Anyone in Dallas, TX or know of a local support group?

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  • woodstock99
    woodstock99 Member Posts: 338
    edited March 2016

    I can't meet during the week during the day and for now weeknights are tough but I could do a Monday night so as mentioned for me this Sat or Sun after 2 or next Monday night about 6-6:30 would work for me.

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  • woodstock99
    woodstock99 Member Posts: 338
    edited March 2016

    A friend & BC survivor sent me this link today: http://www.facingourrisk.org/get-support/local-groups/texas-dallas.php as well as this FB group https://www.facebook.com/dallastexasforce/

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  • warriorwannabe
    warriorwannabe Member Posts: 66
    edited March 2016

    thanks Balthus!!! I bookmarked both!!!

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  • ayr1016
    ayr1016 Member Posts: 228
    edited March 2016

    Anybody want to meet for lunch (or tea/coffee) this Thursday 17th near 75/Campbell or I could also meet somewhere near Firewheel mall.

    For local meet ups/info/communcating, would anybody be interested in joining a dallas BC specific facebook group? Or even a TEXAS BC specific Facebook? I have family in Houston and near Austin, so I travel ever so often around the state ;)

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  • warriorwannabe
    warriorwannabe Member Posts: 66
    edited March 2016

    I work at 75 and Renner. But hard to get away at lunchtime most days (plus I dont think an hour would do it for us, do you? lol). I can meet any weekend day. I live in Rowlett so Firewheel is awesome too.

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  • woodstock99
    woodstock99 Member Posts: 338
    edited March 2016

    Would love to meet butI rarely get out for lunch and I work by the Galleria. Weekends are best for me. I am planning on attending the Presbyterian Retreat on 3/26 if anyone is going.

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  • mairew
    mairew Member Posts: 84
    edited March 2016

    Angela I might be able to meet on Thursday.

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  • woodstock99
    woodstock99 Member Posts: 338
    edited March 2016

    Just checking in to see if anyone is going to the Retreat at Presbyterian this Saturday that I posted about? Hope everyone is doing well.

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  • woodstock99
    woodstock99 Member Posts: 338
    edited June 2016

    Ladies just wanted to post this link to free seminar coming up in Addison on 7/8. https://www.eventbrite.com/e/free-breast-cancer-survivors-expo-tickets-22075039036

    The American Association of Breast Care Professionals at this year's 2016 AABCP Mastectomy Summit & Expo will be opening up the Exhibition Hall to Breast Cancer Survivors on Friday morning, July 8th.

    Raising awareness about the mastectomy fitter profession and foster a greater understanding of the products that are available to breast cancer survivors post mastectomy is a core mission of the AABCP

    Come see breast cancer garments, lingerie, hair replacement options, cancer care items, lymphdema sleeve options and breast prosthetics for all levels of surgery and throughout treatment timelines.

    Come visit AnaOno, Tara Dunsmore of Pink Ink Tatoos, Noggins, Wrapped in Love, BlushLife Apparel, Anita International, Nearly Me, Bandeau Distributors and many many, more...

    Tickets are FREE but registration is requestion and available online and at the Door. While not required, all donated proceeds will be given to a local post mastectomy charity.

    WHEN

    Friday, July 8, 2016 from 8:00 AM to 12:00 PM (CDT) - Add to CalendarWHEREAABCP Mastectomy Summit & Expo - Intercotinental Hotel 15201 Dallas Pkwy, Addison, TX 75001 - View Map


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  • woodstock99
    woodstock99 Member Posts: 338
    edited July 2016

    Wanted to pass this along. I met Dr. Nguyen for a consult and he's excellent. I hope you never need him but this is a great opportunity for Q&A on LE next Tuesday night. Hope to possibly meet some of my BCO friends.

    image

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  • RMlulu
    RMlulu Member Posts: 1,989
    edited July 2016

    Hi y'all!

    Just wanted you to know - TX Hill Country BC Warriors meets up frequently during the year and we would love to meet y'all.

