So... What now? IDC grade3, ERPR+, HER2-

MLP3

Just diagnosed yesterday. The plan is to meet with a breast surgeon, med oncologist and rad onc next wed, 1/6. They told me that I would see each of them separately and they would then group together and discuss a plan. She told me that I would require more surgery, testing and scans.

Anyone here with a similar sitiuation? Am I looking at chemo? Mastectomy? I'm guessing this will be a year long ordeal...? What a way to start the New Year😬 My resolution... Kick cancers ass💪🏻

ml143333

MLP - so sorry to hear about your dx, but rest assured that we are a good and supportive group. I hope that you will be able to get what you need here.

I too was diagnosed at stage 1, grade 3, PR/ER +, HER2-. After the MRI, it was determined that my tumor was probably 1.5" and they didn't think there was any nodal involvement. Once the oncotype came back, we knew we were dealing with an intermediate score.

I decided on a bilateral mastectomy with immediate reconstruction and chemo based on the oncotype score. Since I had a mastectomy, there was no radiation.

My diagnosis was in July of 2014 and as of right now, there is no evidence of disease and I am on Femara for 5 - 10 years.

Good luck!

Moderators

MLP,

We're so sorry to hear of your diagnosis, but really glad you're a member of our wonderful Community. As you can already see, this space is full of helpful members offering great support and advice.

Please keep posting and let us know what information you find out about your diagnosis, and we'll all be here to help walk you through it!

(((Big Hugs)))

--The Mods

BethL

great resolution!! This is one of the most difficult parts of the process, not knowing what's gonna happen. We've all been there and know the frustration, fear, and sometimes anger over this beast. You're in a good place here, and it sounds like you have a great medical team. It is so helpful when a team approach is taken. You will learn more soon, hang in there and make sure to get information from credible sources. It's so easy to find bad info on the internet, but finding us here...a good thing!

MLP3

thank you BethL!

HER-2 status is confusing me... Mine is negative with ERPR+. Does this point toward chemo? Hormone therapy...? Just curious what I have to look forward to

MLP3

I hope so too! But I'm mentally ready to take on any challenge that will get this out of my body and on a healthy road to recovery.

I'm vegan and I also have a vegan page on FB that I'll be posting tips on healing myself through organic, whole foods. As soon as I tell my kids I'll start posting. It's called The Daily Vegan.

I just discovered Chaga Tea and it helps to cure many ailments and is recommended for cancer patients. It's a powerful antioxident, immunity booster, anti-inflammatory and helps with cancer treatment side effects.

Brimton

Hi MLP3
It sounds like they are really working together to come up with a plan. That's wonderful. I too got diagnosed 12/1. I have had a lumpectomy and now I'm waiting for oncotyping results which take 14 days after they get you specimen. The waiting is hard... I wish They had a more expedient way of doing this! I meet with the oncologist 1/5 and rad 1/6 but I'm not sure what they will tell me since my oncotyping is not back. I expect it 1/20 right before my 56 birthday. Happy Birthday.
I just want you to know you are not alone. I will check out your blog. I'm a vegetarian and I too have been researching wholistic teas and herbs. Have you heard of essiac tea, beta 1-3 gulcan or Teracumin. I'm thinking of using everything to fight.
Good luck to you

MLP3

thanks for the info! I'll check out the tea too;)

How was the lumpectomy? Were you awake? How's the recovery for that? My biopsy was a piece of cake but I'm still tender and that was done on the 22nd

Brimton

Dear MLP3
The lumpectomy went fine. It was out patient and took about 1/2 a day with check in etc. They sunk, for lack of a better term, a fine wire into my chest to mark where the tumor was. I took some Ativan before hand cuz I'm a nervous medical tester. I was in a twlight sleep. I went home afterward and was but out of it but fine. I'm a little sore but thankful the THING is out. I ended up getting a rash from the cloraprep. I would recommend spot washing the area the day of surgery. I didn't wash for two days and I think that may have exacerbated the rash.
now I'm waiting for the You CAN do it!

MLP3

please keep me updated! A fine wire...? I have a clip marker in mine now that they placed during the biopsy.

My gyn called today and said I'll most likely be having excisional biopsy, sentinel node biopsy and then lumpectomy within a week from my appt on the 6th due to the grade 3 invasive.

Brimton

It depends on the size of tumor. Mine was 1.4 somewhat larger than they had thought in the beginning. Since it was small and hard to locate they place a small wire from outside your chest into the tumor using a mammogram. It sounds scary but they numb you and then put the wire in. It's as fine as a fishing line. Then the surgeon follows the wire to the tumor. Mine was smaller than an m&m. It's not bad at all.

etnasgrl

If your tumor is small and can not be felt, (and sometimes when it can be felt), they will insert a very small wire into your breast, using an ultra sound to guide them. The wire will be inserted and be brought to the clip that was placed inside your breast during your biopsy.
The only purpose of the wire is to guide your surgeon to where the tumor is. It does NOT hurt. They numb your breast just like they did for your biopsy. (If you had a core needle biopsy.)
After the wire is inserted, they will do a quick mammogram of the breast to make 100% sure that the wire is in the correct position. Then, they will tape down the wire sticking out of your breast and when you get in the OR, the surgeon will remove the tape to see the wire and then go forward with the surgery.

Please keep in mind, this wire is ONLY needed if you are having a lumpectomy.

I hope this helped. I'm sorry you found yourself here, but this is a great place, full of some pretty awesome women. You're in the worst stage.....the waiting stage! You don't have much info and until you do, we can't tell you too much.

MLP3

Thanks ladies! Mine was pallable and its 7mmx5mmx6mm. Not sure of the dcis size. My IDC was tagged with a clip at time of biopsy.