CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

ChiSandy

Poppy, sorry about your ankle? But only 3 weeks non-weightbearing? That joint takes the brunt of the weight of that entire side of your body. My ex-singing partner broke hers, and was not allowed to bear weight on it for 10 weeks! Maybe it’ll be 3 days of bed-or-chair rest, followed by either crutches, a non-wheeled walker, or (as my friend used) a knee scooter. Let that bone knit!

Ducky, I hear you. If a space alien were to land on Earth and watch a day of TV, it would conclude that we Americans all desperately need new luxury cars, harangue our doctors to prescribe stuff for diseases we didn’t know we had, and have cancer. Here in Chicago it’s as if we’re watching a playground fight: “Our oncologists can beat up your oncologists."

rleepac

I don't have TV so I don't even know if it's like that here but I do see big freeway billboards for hospitals and cancer centers. They don't seem overly focused on cancer though...I see them for Ortho, cardiac, and diabetes just as much as cancer.

I had blood drawn today to check for rheumatoid arthritis and lupus and I'll see my MO next Tue. He insisted on seeing me before he would give a referral to the rheumatologist. I'm ok with that...at least he didn't blow me off. I'll have the lab results before I see him though so I will at least have an idea of where I'm headed. I have 2 MOs (one local and one at UCSF) and this one at UCSF I haven't seen in bout 6 months so I'm not surprised he wanted a visit first. I was due to see him in June so I just bumped it up to address this pain.

Just realized I'm rambling...I guess that's all for now...

duckyb1

Molly........so sorry about Wyatt that he had episodes.......prayers for him....he is such a sweetheart.......hugs to you......

Anonymous

rleepac, rambling is very acceptable in Crazy Town!! In fact, it's encouraged. It's good to get it all out here because we can all understand.

You asked a question awhile back about RA. I had RA long before I was diagnosed with BC, but after treatment, my Rheumatologist also diagnosed me with chemo induced Fibromyalgia. I've done a lot of reading on this subject and it seems many are diagnosed with autoimmune diseases after treatment. I hope that isn't the case for you. We will all be in your pocket for your appointment. Gentle hugs to you.

GmaFoley

I sure wish I had the energy of these little guys. Having fun learning how to take pictures of them.

Jackbirdie

GmaFoley- you have talent! Those little buggers are hard to catch! I just love hummingbirds. I just moved one of my feeders to my front deck where I could see it during the day. I have a juvenile male customer coming every afternoon. He is the smallest I've ever seen but has a lot of color. I thought about trying to photo but they are fast and suspicious! Thanks for sharing.

GmaFoley

I have a ruby red throat that is very hard to catch. We also have an anna which is the one above.. I take these pictures from my home office window. Problem is when I move forward to reach for my camera, the little buggers zoom away. It is a chore to get them but sometimes they aren't. Here is the one that I only get once in a while he is too fast.

BTW Slow and any others that is wondering - Still waiting for the insurance to approve my revision. Haven't heard anything yet.

Jackbirdie

Gma- you describe exactly what happens to me. I think my little guy is an Anna's too. I see we are both in Oregon. So maybe they are cousins! Good luck with the ins approvals

Molly50

Nicepics, Gma.

GmaFoley

Ladies I"m fighting a headache and trying to do my computer work... 2 hours to go.. I hate days like today - I just want to get things scheduled and move on with my life. It just never seems to happen... I thought I was doing good avoiding chemo and not being about to take AIs. It seems things just find me anyway. Am I a magnet to trouble? Starting to think so.. sorry ladies - just venting...

lcm123

Hi everyone. Happy Cinco de Mayo. We went to Mexico when I was twelve years old, and I loved it. I probably went around with my mouth hanging open a good part of the time. I can still see it in my mind. I had some of the best food ever there.

