Liver mets: resection, ablation, SBRT, Y-90, anything else?

Melle83

I live in Idaho but only mins from Oregon. So Boise is where I would go to talk to a NP for Y90. I would have to travel to Utah to get my seconds opinion. Anything you ladies can help me with would be truly appreciated.

Grannax2

I am fortunate to have my interventional radiologist (IR) here in Dallas. He's one of the best in the state. First research IR in Boise, find one that has the most experience in Y90. My doc uses SIR Sheres Microsheres. You can research about who uses this type of product in your area. The procedure is called Radioembolization.

I wish I knew more to tell you. I do know the IR will want your most recent scans. He will also want your labs. He will determine if you are a candidate for y90 by checking all these images and values.

Let us know what you find out.

Grannax2

My BFF Laura, my daughter, me and daughter’s BFF Dawn waiting for the runway show to begin

Grannax2

Another favorite moment Italian Restaurant called Lattanzi’s owners are related to my SIL They treated us with ch

Grannax2

Laura and I got to see Phantom of the Opera Ama

KPW3

Grannax, What a great experience!

Grannax2

My favorite NYC tourist pic

Bornfighter

Looking for recommendations for a good IR who does a lot of Y-90 procedures for liver mets. Any location is OK. Thanks in advance.

HLB

The IRs and Hershey Medical do it and I've heard they are very good. I only had my port placed by them and it was a wonderful department. They treated me so well it was like a spa day lol! Don't know where you are but it's Hershey PA. I think they have a Hope Lodge but not sure.

HLB

Dr Waybill is best.

Grannax2

Travis VanMeter, MD Dallas, Tx. One of the best IR. Patients come from everywhere. MTV IR is the name of the group here. Sir spheres microspheres is the procedure he uses.

Mention you were recommended by Vicki Medlin and you’ll get VIP treatment. 😝 He calls me his celebrity patient. Cracks me up. But I do advertise for him when I tell my story. H

Bornfighter

Thank you Grannax and HLB. We really appreciate it.

JFL

Dr. Ripal Ghandi at Miami Cancer Institute at Baptist Hospital which is part of the Memorial Sloan Kettering Cancer Alliance. Sirtex, the drug company that manufacturers Sir Spheres, uses him to train other IRs on how to perform Y90 with Sir Spheres, he is currently involved in various clinical trials with Y90 and has been treating breast cancer with Y90 for years, even before the Dr. Lewandowski article from Northwestern U was published a few years back that paved the way for us to get Y90.

ABeautifulSunset

I'm revivingthis thread in case anyone is looking for y90 info. It's very informative and focused (mostly ... lol) anyway. I just finished the first of two y90 treatments. My IR (Chief at COH) is top of his field in Y90 and has been ExTrEMELY informative. I don't even know where to start but if anyone wants to know anything, maybe I can help? So, I'm here.

Sunset

tina_marie

Thank you Sunset, I am waiting for mine to become approved this week... and hopefully we can get going next week.

50sgirl

Sunset, I am so happy that you are having the Y90 procedure. I hope you benefit from it for many years. I haven’t gone down that path yet, but I follow others’posts and will probably look into it eventually. I look forward to reading about your experience.

Hugs and prayers from, Lynne

ABeautifulSunset

Thanks Lynne, thanks Tina Marie . Keep me posted. We are pretty in sync.

also, I hear from dr Nagourney today to see what the assay results from my tumor tissue reveal. Very nervous about that.

Sunset

JFL

Congrats, Sunset for having your first lobe under your belt! How are you feeling?

ShetlandPony

BeautifulSunset, I’m almost laughing at how you oh-so-casually drop in the day after your first Y90 to say you just had it. I have been looking for your report and I’m glad you posted. I saw you on the liver mets thread first, and I was like, “Wait, what? No update?!”

ABeautifulSunset

it wasn't that bad, really. I maaay even go to a wedding in Temecula tomorrow if I don't feel worse (gotta love steroids). Nothing to do but wait, and hope I don't get flu like symptoms before my all Important family wedding NEXT weekend. After that it's the second procedure and we wait to see if it buys me time. I think it should.

AB Sunset (I should've picked a shorter name...lol..I'm waaay to lazy for long usernames.)

ABeautifulSunset

No one sees this pic but my BCO sisters.

tina_marie

awe! thanks for sharing that pic!!

you are encouraging to me... Good Luck!

ShetlandPony

Look at you, smiling and waving. What a badass you are! I said to the Interventional Radiologist when I had my consult*,”Could the cancer be radiation-resistant?” He kind of laughed and said that something like whole breast radiation is like a bullet, but Y90 is like a BOMB. Not something cancer can resist. I hope the steroids let you enjoy the wedding tomorrow, then you go home and get really good rest, and have a great day at the family wedding next weekend! Are you allowed to hug people after Y90?

(*Haven’t needed to do it yet.).

ABeautifulSunset

Shetland. Apparently I'm too hot to handle for about three days. I'm not even sleeping in the same bed with hubby. I won't know a lot of people at this one so I'm ok for tomorrow.

Also, I need to DM or text you about Nagourney, but I'm gathering more info. So... next week? I may/will need your advice.

He gave me hope, which I haven't felt in a while . What a strong mood elevator hope is.

Sunny Sunset

thrivingmama

ABSunset - I'm happy to read your updates and things seem to be going relatively smoothly for you following Y90. That's great! I would love to hear what you learn from Dr. Nagourney, if you are willing to share. It sounds like you found your consult with him helpful? He's high on my list for next appointments, when I need it.

ShetlandPony

BeautifulSunset, by all means let us know about your info from Nagourney. I am standing by for talking it over. Any time. Really.

Grannax2

Sunset, you go girl. So glad to hear all the details of your experience. We are y90 girls, we have GRIT, we rock.

I am hoping to have another y90. I have to wait until I have my PET, late May. I already told ( not asked) my new MO that I want to, use MY IR for it. She did say I would have to go off of X , it's a real chemo, while I'm having y90 done. I'm starting my second round of X today.

To all of the newbies, I am one of the grandmothers of y90. I had mine two years ago. They worked for 18/months. Then, liver mets, that could not be seen during the first y90's, started growing. Ibrance fail. Then AA fail. Now I will see how X is doing on my lung and chest mets and liver mets., I would go for another y90 in a heartbeat, if given the opportunity.💞

sandilee

Congratulations, Sunny Sunset, and all of you who are finding success with Y90! Do any of you have to travel far to work with an IR with experience with BC mets?I also wonder how you are paying for it. Medicare will not cover it unless it's for colon cancer. Are you able to get private insurance to pay?

It would also be helpful to know what states those of you with access live in. I really appreciate all the great information you all are providing.

Grannax2

sandilee I live in the Dallas area. I'm on Medicare and it did pay for mine. I have Aetna Continental Life as secondary supplement to Medicare. My IR is in Dallas, Travis Van Meter, MD., His office is called MTV IR in Dallas. He uses SIR spheres microspheres y90 procedure.💞

ABeautifulSunset

Sandilee, I'm at City of Hope in So Cal.

Blue Shield private ins did cover the y90