CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

Anonymous

Ducky, Sometimes I will put on the music and dance like crazy. I always pay for it later, but it feels so good at the time. Like eating a whole chocolate cake. haha Not that I've ever done that.

I've got a lot of missing socks. I can make a lot of sock puppets with their mates. Octo, this sock puppet made me think of YOU. So cute!!

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rwiley, That is awesome news!!! Happy dance for you!! This is one of my favorites!!

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Rain, I used to sweat so much when I was going through chemo. Just on my head. It was really weird. My wig was always slipping sideways. haha I got so tired of that thing I finally just stopped wearing it. Like Octo, I NEVER thought my hair would grow back.

No worries Bcky, I often miss things.

Anonymous

Ducky, Those things they take off the face are scary. You wouldn't think a little thing like that would be such a big deal...but it really is. I hope all is well with your son. Your outing sounds like so much fun!!

Anonymous

Robin, Ginger Peach Green tea sounds yummy!! Will you share through the tube???

octogirl

oh SDB....I LOVE those sock puppets!!!

Octogirl

DecisionFreak

Yes, I know about sock puppets, Tomboy. They are commonly made at home as a craft.

DecisionFreak

Editing this post. I think it was shorfi not slow that joked about the chocolate cake

Anybody here gotta problem with someone that eats a whole chocolate cake at one sitting?

Cubbie2015

Isn't Wellbutrin OK if you are on an AI, though? I thought just Tamoxifen had all these interactions.

Ramona, glad to hear the good news.

Ducky, the farmer's market sounds like fun. You'll have to report back on what you see there.

Beppy, I love the sock puppets. I've never seen ones that cute.

Bcky

TomBoy no it was my bestie Gina that passed away a few weeks after I found out I had breast cancer. My brains are swishy tonight. I was like what pic is that? I had to go back a few pages and look. I thought maybe it was someone else's posted pic.

QueenMomCat Thanks! How embaressing.

I would say I am "Alzhiemerish" tonight. LOL but kinda not funny.

duckyb1

Slow....................I always say "why can't the damn aches and pains hit us when we do our first crazy dance step...........we think........"HEY I'M COOL, I CAN DO THIS"................so you keep going and going like the energizer bunny, and when it's time to end the night all of a sudden you can't walk........or even crawl for that matter............then you get into bed, and everything hurts.........so bad......you can't sleep.........LOL......and you think "why the hell did I do that".......you can't ;turn over......you can't get comfortable.......and Heaven help you if you try to get out of bed to pee..............but you have to because all that dancing made you drink a lot more of whatever you were drinking.......so of course you pee more........LOL.....then for 3 days it takes you forever just to get out of a chair.....and your so tired from not sleeping because of the pain you can't function................

OK YOU DANCING QUEENS.......DID I GET IT RIGHT.......................LOL.........BUT WTF.........WASN'T IT ALL WORTH IT................HAHAHAHAHAHAHAHAHA

Tomboy

huh, I went back to look, you deleted your friend, bcky?

Molly50

Hi ladies, may I join you? I've been reading on and off but after yesterday and my afternoon of fatalistic thinking I believe I qualify as crazy.

queenmomcat

The informal welcome for MollY: Yes, please do join us! (not that I'm calling you crazy. Well, not in a meangirl way.) I'm sure our Mayor SlowDeepBreaths will be along shortly with the official welcome basket, but I just wanted to say hi.

octogirl

Molly, it is so nice to see you here! As official Crazy Town bouncer, I can vouch that you belong here. Pull up a chair and join us on the CT porch. Our Mayor will be along with an official welcome soon. (and don't worry, I don't bounce Crazies. My job is to bounce others who aren't nice to Crazies...)

Octogirl

rainnyc

Rads can make anyone crazy. Though some of us were crazy well before rads (or BC). Welcome!

octogirl

Rant of the day: So...rads finishes today. And I was instructed by my MO to start my AI rx as soon as I am done with rads. That would be tomorrow. And yet, I haven't even picked up the rx. I keep procrastinating. Part of it is just that I've been busy, but a big part of me is really, really worried that the SEs will be too much for me. My arthritis is already bad and getting worse and I haven't started the Arimidex yet. And then I see the experiences others have had.....and I don't even know how bad my co-pay will be. But then there is the big one: just when my hair MAY (Shhhh......don't tell anyone, I don't want to jinx it....) be starting to make an appearance, will it slow it down again? Or stop it?

Going to the pharmacy tomorrow is going to be damned hard. Any words of advice or support would be appreciated. Maybe I should just dance down the aisles...what do you think, ducky? and cubbie: there is a part of me that wishes rads wasn't done yet, for just this reason. Ok, that *is* crazy.

DF: I'd say eat that chocolate cake.

Hugs to all;

Octogirl

Molly50

Thank you for the welcome. I love seeing familiar faces! Octogirl, have you popped over to the Arimidex thread? Lots of great information there. I already had joint pain in my right knee when I started anastrozole. It's not any worse just a bit stiff all over until I get moving. I have had some gastric issues but it could be rads.

queenmomcat

Molly: not on Arimidex, but starting the tamox. had me teetering on the edge of CrazyTown again, and that's a much milder set of possible SEs. I just figured "I can stop the bleep stuff if I truly can't tolerate the side effects."

rainnyc

Octo: Nah. Not crazy. So yeah, congratulations on finishing rads! That's not crazy. That's great!