Gma, love your bird pictures. My son is like his Grandma, into photography. I want to get back into it, but I need a good little camera. We have hung up suet feeders and hummingbird feeders everywhere, so I should be able to get some good pictures. I especially want to get one of this huge woodpecker that eats at the suet feeders. I feel for ya with the headache. I have one, too, and it isn't all because my husband is home sick, and won't do as I tell him. I may make him let me take him to doc in a box later, if I think he seems worse. So, feeding him full of hot tea and chicken soup. And cheese toast. Hope your headache stops soon. And, I hope your ins. gets on the stick about approval.

Beppy, thanks for the group hug. I hope you feel well today.

Ducky, I know what you mean about the cancer commercials. Cancer Treatments Centers has them on a lot. I feel guilty muting the tv, and especially when St. Judes does theirs. I guess I feel bad because I am, thank God, doing well, and so many others are not. Like my friend.

I don't know if I said that I saw my PS yesterday for my followup, because I am partially crazy, but it all looks good, except for the conversion of incision on the lollipop incision. Or whatever. It is a little icky looking, but polysporin should make it stop, so my breast guts don't come out. I see him in June again, and he said we shall see from there, and that I am driving that train. Yay! I always wanted to do that.

My husband is in there watching Dirty Harry marathon on AMC. He is the sick one, and I need the nap.

Have a lovely rest of the day, y'all,

Lisa

rleepac

Slow...thanks for sharing your story. I'm staring to think it might be chemo induced fibromyalgia but I just HATE, HATE, HATE the thought of that diagnosis so I don't want to go there.

Most of my labs are back and the only thing abnormal so far is my liver 😳. Probably from all the pain meds I've been taking but it's my ALT, AST, and Alk Phos (all 2-3 x above the high end of normal). I don't drink and I'm sure I don't have hepatitis so it's either from meds or mets - I vote for meds. But the inflammatory markers are all really low which surprises me. My pain sure feels inflammatory but I guess it's not.

Note to self...stop being a PA, just be a patient and let my medical team do their job to figure it out

Jackbirdie

Bekah- I may have mentioned this here before, but my liver enzymes were all within normal range during and immediately after chemo. The only thing that changed is I started Tamoxifen and my numbers quintupled in 4-5 months. After stopping it, my numbers have been declining slowly. Longer than the half life of Tamoxifen, but it seem to be the only explanation. A liver US showed nothing but a little fatty liver. I'm on an AI now. The liver is better, the hot flashes are much much better, the joint pain is worse, a lot worse, and my mood is much improved

These are such powerful drugs. They affect everyone so differently. They both suck but overall for me I seem to tolerate the AI better. But I know many people have the opposite experience. I really hope you don't have any immune issues and that your pain resolves or becomes tolerable very soon. Hugs.

ChiSandy

Well, another SE of Ais has hit me: woke up yesterday with trigger thumb, this time on my R (dominant, guitar-picking, LE) hand. I had it on my L a few years ago so it might be a coincidence, but it’s a reminder that no matter how mild or early, bc is the gift that keeps on giving. It’s not affecting my playing--I don’t bend the distal thumb joint (knuckle) when playing, and a few minutes of fingerpicking practice makes it go away. I’ll be okay all through May--will see my LE therapist and perhaps a hand surgeon when I get back because then I’d have a few weeks to recuperate from surgery (the cortisone shot’s downtime is only a few days). I’ve been assured that the shot shouldn’t lead to a major flareup so long as I wash with Hibiclens and use compression for a day or two; but for the surgery I’d need a surgeon who knows to minimize tourniquet time and have an LE therapist standing by to immediately wrap me--so I wouldn’t be using the guy down in Oak Lawn (though he did a good job on my L thumb, I’d rather have a team up at Evanston Hospital, since most doctors know squat about LE).

Anonymous

Good afternoon crazies!!

GMA, The hummingbird pictures are amazing. The insurance companies sure take their sweet time. I hope you get your approval soon. Vent away....you've certainly been through your fair share of troubles. I hope it all turns around for you soon. Gentle hugs to you!

lcm, Happy Cinco de Mayo Day to you too!! Thank you for your good wishes. I'm happy to hear your follow up went well. I hope your incision looks better at your next check up.

rleepac, I have my doubts on whether I have chemo induced Fibro. I'm starting to wonder if they just give that diagnosis for unexplained pain. She prescribed Cymbalta, which I filled but never took. I hope they get yours figured out.

