Starting Chemo September 2015; join us!

exercise_guru

Annie: My port incision is breaking out into a rash from the glue. I'm allergic to tape and sterile strips so he thought glue would work. Ever had a rash underneath glue? Ya me neither. I'll have to go get some help tomorrow.

Annie I just wanted to respond with Big hugs. I too have an adhesive allergy but I did not know this until they put in my port. i developed all kinds of challenges so I am truly hoping that yours heals quickly. I had to go to the wound center for treatment. My port caused me a lot of pain. I don't think your port is pushing on a nerve it is probably reacting to the glue. Eating a lot of protein helped me they had me on 100 grams a day which was near impossible as I can't stand protein after chemo. I don't have a lot of advice but just sympathy and hopes the situation will get better for you.

exercise_guru

MarylC I am on day 6 of first cycle of TC. Anyone have help with Neulasta bone pain? Did you take Claritin and how often? This bone pain is hard to handle--can't sleep or sit. Ugh. MD wasn't particularly helpful with suggestions--said hot bath would help. REALLY? Wasn't expecting this. Help!

I had incredible Bone pain my first Chemo even with a dose of Claritan each day. The second & third time I took a dose of 24 hour claritan at 10 am and 10pm starting the day before the nuelasta shot. I didn't have much pain after that just a tiny bit in one ankle. I talked to my MO he thought it was such a great idea he said he might recommend it to other patients.

DLcygnet

Stay strong! I just found another great source of carbs, protein & grease
Mongolian Grill (or similar) was awesome for lunch today. Lots of meat & veggies. Plenty of rice to soak up the drippings.
Plus, tons of sauces to flavor the food and a fortune cookie to boot.
"If you keep doing what you've always done, You'll keep getting what you've always gotten."
*smashes cookie* >>> *falls asleep at her desk*

Cute wig, DeeRatz. My fitting isn't for another 2 Wednesdays. I wanted all the hair to be gone for a good fit.

AnnieB43

Thanks exercise guru. I had it checked out. They gave me some cream. It's a little better now. I'm looking forward to the next 3 weeks with no procedures.

sweetrose623

Hi all.  I started chemo on September 15th.  I am on weekly Taxol/Herceptin for 12 weeks and then Herceptin alone for 9 months.  I will have my 4th infusion tomorrow.  So far the side effects have been flu like symptons where my whole body aches and a couple of times since starting chemo, my eyes have gotten really red and glassy looking with some pain.  It will usually last a day and a half and clear up.  Has anyone else had problems with their eyes?

DLcygnet

Welcome sweetrose!

Your timing is great. Scroll back about 2 pages, seems like this was the day to talk about blurry vision and such. I'm more in the nausea & constipation camp. Nothing with the eyes for me yet, unless I get really tired. Although... there was one day where it felt like my eyes wanted to pop out of their sockets (~6th day after first infusion). It was weird. It passed.

cajunqueen15

hiya ladies! I think you all look beautiful, don't let this disease fool you into thinking your hair is your beauty.

I'm feeling a little edgy for my next infusion on Friday. I'm all the way back up to normal and even taking my adderall and going back to work and I have this fear that it's all just going to come crashing down on Friday and I'll never recover. I guess I guess that's a reason to live for the day right?

I personally like to wear flair to my infusions. Since I'm having a AC, it is a devil theme right now. I will post a picture of what I wore last Friday. Next up is the devil tail!

cajunqueen15

edwsmom

Southern! Is that the halo from wigs.com?

The one I posted I ordered and it's supposed to arrive tomorrow.

Right now I'm feeling eh about my wig, I feel like the hairline looks fake or to far forward or something above my ears...grrr.

DLcygnet

Love it Cajun! That has a distinct, "Kill it with fire" mantra going for it.
Maybe I'll wear my bionic cat ears to the next infusion and scare the nurses.

LindyC

SouthernCharm..is that the halo from wigs.com? The Rene of Paris in toasted brown? If it is, i have the same one and it looks really good.

Cajun..we're getting close to Halloween so the devil horns may not get you too many second looks..lol

cajunqueen15

Lisa, I need you to do just that and post a pic! And your son is so adorable.

mom2boo_and_buzz

You guys are killing me with all the fabulous food you are eating! My taste is gone again, metal, metal, metal, even water tastes awful. On top of that I have celiac disease and have been gluten free for 15 years. I have not wanted to cheat ever but I would gnaw off my leg to have some good old fashioned saltines and a fresh chewey baguette!

