Local reccurence in axilary tail

vfh123

Dear ladies,

In 4/14 i had stage 1 breast cancer. Er/Pr+ her 2- grade 3 total axilary dissection 0/25 and masectomy with silicone implatant. I had 6 round of AC chemo and Tamoxifen. No radiation.

Short after chemo ended I felt small lump in axilary tail of the same breast. I went for us and they said it was just a cyst. It had perfect shape and there was no doubt for them that it was cancer.

In 10/15 I was diagnosed with local reccurence after I asked for FNA. The lump was 1;0,8 cm and invasive part in the lump was 0,7;0,4 Er/Pr+ her2+ grade 3 and no vascular invasion.

Scans are clear.

One thing I dont understand, if there was no vascular invasion....and I dont have breast and lymph nodes....is it possiblle to go somewhere?

Nobody can tell me if this is possiblle.

Did any of you had reccurence in axilary tail?

I am so scared. I just want to see my little boy growing up and get old with my husband. I will do anything, I think that I will be on taxotere and herceptin this time.

Can I still be cured from this?

MusicLover

No one is really ever "cured" but as you say this is local and not a distant recurrence so I think that you can beat the disease. Stay diligent as it sounds you have been. Best wishes.

KBeee

I had a local recurrence. It was not in axillary tail, but I had 2 tumors in upper, outer quadrant. Will it be cured? Well, I'll be able to tell you in about 10 years, but for now I believe I am cancer free. I do however take any little change or lump seriously (just had one checked out this week) and ask for biopsy when uncertain because like you, they did not believe my recurrence was cancer either. I have 3 kids and also want to be extra diligent to give me the best chance possible of seeing them grow up.

vfh123

Thank you ladies for your answer.

I am so scared because all I can find about local recurrence is that is predictor of distant mets. I thought that with that early stage and agressive treatmebt I would be ok.

I am so mad because I cant enjoy everyday life, I am in panic all the time.

I just want to live and be there for my child.

My treatment now is 12 weekly taxol with herceptin and after that radiation and zoladex.

I really hope that it will help this time.

KBeee

I was also early stage, node negative, blah, blah, blah.....at really low risk of recurrence and we hit it with very aggressive treatments first time around. We hit it again with chemo second time around, took out my ovaries, did radiation, and hopefully that'll do it. It does make you worry exponentially more about lumps and bumps, but I think that diligence will hopefully identify anything that'll come early. I have finally come to terms with the fact that statistics are numbers. My chances are 0% or 100%. 0% if I do not recur, 100% if I do. That sounds crazy, but last time I had a statistically really low number of recurring, yet it came back. Someone will always be that 1%. Even if they told me now they were 99% sure it would come back (they did not), someone has to be that 1% too. We are at higher risk since recurring, but they will watch us much more closely now also. One day at a time.

vfh123

You are a brave woman. I wish I am like you.

My oncologist doesnt talk about chances for long term survival, that is really scary. I changed hospital because I belive that they didnt do everything in my case. I live in small country Croatia and for example they didnt even do MRI of breast before or after surgery.

Maybe it was already there at first diagnose, in 6 months it grew only 3 mm, so I dont belive that it is so agressive, maybe was misdiagnosed. I will never know.

I can only pray this time. I will pray for all of you wonderful ladies.

7of9

vhf - how are you doing? I am scheduled for biopsy of lymph node and something other weird looking in the tail side of my left breast where I had double mastectomy (left side was bc only, strange how I don't worry at all about the right side...chopped that sucker off when I had the chance before it went south). Anyway I didn't have rads after neo adjunct chemo and 2 nodes were negative. Tamoxifin for 3 1/2 years - no more periods and asked doc if I should switch over to Arimidix(sp?) but he said no stay on Tamox for first full 5 years. I am wondering if they should have done rads to be sure (I had 2 tumors, one was over 2 cm shrank down to under 1 after pre-surgical chemo) Lymph nodes looked suspicious in all my first go round scans and my right breast looked bad too but turned out was just scar tissue and dense...wtf!? Not sure I can get that lucky again. This disease is bullshit. So many people throwing their lives aways on drugs and doing crime and here we are stuck with this crap. I won't ever whine to my 6 year old about this...but man, trying to get him prepared for life sooner than I'd normally have to since it's not looking good for that mother son dance at his wedding. This sucks.

vfh123

Yesterday during shower I found small lump on my ribs on a cancerous side. It is moveble and it isnt hard, but what is it.

A month ago I had MRI and pet ct and everything was ok. I am so scared, I cant even describe you with words.

I am on weekly taxol and dont know if its even possible to develop new cancer so soon and while still on treatment.

I am trying to get US and FNA as soon as possible.

I totaly agree with you, life sucks. All we want to see our childeren growing up...every day I pray God for that. I dont need anything else. I really hope that everything will be ok with you and that you will get benign result.

Lunalin

I wish you courage and endurance, for you will endure.