Pick up the prescription. Sit on it for a few days until you are absolutely sure that the stuff growing up on your head is hair. Then next week, why not call the MO's office and talk about the arthritis. And, for that matter, the hair.

I always feel, reading these boards and especially this one, that we don't bother our doctors enough. I mean, we take the drippings of info they give us like offerings from the gods and don't question them or ask for more. Side effects matter-- we should all be asking more questions!

duckyb1

Octo......sent you a PM about starting the AI..............hope it helps.....but my best advice...........you have to at least start it, 'and give it a chance..........you always have the option to stop...........just don't not try.................

You may be one of the lucky ones who get none or few SE's.......I was not......but I still tried.........that was th adivce I got almost 5 years ago fro my wonderful ladies..........and I listened ..................

You at least have to try...................good luc

DecisionFreak

Hey crazies, Molly joined us on our launch of Chilling Out yesterday! Welcome to Crazy Town, Molly! The mayor will be around at point to welcome you, Molly. You have come to the right place. Nobody will judge you. Crazy Town is a place where you can let your hair hang down. Those who are waiting for their hair to grow back, no offense.

shorfi

DF..."eat the cake Anna Mae"...from the movie...What's Love Got to do With It...Angela Bassett and Laurence Fishburne.

Octogirl...My humble opinion...give it a chance. I did and for ME...it was a crazy journey...but I'm here to talk about it

DecisionFreak

ducky, I think that if we are still able to ambulate (walk) that we should take every opportunity possible to celebrate life. I haven't danced in forever but I was tempted to buy a set of Hip Hop exercise tapes on discount the other day, lol.


Joints and muscles and tendons may hurt after a night of dancing, but it is good to have some joy along with this crappy heap of anxiety and pain over bc treatment. Life is short. Dancing is fun and therapeutic. Do you remember that pop song, ducky called "Dancing in the Streets?"


I dance in the house sometimes.

shorfi

Molly...welcome and it's a pleasure to meet you and have you here!!!

DecisionFreak

shorfi, great line! Thanks for dropping by Chilling Out. At present, we are drooling over Colin Firth and Clive Owen. Hope to see you there again.

JerseyGirl22

Ok, I'm not done treatment yet, but I'm joining CRAZY TOWN!!!! DX was June 2014, Chemo finished 11/15, BMX 11/30/15, rads start Jan 18th for 6 weeks, recovering and doing Herceptin only until summer, then tamoxifen or whatever they'll give me. BS said, "chemo worked, hormonal drugs worked, and we got all of the ick out of you, you're cancer free, just finish treament..." Ok, that's all good, right!? Right?

Enter Dec 21st and meeting with MO... she says, all that is correct, but we need to remember I had 5 positive nodes (more scar tissue than cancer)... so maybe some more chemo or chemo pills. I declined (chemo tore me up really bad) and she said fine, I have no problem with the original plan.... She didn't push anything else with additional chemo, says it's just an option when more than 4 nodes are positive. SO I left feeling conflicted and off kilter... I should be feeling good that things are going well, the ick is out of me, and I just need to keep on track to finish treatment. Right?!?

How come I keep having massive anxiety attacks over this!?! I'm not sleeping, anxiety attacks hit out of nowhere and I just can't shake it. I guess i feel like she had to give me the "additional chemo" option, as part of the protocol to cover the cancer centers' butt, but it just made me feel like a wet noodle. Until then, I was able to be pretty positive and forward thinking about this whole BC crap. Now, I have days I just want to take an Ativan and curl up in a ball... That's not me!

Sorry for the rant, but I just need to be out here! I keep hearing my grandfather's words in my head, when life would get crazy... "Welcome, welcome friends to the show that never ends, we're so glad you came along, step inside, step inside!" I can hear the circus music and smell the popcorn...

Jackbirdie

Jersey and Molly- a big warm welcome!!!

Octo- 🎉🎉🎉🎉🎉🎉🎈💗🙋💗💃🏿💃🏿💃🏿💃🏿💃🏿💃🏿💃🏿 Congratulations on your last rads today! So happy for you.

grandma3X

Yay JerseyGirl! I have not even started treatments yet, but enjoyed a warm welcome from the citizens of CT I'm sure you will get the same. I'm sorry you are having anxiety - you helped me immensely when I was first diagnosed and I wish I could do the same for you. I think rainnyc said it well - that we don't bother the doctors enough. If you are still on the fence about another round of chemo, maybe ask your MO what benefit you would get from a second round that was not there from the first round? Perhaps it was offered only so that they could "check the box" but the actual benefit may not be worth the risks.

Best wishes - Warrior on!

DecisionFreak

okay so I happen to love chocolate cake, but I was pulling shorfi's leg. I have cut the sweets down to nearly nothing since I got back on November 13 after meeting with the cancer care team. I don't know how much hard evidence exists about the harm inflicted from chocolate cake, but I do know a diet rich in vegetables and a little fruit is a good thing.

Molly50

JerseyGirl, you could always get another opinion on the more chemo thing. Personally, I think QOL is very important. I have to guess based on the posts here that I am not the only (normally positive person) who gets those fatalistic thoughts and some days am too tired not to run with them. I try not to say them out loud because saying them out loud either makes them true or deems you a nutter.

DecisionFreak

Molly, you can say what you think. Nobody will call you a nutter. If they do, we have a bouncer.