CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

WenchLori

Solo, awesome, please let us crazies know. No need for a like button, we are all here for you. A good idea to have your Dad with you during the phone call. I'm sending up prayers that all is well and the techs get the tongue lashing of their lives!!

🙏🙏🙏🙏

WenchLori

M0mmy, I love it!!

I think there's too many of us posting now. I keep getting an error notice lol

M0mmyof3

Me too.

CeliaC

Me three. However, seems like my responses are going in OK, inspite of the error message.

Lucy55

Me four !!

WenchLori

Great! I wonder how the changes in health care with the new bill going into place soon for all of us having pre-existing conditions?Will we be left out in the rain?😳

rainnyc

Solar Sister, hope you have talked to your doc by now.

Octo, gorgeous photo!

Lori, there is nothing that makes me crazier--including all the scans I've ever had--than insurance. My DH and I are self-employed, and I live in fear of losing our ACA insurance. I called our representative's office today, knowing he'd be voting against the bill, and had a nice chat with the woman who answered the phone (I've found that when one calls a pol, starting the conversation with "I have cancer, and I'm calling about health insurance" tends to get their attention.). But it all adds up to bupkis--and now to the whims of the senate. It is absolutely terrifying.

proudtospin

well just home pet scan

Not good junk has been found in spine and they want to do radiation, 2weeks daily

rainnyc

Oh, Iris! That stinks. Hugs and, well, more hugs. Do you have someone with you, a friend?

Where is the radiation facility--NJ or NYC?

M0mmyof3

That stinks Proud!!!!! Was so hoping that your results were good.

ChiSandy

That sucks, Iris. Hope the rads get it all.

Solar, inflammation can also “light up" on a nuclear bone scan—had one done 12 yrs ago when I had sudden hip problems and the X-ray showed the iliac crest had broken off and was floating free. I was too young (and still menstruating) for osteoporosis to have explained it. But then my ortho read my chart and saw one of his partners had harvested bone from my hip for an OR/IF for a shattered tibia 9 yrs earlier, which explained the spot on the scan in that exact spot (as well as the little spots on every toe I'd broken over the past few years).

On the outskirts of CrazyTown again—I've been working out for awhile, started swimming yesterday; but even though I no longer have meniscii or other cartilage in my knees because they've been replaced (and both of my cruciate ligaments “sacrificed” in each knee), my R knee suddenly started to give way this aft., with sharp pain. It's back to normal, but the inside anterior surface feels bruised. Probably an AI side effect—but what's left in that joint to injure or be inflamed? Medial collateral ligament? (not the patellar tendon, as that’s in the center). Have another personal training session tonight—will ask my trainer, who just recovered from his own knee meniscectomy.

queenmomcat

Solar: welcome. How did The Phone Call go? glad your dad could be there.

Rainny: I'll keep that in mind (Embarrassed to admit that not only do I live in Upton's jurisdiction....I voted for the redacted man.)

Proud: oh no! I'll be in the room with you, at least in spirit, for every treatment.

WenchLori

Iris, you've been through so much the past month, now this! I'll be in your pocket as well for all of your treatments. Prayers my dear friend 🙏🙏

Lucy55

Iris ..Oh , so sorry ..in your pocket every day for the radiation ..(( hugs ))

SolarSister

Hi all (queenmom, ChiSandy, WenchLori). I live in Stockholm, Sweden. Different time zones, the doc will call between 1 and 5 our time, witch would mean morning in the US.

Iris, I don't know your history but I'm sorry you're dealing with crap in your spine and radiation. So sorry.

I took a sleeping pill last night and slept like a baby. A baby with nightmares. Dreamt I lost my hair again. Woke up feeling so incredibly sad. It's such a beautiful day, this spring has been the coldest in years in Stockholm. After a long dark winter people are desperate for sun and warmth. And finally spring is really here. Cherry blossom outside our kitchen window, birds singing like crazy. Finally. And I'm just so exhausted from worrying and crying so much. Scared it'll be spring, summer, and I'll be sick. Something about the painful contrast between this incredible energy around me and the sticky fear of not getting to be part of it anymore. Being left behind and left out. I just want to be in this world!

WenchLori

Solo, I'm praying your scan will be clear of any signs of cancer.

🙏🙏🙏🙏🙏🙏😍😍😍😍😍

SolarSister

I was wrong, no mets at all. No mets omg. I'm so greatful, no words

RobinLK

Iris, not the news we were all praying for. Hugs to you. Thankful they already have a plan in place. Make room in that pocket!

