I will be seeing the breast surgeon soon - what to expect?

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bestauntever
bestauntever Member Posts: 10
edited August 2015 in Just Diagnosed

I still don't have all the info about my diagnosis yet, just know that the mammogram says 1.5 cm, the ultrasound says 1.1 cm, and the doctor says it's so small he can't feel it (am already getting pretty tired of people feeling my armpits.) I know it's IDC well differentiated and er+/pr+ (not sure if I got the abbreviations right, but I'm sure I will in time.) Still waiting on the hers2.

I expect to see the breast surgeon next week (the doctor is working on that for me), but what will she do? Does she order and MRI or other tests or do we just discuss what it is we're going to do in terms of surgery? I don't really want an MRI (more waiting.) I mean, we know it's there, just do something already.

So I just wondered what happens when you see the breast surgeon. Any info is appreciated. Thanks, ladies.

Comments

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited August 2015

    bestauntever, the BS will probably discuss surgery options with you, based on the size and location of the tumor, your family history, etc. She may or may not order more tests. I had a PEM scan with my BS. Not very many Dr's do it. It is similar to a mammo, but uses dye and is much more thorough. It checks lymph nodes also. If you haven't had a BRCA genetic test done, that may be ordered also. You will be poked, examined many more times, but it's all to get you the best outcome. The facility I go to is a multi-disciplinary group and they have a tumor board, so my BS was able to discuss treatment options with other Dr's. You will have many decisions before you are done, but gather as much info as you can and get second opinions if you need to. Keep copies of your medical records as you go. Good luck!

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited August 2015

    hi bestauntever

    I just had my app with the breast surgeon this morning, however I am in Canada, things may be different. The doc basically explained my options (lumpectomy or mastectomy) including the fact that i will need axilliary dissection also with either of those. That was about it. I will find out later this week my surgery date. Hope that helped!

    Kim

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited August 2015

    My BS discussed surgery options, as Keepthefaith mentioned. She ended up contacting my rheumatologist directly to ask him about the possibility of radiation because we discussed that I have connective tissue disease (Lupus-like) that could cause problems with radiation. She gave me a copy of the pathology report and went over it with me in detail. She ordered an MRI to check the rest of the affected breast as well as the opposite breast and to get a look at lymph nodes if possible. (The MRI is how we found the right-side tumor.) She gave me contact info for oncologists so I could set up an appointment. She also ordered a gene test for me and even filled out the paperwork for it herself.

  • bestauntever
    bestauntever Member Posts: 10
    edited August 2015

    Ah. Okay. I guess nothing is very easy when it comes to this stuff. So I may end up with an MRI and I guess I just want it out of there. Now. Like everyone seems to say - it's all about waiting and seeing. I see that some people see the breast surgeon first and the onco second, but here, they do it the other way.

  • 2008andbeyond
    2008andbeyond Member Posts: 3
    edited August 2015

    I'm so glad you are able to post questions on this site. You have enough information to HAVE good questions. My best advice: you'll be seeing so many Dr's. Get your notebook out. It gets very confusing with many to consult.

    Don't let one medical professional tell you something you don't understand. When you get home and let it all sink in call the office later to verify what is not clear.

    Regarding the MRI: mine showed my right breast with the tumor and the left breast clear. Bad margins on lumpectomy gave me option for another one with rads to follow. Because my Mother had IDC earlier and unhappy with radiation burns I opted for bilateral mastectomy with no rads.

    Lab results did find DCIS in my left breast post mastectomy. My gut feeling was just get them gone. It was right for me. Since that time 2 cousins and Mom's sister were diagnosed with breast cancer. Negative BRACA gene for me.

    MRI was useful but not conclusive. Follow your instincts and research your diagnosis. I was prepared at 51 to lessen my stress with bilateral mastectomy.

    You need to get Drs to coordinate their procedures based on what you intend to do. Any doctor that won't work with the group needs to go.

    Immediate reconstruction was done. Less that optimum results but I can deal with it. I am ready to deal with new PS and insurance challenges. (That is a whole other topic).

    Karen



  • shorty123
    shorty123 Member Posts: 14
    edited August 2015

    bestauntever..I'm like you,i just want this thing out of me.IDC in left breast 2 tumor 1.5cm and 0.8 mm.waiting to do MRI and ultrasound on Thursday.

  • Trvler
    Trvler Member Posts: 3,159
    edited August 2015

    I understand the desire to get it out quickly but in most cases you have a little time. I personally think the time is necessary to make the right decisions. Sometimes people want it out so quickly they go with the first doctor and make a decision that they later regret. I went to 4 BS's, 2 MO's, 2 PS's because I wasn't comfortable yet and found a team I am comfortable with.

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