CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

GmaFoley

I still haven't made a mammo appointment

ChiSandy

Gma, 111? You must be on the desert, not the “wet,” side of the Cascades (or down Medford/Ashland way). Sending cooling thoughts your way: waterfalls...white water rapids...popsicles....mojitos....big pitchers of sweet tea...water slides...taking a swig straight from the garden hose...running around under the lawn sprinkler...frappuccinos...snowball fights...splashing in the town square fountain...

And don’t fear that mammogram. At worst it might hurt for a couple of minutes. At best it could save your life. I feared mine something awful, considering the seroma. But it was no worse than my pre-cancer mammos.

And it’s official: I go in this Tues. for my first Zometa infusion. (My MO’s office called today with the news that not only did my Humana Enhanced Part D plan refuse to cover Prolia, my BCBS Part B supplement insists it’s a “drug,” not a “treatment” and one of her patients just had BCBS’ Part D plan deny it too. Aetna, in light of the DOJ denial of its proposed merger with Humana, will likely start tightening the belt. Formularies are indeed shrinking). I have nothing else going on for the rest that week except for my hand-orthopod follow-up appt. for the next day--if I feel too lousy to drive I’ll just Uber it up to Skokie. Would have done it Monday, but I have Pearl Jam tix for that night--at Wrigley Field (which means a long slow slog to the nosebleed seats and a 2-hr. wait to get on to the CTA train home, probably standing all the way with a 4-block walk home from the station). My MO’s nurse said “let’s not ruin that concert for you.” Bummer is that I have to get another comprehensive metabolic blood panel first (apparently the one I had done Aug. 2 will have been too long ago), which means two vein stabs. (Maybe they’ll leave the IV catheter in after the blood draw). The nurse says not everyone gets flu symptoms and bone/muscle pain with Zometa, but it happens for only the first of the six semi-annual infusions.

GmaFoley

ChiSandy, LOL I'm in Roseburg, Oregon.. In the mountains. Heat is not good here in the forest.

And I am still hurting from 3 revisions/reconstruction. Just don't want to....

Di2012

25 miles S of Seattle.....this thermometer get heat reflection off Puget Sound....

really close to 90 on other thermometer

Valstim52

I thought NC was bad. I'm convinced we are hurling towards the sun!!!!

ChiSandy

Wow--in the 7 years I lived in Seattle (U. District), I can’t remember it ever getting much above 90! Our second anniversary (June 27, 1973) was spent in Roseburg & Ashland. Bob was in grad school at UW, having recently switched from recombinant yeast to mammalian genetics. We were down there to visit a rabbit breeder and bring back some ovule samples from female rabbits (various breeds). We took a side trip to the Shakespeare Festival in Ashland. We didn’t see any Shakespeare, because it was a weekday and we could only catch a matinee. Blessedly, the matinee (Strindberg’s “The Dance of Death”--ironic on a wedding anniversary) was not in the outdoor replica of the Globe but rather indoors in the modern air-conditioned theater. The temperature outside was 107. I remember drinking the “lithia” water from the public bubblers and thinking it tasted awful, but at least it was cool and wet. We picked up the samples from the breeder the next day and were devoutly grateful for dry ice and styrofoam coolers.

Di2012

Molly, no one has told me why I get UTIs......I just look forward to uninterupted sleep when I don't have one!

Maybe it is because I am old, no hormones, no uterus, ovaries, cervix ( or sex, thanks a lot cancer!!!!!!!) I never knew

Molly50

Di, I ask because between perimenopause, surgical menopause and now AI's I am a chronic UTI's sufferer. I managed to get them under control and thankfully only had one so far after starting anastrozole last October. I use a combination of vaginal moisturizers since my MO won't let me use estrogen cream. I also drink tons of water and gave up nearly all acidic foods and drinks. If you look up the IC diet you can find the list of food and drink to remove from your diet that can irritate your bladder. One of the biggest is coffee and tea. Also soda is very bad. Cranberries are out too. So between eliminating these items, water, vaginal moisturizers and never holding my pee I have managed to go months between UTI's. Hopefully something will work for you.

