after 6 1/2 years-- I'm off Aromasin

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Christine2000
Christine2000 Member Posts: 176
edited August 2015 in Stage III Breast Cancer

I had LVNT surgery in June (another story--another forum!) and as a result went off Aromasin for almost a month. I dropped 5 pounds without doing a thing, started sleeping 100x times better and my partner swears my mood swings disappeared. I went back on after the surgery but I saw my oncologist today and she said I should go off it at least for the summer. Wondering about other people's experiences!

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  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020

    .

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  • jenni__ca
    jenni__ca Member Posts: 461
    edited July 2015

    my meeting with onc is this week to see if 10 years will be my max .... or if i will be on arimidex for longer ...

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  • Christine2000
    Christine2000 Member Posts: 176
    edited July 2015

    My Dr said that it is very dependent on the type of cancer that you have (how hormone driven etc.) that determines how effective hormone therapy will be. In my case, I also had a complete pathological response to chemo and I have had my ovaries removed. She feels that 6 and a half years MAY be enough but during my 3 month break she is investigating other "lighter" medications. Aromasin has (like for many of you) caused me to put on weight and made it very tough to take off. My onc also wants to give me a chance to get in shape and lose some of the weight.

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  • jenni__ca
    jenni__ca Member Posts: 461
    edited July 2015

    oh definitely ! so many factors involved .... i was 98% ER+ ....

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  • YATCOMW
    YATCOMW Member Posts: 664
    edited July 2015

    I am still on as well.....but I was 100% ER and 98% PR.....and 17 nodes positive....

    I am over 10 years on it....

    And yes.... I have gained weight and face more wrinkled....but I am still here:)

    Jacqueline

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  • clariceak
    clariceak Member Posts: 752
    edited July 2015

    Good for you! How wonderful to lose weight and feel better immediately.

    I'm the worst case scenario for Stage III, so my onc says I'll be on Femera indefinitely. I think she is a bit surprised I'm still around. I gained weight and have fatigue, but all that is ok since it seems to be working.

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  • jenni__ca
    jenni__ca Member Posts: 461
    edited July 2015

    well onc took me off arimidex (after 10 years) ... so far three days (hey but who is counting ????)

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  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2015

    I can't wait to be done.

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  • sugarplum
    sugarplum Member Posts: 318
    edited July 2015

    I'm being told I need to stop Arimidex after almost 9 years on it as I'm nearing osteoporisis in my spine (in spite of annual Reclast infusions). I'm stalling unitl my next DEXA scan in  December because I'm afraid to switch to Tamoxifen like they want me to. At least I can cope with the Arimidex side effects (stiff joints, etc) but Tamoxifen is unknown territory for me which is a scary thing.

    Will be interested to read other's posts about this...

    Julie 

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  • ck55
    ck55 Member Posts: 346
    edited July 2015

    Sugarplum, I switched from Femara to Tamoxifen at 5 years and feel so much better! No more aching feet in the morning or stiff joints all the time. So don't be afraid of Tamoxifen, you just might like it.

    Cyndi

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  • Annette_U
    Annette_U Member Posts: 111
    edited August 2015

    Sugarplum - I only have major hot flashes on Tamoxifen. A little joint pain but could be from something else. Don't worry except for the flashes . Hope you have moved past those but not sure Tamoxifen still produces them after 5 years of an inhibitor.

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