    Sunday, October 23, 2016 a group of ladies from all over the BC boards will be joining us in San Antonio. There are 8 out of state ladies staying at the Wyndham RiverWalk and want to meet up with us TX gals.

    PM me for details...a fun weekend get away.

    Hope you will join us

    Cindy

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  • woodstock99
    woodstock99 Member Posts: 338
    edited July 2016

    Thanks RMlulu - I know of the group that is coming to SA and have it on my calendar to see if I can come down for the day that Sunday if you are getting together for lunch. It;'s budget time at work so I can't get away longer. Thanks for reaching out.

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  • kellychameleon
    kellychameleon Member Posts: 100
    edited July 2016

    Oh, I might be interested in that! I have a lot of friends down in that area and am always looking for an excuse to make a road trip down that way. I'll PM you, RMlulu.

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  • woodstock99
    woodstock99 Member Posts: 338
    edited January 2018

    Hope all in Dallas are doing ok & staying warm today! This is my first winter since my BMX and I am feeling more sticky pains etc with the onset of the cold weather.

    My insurance is currently with BCBSTX and they and Texas Health Resources and UTSW (where my MS etc all are) are battling over reimbursement rate for 20167 so as of now the doctors and hospitals under this group will be out of network as of 1/1/17. Just found this out Tuesday. I have my 6 month (and one year) check-up in January which I will keep and pay for office visit myself if necessary but if not resolved will likely need to find a BS and MO associated with Baylor or Medical City. Any recent recommendations?

    Wishing all a wonderful holiday season!

    Thanks.

    PS - also wanted to post this article in yesterday's Dallas News about former mayor Laura Miller who was diagnosed with a recurrence. Fighting breast cancer again, Laura Miller has some epiphanies and regrets.





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  • Lunderwood
    Lunderwood Member Posts: 125
    edited December 2016

    Hi Balthus - It's nice to hear from you. I too am dealing with my first post surgery winter. I have been so sluggish since my exchange surgery at the end of September- trying to lose the 8lbs I gained and get motivated to exercise on these cold dark mornings. I am also being treated by UTSW in Dallas - I am insured by Horizon BCBS out of New Jersey (where my parent company is located). How did you find out that they will be out of network in 2017? Did your insurance company notify you or did the medical facility? I am having a outpatient surgery on 12-29 for the nipple reconstruction. (I am trying to get through as much of this reconstruction in 2016 as possible since I have met all my insurance out of pocket for year) but obviously I will have follow up and still oncology appointments in 2017. I truly don't want to change doctors at this point.

    Thanks for the link to article about Laura Miller. Isn't it amazing how many women are dealing with breast cancer?

    Take care! Stay warm!

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  • woodstock99
    woodstock99 Member Posts: 338
    edited January 2018

    Hi Lunderwood - I go to the gym after work and on the weekends as I am a night owl and it also helps me burn off stress after work and gym is less crowded.

    We were notified by BCBSTX but it was in the local news as well. Link below.

    Our broker says that this is too big a deal for both parties not to resolve but BCBS dropped CVS from their pharmacy network for 2017 so who knows.

    Our plan year ended 9/30/16 and started again 10/1/16 and I am on a HSA that does not have deductible carryover so luckily have not needed anything in Oct/Nov/Dec and will start up again in January.

    Yes I have met or found out about many women personally and professionally who have had BC some many year sago and some recently in the past year.

    November was a tough month as it was a year ago that I had my bad mammo and fell down the rabbit hole and last year the Monday before Thanksgiving had 3 biopsies after having one in early November and breast MRI's.

    Monday will be my 11th month anniversary since my BMX but I am trying to not focus on "anniversaries" but is hard.

    Hang in there and take care as well.

    It is 30 degrees as I write this and crazy Texas wether will be 70 degrees in a few days.

