers for all you

StaceySue2U

Doctors, doctors, doctors. Tests, tests, tests! At least all the doctors and tests keep us busy so we feel like we're doing something. My BMX is Thursday the 25th. Got my drain camis today and had a bone scan and CTs of chest, abdomen and pelvis to check for mets. No mets wooooohooooooo!

Skittlegirl

Yay for no mets!

reflect

No mets StaceySue, that's great, fantastic news!