LindyC

Mom2boo..my taste is gone too. Everything tastes shitty. I can't tolerate water. All I can stomach is lemon flavoured vitamin water which I guess is kind of like gatorade. Coffee tastes so bad and no flavour of tea will do. All I crave is carbs, carbs, and more carbs....then when I get it down, the bad taste hits again. Ugh..if it's any consolation, saltines don't taste right either.

cajunqueen15

mom - I'm on an alkaline diet and can eat none of that and absolutely no sugar so I feel your pain! I have to force feed myself. Yuck.

Moderators

YourOtherLeft, welcome to BCO. As you see, you are in a special place!

Shopgal2

I also am struggling to take in enough liquids this round. Water tastes like metal and I can't get it down. And my back up of decaf iced tea also tastes meh. Cranberry juice still tastes good and I have grape juice to try.

Taste and appetite still are off. Vinegar, salt, & garlic are good. Along with the comfort of cottage cheese. But alas both either result in killer reflux or constipation this time. It's like pick which is the lesser of 2 evils to eat with the resulting side effect. My gut is killing me. I'd love a nice juicy steak if it didn't taste like metal. That's gonna be my reward dinner once I finish. At least salmon still tastes good. I am watching food network on my couch like its porn. If only I was hungry. Crap

Hazel_Nut

Sushi will be my reward dinner.

DeeRatz

I chew on ice for my infusions. I'm convinced this helps big time. Both with getting no mouth sores and I haven't had the metal mouth taste at all. Food does taste blah but at least not metal like. I am not losing weight at all. My weight has remained the same. I just force myself to eat. Everyone that has been bringing us meals also thinks we need dessert. I ❤️ The chocolate cake and all the other yummy treats.

Southern you look so cute. I had bought a piece of hair that would Velcro into one of my hats. It is so terribly cut it looks like a dog chewed on it. It was from headcovers.com. My daughter and I just laughed at it. I don't think cutting it would help....I guess I should try. Sending it back to the states from here in Canada is a pain in the ass. It may end up being part of a Halloween costume I'm guessing.

molliefish

Happy Anniversary Lindy!!!! I'm sure you'll have a great time!

DLcygnet

And then the carbs and grease catch up to me... HELLO DALLAS!
I'm having trouble deciding which side effect is better. Both are a pain in the butt.
Anybody have a least favorite side effect so far? A favorite?

molliefish

Re Annie should be a comedienne I hope you don't take offence Annie but I was in tears I was laughing so hard at your post this afternoon. You seem to have a gift.

Skittlegirl

Well the triage nurse and I finally touched base. For the headache, she says drink plenty of liquids (blah), switch the anti-nausea meds, and use ibuprofen sparingly.

LindyC

DeeRatz..I'm in Canada too and I ordered the halo from wigs.com. With the exchange and duty, it wasn't cheap but it does look good. Its my go-to wig as I can use any hat with it. I do recommend it. Happy that the timing takes us into winter so wearing hats all the time looks normal.

I have a full head wig and another back fringe attached to a baseball hat but can't remove it. I'm fortunate that insurance gives me enough to have a few options.

KatieJ523

You girls all look so beautiful without your hair. I hope to have the confidence to post my pic soon. After two very weepy days leading up to my head buzzing, I managed to get through the buzz cut without tears and very relieved to be done with the heavy shedding. I have a nice wig that is way too much hair for me, but can't get it styled until Friday. I had to go out today for my genetics testing blood work and wore the wig. Felt very self conscious. Wearing it with a baseball cap seems to be doable so that's my plan.

This is me in my too big wig.

To lift my spirits, my hubby decided to try on my wig and let me take a pic. He really went for it! I'm in tears laughing at him.

All my best to you lovely ladies.

AnnieB43

I made it home! I've been sweating like a pig for 2 hours, my pee is orange and my nose feels like I sucked up pool water like cocain, but sweet liberty I am home!

I have new prescriptions. Zofran and emla cream. I also hoarded the pain meds from port surgery in anticipation of bone pain. I asked about the 24 hr claritin taken 12 hours 2x and I was told go for it and see if it helps. Thanks for that suggestion cuz I'm doing it.

I'm about to get into some jammas, pop in a dvd and go lay in bed. I ate an apple with peanut butter and my jittery stomach backed off. My kid's won't go to bed because we've been gone all day. I'm going to be selfish and leave them to Daddy. See I am growing as a person

KatieJ523

Thanks Southern. The humor keeps me sane for sure! It's a synthetic wig by Jon Renau.

AnnieB43

OMG I just remembered...I'm halfway done!!! Happy happy joy joy!!!

Love that wig. Love jon renau. Your hubs is a cutie

AnnieB43

aggiemegs

Wanted to throw in my two cents for those that can't drink water because of the taste...I had a lot of luck with adding cucumber slices to my water after my last treatment. It changed the taste just enough to make it drinkable, yay!