    Dallas News article about: BCBSTX and Texas Health/UTSW

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  • tangandchris
    tangandchris Member Posts: 1,855
    edited December 2016

    Thanks for sharing this information...I had no idea. I have BCBS and had most of my surgery and care done thru Presby Rockwall. I love the hospital and this is very disappointing. I'll be honest, not too savvy about what insurance coverage means here though. If they are out of network then I suppose I cannot use this facility any longer?

    Also, thanks for sharing the article about Laura Miller. I didn't know she had dealt with BC once before, and now it is back after 18 years! I enjoyed her writing and her honesty. I told dh and he said "what happened to the 5 year thing" and I told him that the 5 year thing doesn't really apply to BC patients. *sigh*

    Stay warm ya'll!

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  • kellychameleon
    kellychameleon Member Posts: 100
    edited December 2016

    Balthus, thanks for posting the article on Laura Miller. I didn't realize that she had had breast cancer before. I didn't care for her as mayor, but I thought that the article was well written, and I wish her the best! We have the same MO (Dr. O'Shaughnessy), so maybe I'll run into her over at Baylor. :)

    I'm sorry for everyone dealing with health insurance issues. When I get frustrated with Aetna, I need to remind myself that I'm lucky to have the coverage, and the amount that they've paid out this year is jaw dropping. My mom had breast cancer 12 years ago, and had really bad individual insurance through Unicare (which isn't around anymore, at least in Texas). They tried to deny just about every claim, and she spent half of her time fighting with them when she was in the throes of chemo. It was so infuriating.

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  • Warrior4sararyan
    Warrior4sararyan Member Posts: 23
    edited December 2016

    Hi I am looking for a second opinion from a oncologist. I live in Irving and am right now going to Baylor and Texas oncology. I just would like to cover all bases and get another opinion as I am having really bad side effects from my hormone therapy Arimidex.

    Diane

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  • tangandchris
    tangandchris Member Posts: 1,855
    edited December 2016

    So I received a card in the mail regarding my coverage with BCBS and Texas Health. Indicated that they were working on the contract, but it's not looking good.

    I called BCBS this morning and the rep I had said they had just been in a meeting and we're told this information was not true....just rumors.

    I told her the mailing I had was from BCBS.....so she is looking into it and someone is supposed to call me back.

    Strange

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  • woodstock99
    woodstock99 Member Posts: 338
    edited January 2018

    I got the postcard as well but I handle benefits for my company and we were notified by our broker a week ago and I spoke to someone at BCBS last week as well who confirmed this to be correct as o now.

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  • Warrior4sararyan
    Warrior4sararyan Member Posts: 23
    edited December 2016

    What contract are they working on? Baylor? I did talk to a nurse at BCBS and she said that they have not come to agreement with UTSW but she did not say anything about Baylor healthcare.

    Diane

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  • RMlulu
    RMlulu Member Posts: 1,989
    edited December 2016

    Hi y'all

    Interesting on BCBS hmm.

    Warrior considered contacting Jwoo or keepthefaith both had chemo MO in area.

    Please consider join us Hill Country ladies for a meet up in January 2017.

    Merry Christmas and Happy New Year!

    Ci d

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  • woodstock99
    woodstock99 Member Posts: 338
    edited January 2018

    the contract issue is between bcbstx and Texas health resources and Utsw.

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  • ayr1016
    ayr1016 Member Posts: 228
    edited December 2016

    kellychameleon, Dr. O is my MO as well.

    Diane, Have you considered getting a 2nd opinion within the Texas Oncology team?

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  • Warrior4sararyan
    Warrior4sararyan Member Posts: 23
    edited December 2016

    Yes, I tried for a second opinion and the doctor at Texas Oncology declined. I heard they don't like you to switch doctors. I guess I will look around and try to find one on my own.


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  • Lakshmi108
    Lakshmi108 Member Posts: 3
    edited September 2021

    Am in Frisco tx, Married but much alone.. looking forward to any meet ups in dfw area

    2019: stage 1 lumpectomy and one week radiation. One tamoxifen per day. Life and work are too busy to worry about bc. Occasionally freak out on the unknown.

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