Solar, awesome news! I completely understand that left behind feeling you described. Another BC sister stated she feels like she became ungrounded, like a helium balloon that has slipped through someone's fingers. Floating, detached from all that was happening around her. She moved across country to be closer to her sister and said she has not looked back. I am still searching. I hope you find your peace soon. If not, we are here for you.

My house search saga continues. It will all work out, it is just hectic.

proudtospin

thanks to all, trying to decide where to do rads, onco is up in hackensack, like 36miles but it is or rather was close to my office when i was working. Now my onco suggests i may want to think about somewhere closer. There is a new msk place only about 15 miles and easy to reach. Talking to onco today. Much to think,on

Yeah so canceled my get away to cape may, promised the place i would get there later

queenmomcat

Solar: how wonderful! As for the nightmares, i'm not surprised. I gather it's pretty common--certainly I had a firestorm of nightmares when I was first diagnosed, and then in the weeks leading up to my first post-treatment mammogram.

Proud: yeah, switching to a facility close to where you'll be now makes sense. You know what it's like in the middle of treatment! (Considered myself lucky that my treatment center could be the one within walking distance of my home.) Too bad about Cape May! When were you planning on going?

duckyb1

Proud......big prayers going out to you.....Cape May will miss you for now.....but looking forward to you coming soon.........My summer home was in Cape May Beach...I sold it in Feb. 2016........loved that house, but sometimes even good things must come to an end.......my husband and I went all the time when he was alive.....actually today would have been our 61st Anniversary.....miss his so much...gone way to soon.

M0mmyof3

Wonderul news Solar.

Proud, a closer facility makes loads of sense.

Lucy55

Solar ..Yay ! Great news !!!!

Iris ..Switching to the closer place sounds good to me ..As soon as this is over you can book that holiday again !

Ducky ...gorgeous photo ..yes he was gone way too soon ....

proudtospin

ok, all agree on closer place for rads, i had figured that if iwas really tired i could get my friendly limo man to drive but this place is a brand new site opened by mem sloan kettering and only 15 miles

Wow i am tired now just thinking of it and at the .am suresame time wondering how or why,this reoccured? I am sure the stress on my back junk did not help as i remember when i first started my Al, one of the recomendations was to reduce stress........

octogirl

Iris, as they say, stuff happens. I know it is easier said than done but please try not to stress about stress if you can. Anyway, I am so sorry the news isn't better and yeah, better get a bigger pocket!

Solar, welcome and yay that all is good with your scan.

thinking of you on your anniversary, ducky.

Sending love to all.

Octogirl

ChiSandy

Solar, hooray!!!

Ducky, what a lovely bride you were. Any time you lose the love of your life is too soon.

Iris, good call on choosing the closer facility, since you’ll probably be going there daily. Having had my treatment center a 15-20-min. drive away (6 mi., using surface streets) made a load of difference. Unfortunately, a patisserie and a great pie shop were en route home…

It’s useless to speculate about the cause of mets. It’s been postulated lately that we all have undiscovered micromets that traveled to our distant organs even before the diagnosis of our original tumors (some say before puberty or even in the womb, due to the repeated on-off gene-switching process by which ducts are formed!), which cells lie in wait for decades before they “wake up” and begin dividing. Sometimes, we die of other natural causes before that happens: these days, more and more Stage IV patients die “with” rather than “from” cancer, into old age.

WenchLori

Solo, great news! YAY!

Iris, you need to take care of you first of course. Having a radiation center closer to you is a very good thing. Cape May will be waiting patently for you.

Ducky, what a beautiful couple, just gorgeous! Happy Anniversary to you, I'm sure your DH is looking down on you from Heaven. He had gone way to soon.

proudtospin

well i could not get a call back from the close rad center so i have a meet with ro at the cancer center i have been using in hackensack which is further

But i am sure i can get a driver and it is only 2 weeks

Cape may gave me refund and wwill go when feeling stronger

M0mmyof3

Hugs to those who need one

Lucy55

Iris ..so sorry you couldn't get to the closer rad place ..but as you say it's only 2 weeks ..and time does pass quickly ..we will all be with you on those trips ..it'd be great if you do get a driver . Surely Cape will give you a refund ...

Going to our son's house today .They have 4 year old twin girls , and a 2 year old girl as well ..lots of fun and games for the day 😘