Invasive Squamous Cell Carcinoma breast cancer 3 negative

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nanakoller5
nanakoller5 Member Posts: 1

Invasive Squamous Cell Carcinoma arising from metaplasia , triple negative breast cancer, anyone have are had this type of breast cancer and have it return ?

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  • Meadow
    Meadow Member Posts: 2,007
    edited October 2015

    Nana, I do not have this particular diagnosis, and I am so sorry you ae going thru this. Hopefully someone who has this same cancer will join in soon. Until then, please explore this wonderful website. I know you will find tons of information and support here. Hugs to you.

  • Laineylynn
    Laineylynn Member Posts: 2
    edited November 2015

    Nana, I'm currently in treatment for the same type of breast cancer. Scans showed cancer in 3-4 lymph nodes, also. I completed 6 rounds of carboplatin + gemzar. The breast lump shrank about 50%. Had mastectomy November 2, 2015, with 5 sentinal lymph nodes removed. Per my pathology report, all of the nodes were free of cancer, but there was still some cancer in the breast tissue. My onc. wants to start weekly taxol (12 weeks) next week to kill any remaining cancer cells. I will probably also have radiation. This is a very rare form of breast cancer, and not too many doctors have treated it. My best to you on your treatment.

  • khayden15
    khayden15 Member Posts: 2
    edited November 2015

    I was just diagnosed with this type of cancer. Scheduled for double mastectomy December 2. Will start chemo 3-4 weeks later. BRCA1 mutation positive. What is your treatment plan? There was a lot of debate whether to do surgery first or chemo first.

  • Oceanlove25
    Oceanlove25 Member Posts: 28
    edited October 2019

    I too was just diagnosed with invasive squamous cell carcinoma. I also had invasive ductal carcinoma and lumpectomy in Feb followed by 4 weeks of rads, and am on femora and the five year plan. My squamous showed up after my original surgery as a small lesion about the size of a pencil eraser pop up on the side of my breast. It just never healed. Then they decided to due a biopsy on my cancer breast to rule out IBC, I showed the surgeon the lesion and he said he'd take that out too. The lesion came back as the squamous. The surgeon thinks its no big deal. But it had spread to the margin so he has to go back in for more. He doesn't want to do a mx, says it's not necessary. I see my onc on Monday and am hoping for more info. Everything I've read says a lot of times it reoccurs. I would rather have the mx. The surgeon also siad I won't need rads or anything. He's a good surgeon but old school. I just know all it takes is for one cell to escape and multiply. How does he know he can go in and get it all? Right now surgery is scheduled for Tuesday. I'm praying my onc can help.

    I'd appreciate any thoughts on any of this. The diagnosis of two different kinds of cancer in 8 months is unreal. Oh and the lesion is actually on the side of my breast and that part has never bee exposed to the sun.

    Thanks ...this site is a lifesave!

    Patty

  • Oceanlove25
    Oceanlove25 Member Posts: 28
    edited October 2019

    Hi everyone.

    Well surgery was yesterday. I had talked to the nurse navigator at out breast clinic and she said to make sure I asked the surgeon to test for hormone receptor on the specimen, Er/Pr and HER-2. When he came to talk to me before surgery, I did ask him for that. He said this isn't breast cancer it's skin cancer so there is no need. I pushed him and he pushed back. My husband loves the surgeon so anything the surgeon said. My husband has supported me in all this up until now. So I must apologize for my behavior before surgery. When the surgeon came out to talk to my husband he could tell the surgeon was still upset about what happened. From what I researched, I still believe yes it is skin cancer but when it appears on the breast, and after being diagnosed with invasive ductal cancer...well I think it needs to be looked at more. The surgeon believes that younger docs react differently.
    I do see a radiologist/oncologist next week so maybe I'll get some more info on things. The surgeon in the beginning said he'd take it out and that he didn't think I needed radiation. Meanwhile I've had whole breast radiation in Mar and april for the IDC, and they don't usually use radiation once you've had whole breast.

    I know I'm venting but I don't feel listened to. The surgeon never even told my husband about the surgery. I asked my husband did the surgeon say he got clear margins? He said he'll go over that with you when he sees you.
    I would love any comments...I'm grately for this site and really just trying to keep it together. For the surgeon and husband this is just a simple skin cancer (as husband says like the spot they scraped off his back), to me it may be more.

    Thanks for listening.

    Patty

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