Sandy, Good grief....I hope that trigger thumb gets better with the shot.

Speaking of Cinco de Mayo, I was eleven in this picture (1974). I'm the dorky girl on the donkey. haha

That's my dad, mom, sister and BIL in the back. Time sure does fly.

Love to all...quiet crazies too!!

Anonymous

Oppps. Forgot to post this article. Interesting reading.

http://linkis.com/www.curetoday.com/co/0bvtt

Molly50

OMG, Beppy I love that photo! I think every kid needs a picture like that. Brings back so many memories. I never would have guessed from seeing you that you are so close to my age. You look at least 10 years younger. Okay back to work, off to the lab for blood draw before seeing MO next week and then zzzzzzzzzzzz for a nap. I have been up for work since 3:30 am

Anonymous

Oh Molly, no wonder I love you!! hahahahaha I feel like I resemble a 100 yr old woman, but thank you for the compliment. Truth be told, you look way younger than me!! In your pocket for the blood draw!!

Lucy55

BaHaHa..love the photo Twinnie 😃

GMA.. Great photos..!! I hope you headache is gone.

Sandy.. Sorry to hear about your trigger finger 😞 Seems like if it's not one thing its another with us now :-(

Molly.. Thinking of you with your blood test..

Lucy55

My early morning walk..my secluded beach.. not a footprint on it 😘😃

proudtospin

lucy , love your beach, gee maybe I need to take a coastal visit but weather here is not very beach friendly

eggroll

Slowdeepbreaths, I was looking for myself in that picture... posed with that zebra or one just like it around the same time.

Just got back from a month in a tropical location where I fell in love with snorkeling. Having terrible withdrawals, I just want to float around with the fish all day.

My 3month checkup with the oncologist is tomorrow. I have no idea what to expect... but I bet he's going to ask how I'm feeling and do I have any questions, and then send me on my way. When you're Stage 1, Grade 1, it's all about what the insurance will cover I think... man I'm cynical, aren't I!

Jackbirdie

Eggroll- nice to 👀 You!

Lucy- 🙋Nice beach!!!

JAN69

My US results showed nothing interesting. My sister is recovering well from her lung surgery, but no path results yet. Thanks for the many good wishes. As promised, I'm running away today. Just too tired and frustrated with MO to cope with conversation. Looking for a rock under which to hide. BBL. Jan

Molly50

Jan, glad the US was boring. I am glad your sister is recovering well. I hope her path report is encouraging. What's the deal with MO's. I have never been thrilled with mine either. My surgeon on the other hand is awesome. Lucy, wow!!!!

lcm123

Aww, Beppy, not dorky at all. Just sweet as can be, and cute family picture. Was it a thing in the seventies to go to Mexico? That's when we went, too. In 1971, I think.

Yay, Jan's US for being uninteresting. Praying for your sis.

Beautiful peaceful beach, Lucy. Lucky you.

Eggroll, I wish you well on your MO visit tomorrow.

Jan and Molly, I hate y'all are having MO issues. Come down here and visit mine. I don't think I could have been more blessed to get him. He even hugs his patients, and blows kisses.

Lisa

rleepac

My sister came to visit me today!

She only lives 45 minutes away but her job keeps her very busy and we don't get to see each other all that often. She just came down for the day and we did some shopping and a lot of visiting. I gave her an allergy shot and she brought me this cute little apron with a big pocket in the front to collect eggs with. It was a good day but I'm exhausted!

Bekah

duckyb1

Ladies wanted to share this with all of you.....my grandson makes these crates......it is all done by hand, and he does a tbeauiful....job.........he does it for baby shower gifts, birthday gifts, anything you want.....even has done it to hold the dogs toys.....he is so clever and does fantastic work.....he is 17.......

duckyb1

This is Bobby's toy and book holder.

duckyb1

This one holds my ;daughters yarn.