Suggestions for 2nd opinion on LCIS pathology?

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Zero7
Zero7 Member Posts: 4
edited October 2015 in LCIS (Lobular Carcinoma In Situ)

Been lurking for a few weeks, just got pathology report from excisional bx. Basically says "extensive LCIS". I would like to get more detail, such as histology, and 2nd opinion from large cancer center (U.S.) I've seen Johns Hopkins, Vanderbilt and Cleveland Clinic mentioned in some posts..anyone have any further input for me on this? Thank you to all who post on this site, I have learned SO much in a very short period of time. Very grateful I found this site.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited October 2015

    Memorial Sloane Kettering. Any NCI designated cancer center, which are frequently university hospitals

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  • leaf
    leaf Member Posts: 8,188
    edited October 2015

    I think it would be very valuable to know if you have some sort of classic LCIS or if you have a 'variant' form like PLCIS. Yes, I know the terminology can be awful, and at least when I was diagnosed with LCIS 10 years ago, different websites (from major universities) defined LCIS differently.

    Here's a more recent (2012) description of LCIS types from UCSF. http://www.ucsfcme.com/2012/slides/MAP1201A/18YiCh...

    I hope that as time has gone by that more pathologists agree on a definition of LCIS and its types, but I can't guarantee it. My 2nd opinion on pathology at an NCI-designated center was about 10 words long; my original pathology report was much more descriptive. The only change that my NCI-designated center did was change 'LCIS with features of ALH' to 'LCIS with ALH'.

    Best wishes, Leaf

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  • sandcastle
    sandcastle Member Posts: 587
    edited October 2015

    Dana Farber and MD Anderson.....Liz

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  • Zero7
    Zero7 Member Posts: 4
    edited October 2015

    Leaf, that's what I was trying to avoid, a second opinion that just says "lcis". Would really like to know type...

    Liz, did you get an opinion from Dana Farber or MD Anderson and if so, did it have detail on type?

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  • sandcastle
    sandcastle Member Posts: 587
    edited October 2015

    No....I did not....but have a friend that traveled from the Jersey Shore to Dana Farber.......in fact she got the same answer as down here....she thought it would take her a different route...but not.......or should I say she wanted to hear different.....Liz

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  • dtad
    dtad Member Posts: 2,323
    edited October 2015

    Zero7 I would get to a university based teaching hospital for a second opinion. Good luck. Keep us posted.....

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