B9 results but a lot happening

JMo33

I had a biopsy, surgical, that found ALH and it was removed. I had another spot removed close to chest wall--second surgery and this was all the stuff below. Follow up nov.
It's just a lot of findings is this norm?

B9 but
ALH, focal (not sure what focal means)
Multiple fibroadenomas
Fibroadenomatoid, change (rarer finding?)
Sclerosing adenisis
Fibrous tic changes, cystic apocrine metaplasia, micro cysts, dense strongly fibrosis

alicki

hi,

Focal at least here in Europe means a spot that is less than 5mm. More than 5 it's called a mass.

Aside the ALH I have the same b9 stuff as you do. And tubular adenosis which is extremely rare.

Mine was found after excision of fat necrosis further to 1st breast reduction.

Is it the norm? With fibrocystic breasts, you sometimes get busy breasts, and that seems to be the case!

You will be closely monitored by docs!

Good luck

Alicki

JMo33

thanks. Yup I go back late fall. I had so many mammograms this round I worry whTs the balance.

alicki

Hi,

Im froM Europe where there s a strict policy in the europan guildlines of no more Than one mammogram a year. But i believe that things are different in the US.

You could ask to include ultrasounds and MRIs but I don't know how insurance approval works in US.

I think being vigilant is a good thing. Knowing your breasts and advocating for yourself until you get the answers you deserve

I know ladies who have gone the mascetomy route with ALH /ADH on these boards but as I don't have the condition, at least I hope, I can't comment.

I have made up my find that if they did find any ADH in the future or ALH or DCIS or anything nastier, I would go the mascetomy route but that's just me. At the moment, I feel that Mx would be an overkill.

Best to you,

Alicki

Anonymous

JMo---I was diagnosed with LCIS 12 years ago ( a step further along the bc spectrum than ALH and double the risk) and my risk is further elevated by my mom's history of bc (ILC). Even with that combination, all 3 oncologists I've had over the years (and my gyn and pcp) feel BPMs are not medically necessary. I've been doing high risk surveillance of alternating mammos and MRIs every 6 months, breast exams on the opposite 6 months, I took tamoxifen for 5 years, and now I take evista for further preventative measures. Fortunately, I haven't required any further biopsies or lumpectomies in all these years since diagnosis, but I certainly would always revisit the option of BPMs if anything more serious were to be found. (all of the other conditions you listed are benign findings that seem to often occur together; (the ALH is the one that puts you at an increased risk. ) , I had most of them listed along with my LCIS diagnosis as well. ("busy breasts" as alicki said!) do you have any family history of bc in a primary relative? If so, you may want to consider preventative meds, like tamoxifen, and/or MRIs (if your insurance will cover them).

Anne

Ddw79

in a similar boat here . Last March they found ADH which may be more serious than ALH and Adenosing thing. I think that these things are often seen growing together . As a I can't take any drugs I am now on pmx watch. I just spoke to my MO today and before I do the drastic mastectomy route especially with all of my other illnesses, I have Just signed on for further genetic testing. I am true negative for family genetics of BRCA1 but if I find another genetic mutation I'm going to for mastectomy. Who knows, by the time the testing turns around I may just have cancer anyway

JMo33

tomoxifin was mentioned as a possibility at one point, I'm going back to GP in Aug to discuss. I'm not even sure I can take anything hormone based.

My aunt and grandmothers all had BC. I'm not sure if it was primary or secondary for aunt and one gma--they both had other cancers. My other gma was 90so they say it does not really count.