Di2012

I refused Hormonal therapy, since I already have osteoporosis.

After exchanging brand,size, implants that wanted residency UNDER my arms , my coffee habit was cured....surgery recovery was my cure, coffee & green tea went out the window. There is always at least 6 unopened bottles of water in my car at all times....I drink lots of water at home too. I do not drink alcohol, or milk. My vice is I allow myself 2 diet Cokes a day. Diet cranberry juice I always drink when I have a UTI. Thank you for the the info, I will certainly check it out!

My oncologist approved estrogen cream (Premarin)for Quality of Life, but had my primary doc prescribed it....2 tubes,2 months prep...for our "encounter of love" with my hubby, unfortunately we both got sick with brochitis after a month of prep, so I don't even know if it would work. He lso reccomended Replens to use also.

Molly, thanks again, I will check out the IC diet!

Di

Chevyboy

Morning gals! I KNOW I have run into a lot of you, through the years and "stuff" we go through, and just wanted to hang-out in your fun corner of the world...

Ducky is always hanging around SOMEwhere... and you were talking about Lymphedema??? I'm just assuming that is how to spell it, because this SITE isn't giving me any alternatives.... So, well, I have had it for over two years! I didn't get it after my BC surgery, but then after I fell and broke my femur/hip I got it BAD! My ankle, and lower leg on "that" side, started swelling, hurting, and feeling a large lump...

I know we hear "No needles, BP cuffs, no NOTHING on that side".... But I had so many needles, drains, screws, rods, and surgical cuts, I was just BOUND to get it. Yes.... anytime our nodes are fooled around with, they just lay in wait for more stuff to terrorize!

After asking I don't know how many Doc's, I kept hearing, "well, yes, that is possible"... So I took matters into my own hands & started wearing those expensive compression stockings... on both legs... And also sitting down at night, with my leg on a stool, and "massaging" my one leg UP from my ankle... Not hard... like ChiSandy says... just a slow rubbing in an upward motion from my ankle to my knee, on the side of my leg. I wear my stockings night and day... for two days, then shower & put on clean ones... SOMEtimes my ankle would get so swollen without the stockings, I would look and think "WTH"???

So I just know I have to wear them... Not on my right leg, but it would look pretty stupid without one, so both legs get the stockings. And so that's all I know....

Ducky, you been stayin' out of trouble? Probably not, but that's good! Take good care gals.......

proudtospin

Morning all, heat wave seems to have eased, enough so that my cars tire pressure light came on. Think it needs checking but tires look fine

Relaxing, expect phone calls from docs but just to be sure reports are on their way to correct docs, the pits

GmaFoley

I know its not a good picture but that was the temp yesterday from my kitchen window with a shaded overhang area. A few hours later it was 116!

proudtospin

keep that heat out on your coast for now, sorry anyone has it though

Molly50

whoa, that's hot!

GmaFoley

Here are a few pictures to make you Breathe and Smile today - Same bird. The red only shows up when she is drinking.

proudtospin

Lovely but you do take good pics

ChiSandy

OMG!!! We’re gonna barely hit 85 today. (“Cooler by the lake” has crept back into the forecasts). 70s from tomorrow onward. Had to duck out the kitchen door barefoot in my nightie and sidestep a puddle on the deck to rescue a couple more green tomatoes from impending doom at the hands of squirrels. Down to four left on the vines on the deck, and maybe a teeny one or two and a couple of blossoms on the ones we moved down to the garden, away from anything the critters can use as a launch pad. We may just make it past Labor Day without having to start buying tomatoes again. Might plant some of the seeds in the pots of the spent plants (rather than scraping them off the cutting board & into the compost pail) and see what happens. A few years back, a NW Side landfill began producing wild tomatoes.....from the, uh, “nightsoil” in the treated waste that had been dumped on it. Wonder whether they were safe to eat?

Chevyboy

For me and ducky....

Love those pictures Grammie!

proudtospin

can I Join? Looks like a blast

Chevyboy

Proudly! Oh wait till Ducky sees that picture I posted! I just tease her because I can... I don't think she still even talks about the airline pilot & her ummm... "association" with said pilot.

