Probable meningioma - should I worry about mets?
Here I am 4 years out of stage III diagnosis, just had my 6 mo checkup, with normal labs. I reported to my MO that I have a problem with blurred vision (an occasional problem since chemo, but recently more severe), and that after 3 optometrist exams in the previous weeks, I could not get a correct prescription for glasses after 3 tries -- always ends up blurry with the new lenses. She did a quick peripheral vision test, which I didn't do so well on, unsure how many fingers she was holding up. So, without asking me other symptoms, she ordered a brain MRI, which took 2 weeks for my insurance to approve. MRI report impression: "6 mm dural based homogeneously enhancing right middle cranial fossa lesion most likely represents an incidental lesion and is most consistent with a meningioma" with suggested follow up with another MRI in 2-3 months.
I realize that "incidental" in the description implies that the lesion could have been there a while not causing any problem, unrelated to my blurred vision. I have no previous brain scans for comparison, so it is unknown when this lesion appeared. I have also read about meningiomas being related to breast cancer, but studies seem to conflict.
The nurse said my onc is referring me to a neurosurgeon, and when I delivered the CD with the MRI images, the neurosurgeon's front desk person told me I would hear from them in 7 to 10 business days! She said she could not schedule an appointment for me until after they (3 docs in practice) have evaluated the MRI and decide if they can do anything for me! What? And she said that they are currently scheduling into July (I supposed it could be August by the time I get an appointment since they are in only 2 days/week, doing surgery other days).
What am I to do? Should I wait this out for 2-3-4 weeks to find out what this neurosurgeon recommends? If the lesion could be a brain met, shouldn't it be evaluated quicker, perhaps with additional imaging? I do have miscellaneous other "brain" symptoms besides blurred vision -- increased forgetfulness, short term memory loss, loss of concentration, irritability, and the like (no headaches), but these may be unrelated to the lesion. Should I consider going out of town to a bigger cancer center or to a practice where I can have quicker follow up? I called my MO's office today and just got a response from the nurse that my MO says it's fine to wait several weeks for follow up with the neurosurgeon. Anyone have experience with this?
Comments
-
Sending you a PM.
-
Thanks, SpecialK. I'll be researching and hope to get a lot smarter in the next few weeks.
And praying and learning to be patient.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team