Baby with Congenital LE Misdiagnosed for Months

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NatsFan
NatsFan Member Posts: 3,745
edited September 2015 in Lymphedema

Article in today's Washington Post's "Medical Mysteries" series about a baby with severely swollen lower limbs - good thing mom was persistent. Grrrrrrrrrrrrr!

https://www.washingtonpost.com/national/health-science/what-caused-a-newborn-twins-badly-swollen-legs/2015/09/28/684919e0-315a-11e5-8353-1215475949f4_story.html

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  • carol57
    carol57 Member Posts: 3,567
    edited September 2015

    NatsFan, that article is such a story of determination, as you say. It should make every reader indignant to see how many of the baby's doctors had zero clue about primary LE. How shocking that some of them figured it out by googling! We have such a problem with education of health care providers. NLN seems not up to the task. Heather Ferguson's experience with her son's misdiagosis is unforgivable, and her response--to advocate, push, cajole, and lobby for garment-coverage legislation--makes her a hero in my eyes.
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