I'm kinda "new" here too... but like you, we've been around awhile...AND it's only 52 degrees here! Probably start snowing any minute.....

duckyb1

Chevy...................hey girlfriend.............so happy to see you here........you don 't come around enough.......Oh yea we go back for a few years......such good times, so much fun........and oh the needling.........LOL...........


I have been down the shore....more now then I ever was, other then when my husband was alive and we went together........getting treated Royal, and getting "fatter"........I will need a very serious eating plan once this season is over........we have a few more '" seasonal weeks", but then the daughter who has the home in Margate will stay open all year.....she eventually plans to sell her home in Pa. and move to this new home she bought this year.......so it will be an "anytime" deal down that house.........my son will close up his, and my grandaughter will close her's too........

I know I have been scarce here lately, but I think about you ladies all the time.....

We have a wedding coming up in sept........my grandson is getting married......

Hugs to all the ladies here........

duckyb1

Chevy.......my pilot says "HI".........

proudtospin

ducky, so glad that you are able to enjoy the shore, i know how you felt giving up your own place but this seems to working out well for you

Daczahow

My MO sent me for an MRI on my left shoulder last week. I have been having intense pain especially at night. The MRI report states that the humerus scapula and clavicle bone show some infiltration that is consistent with metastasis. I went for a pet scan/ct which showed no uptake on or around that area. I am so confused !! My MO has ordered a bone scan just to verify! Has anyone had a negative pet scan yet something shows up on the MRI ? I am waiting for the bone scan to be scheduled. A little bit of history I went through my initial treatment for IDC in April 2015 only to have a reoccurrence in my supraclavicular lymph node's (just at the collarbone) in April 2016. I have since completed AC and I'm preparing for 12 weeks of taxol. Any insight would be great!!!!

Tomboy

Daczahow, since you have purple hair, I will respond! I am so glad you found us, but it's messed up that you already had a recurrence, ick. Since there wasn't uptake, it could just be inflammation, maybe from arthritis, which sometimes chemo can seem to exacerbate. It's also just that MRI's show EVERYTHING, with out being exactly specific. I often wonder myself is different imaging modalities just reveal different things, and that maybe they should be a little more careful in the decision of which one to do? They for sure didn't see any nodes above your clavicle BEFORE your re-occurance?? Yikes! I hope for sure the bone scan finds absolutely nothing out of the ordinary, and that every thing is in the right place! Sorry for the worry, and I do hope you stick around BCO, and this great group of ladies. I have lavender in my hair right now too, and some green.

Hi ChiSandy, thats so great- - home grown tomatoes. Now you've got me wondering about the nightsoil nightshades!

Ducky-- big strong hug for you, and another one.

Thinking about every crazy who was ever here, who will be here, and who ever just reads up

proudtospin

dac..I have been having mris recently for a back issue, they are used lots these days but at times can give false positives so try to relax until you have a talk with your docs

Molly50

Welcome dac. I hope your bone scan is negative. Let us know when it's scheduled and we will have a pocket party for you. Tomboy, I would love to see your hair! I was thinking we should make a trip down to visit Beppy. I go back to work tomorrow but maybe we can work something out with her and PoppyK.

Love to all of the crazies.

Tomboy

I would love that Molly. I am always hesitant to drive long distances, because some of the meds I take, makes driving very hypnotic to me, I have to be really careful. I just skip doses, and hope for the best. But, company in the car helps, or I phone from the car. I am sitting here with purple paint on my hair, waiting a little while longer. When it fades, it fades to green, which is alright, but I like the lavender better. I had found these great tubes of color, no mixing required.

Beppy sends her love to all of you

I really would like that Molly. We can take pictures or a little film, maybe, if it's okay with her, to share with everyone here. I will have to look back and see if Poppy's not in Utah.

queenmomcat

(shyly) Yes, please: a movie (if permissible) would be lovely, or even just pictures.

ChiSandy

Tomboy, there’s an Aussie hair care product company called Kevin Murphy that makes “hair chalk” balls that have little holders to keep your hands clean. They come in several colors (two of them glow-in-the-dark) as well as silver & gold. And they are sweat-resistant but do shampoo out.