Possible Kidney Mets?

lifelover

I have had several tests in the past week and was waiting for my oncology appointment which was scheduled for the 16th of June.

I had a bone density scan less than a week ago and the technician was something unusual in my pelvis but didn't commit to what it could be. The next day I took my 24 hour urine sample to my GP. I was being tested for several characteristics in my urine that would help with a diagnosis as to why I was having so many symptoms.

I had an ultrasound of my abdomen on Wednesday - the technician couldn't find my left kidney and asked me if I was in a lot of pain. She took a lot of pictures. Scared me. She told me to go home and make an appointment with my GP who will have the results within the week.

On Thursday I had a phone call from my oncologist saying to come in on Tuesday - they moved my appointment forward.

I am so frightened. I know it is worse not knowing and I am probably being my own worst enemy at the moment.

The worst thing though, even worse than the waiting, is the pain I'm starting to have in my stomach but mostly where my kidneys are, in my bladder and now in my back. It started as pressure and quickly now is becoming painful (possibly my mind worrying making it worse).

All of my symptoms which began at Christmas time when I was diagnosed with pneumonia have gotten worse over the past months with the pain and now the chills becoming almost more than I can bear (I'm taking a codeine pain med that I got from the pharmacy). I've had chest heaviness, shortness of breath, chills, cough, all over itchiness with no rash, abdomen, upper arms and feet swelling and pain in feet and headaches from the chills - which cause me to hold my neck muscles really tight.

Really don't know what to do with myself until Tuesday but I have been trying to keep busy until now my back has "gone out" and I can't move around.

Any thoughts or positive words or advice would be much appreciated. I do know that if it is mets there are so many things they can do to help me feel better - chemo or drugs or whatever.

annika12

Im so sorry you are going through this , testing and waiting is so hard. Will be thinking of you snd praying for you. Nothing wrong with asking for something for anxiety if you need it !!! I did....never took it but it felt better knowing I could....

lulu2533

lifelover-ask for something for anxiety. I was given Ativan-it does help!

Every pain that I feel, I also think is the cancer spreading. I think we all think that.

I hope you are able to find some kind of peace until your appointment.

I am on here quite a bit nowadays, so if you need to talk...

I'll be thinking of you!!!

Julie

Lolis197138

Lifelover, sorry to hear you are going thru the anxiety of testing and waiting. Sending you positive vibes and praying for benign outcome!

As the ladies have said ask for some anti anxiety. Book an appointment for a message or meet up with some close friends/family. Try to keep busy and occupied with other things so that time will pass by quickly. 

Thinking of you!!!

lifelover

Thank you Ladies. I took some valium that my GP recently gave me when I was withdrawing from Effexor and that's made me a bit calmer. I kind of wish I could go to sleep until Tuesday but I do have plans to keep busy, sort of. I'm a musician and music teacher and I have a pupil this evening and a few in the morning. A barbecue in the afternoon with friends and their little children and Sunday I am playing in a lovely concert - very worried about making it through it but I intend to be strong and do it for my soul

Marksgirl

Lifelover, you are so much in my thoughts and prayers.    I hate that micropapillary.    I also have micropapillary with LVI, one node.   I had a ton of bleeding during at my core biopsy and wire loc before surgery so i know the tumor was pretty vascularized.   My MO does not do scans/testing for further stages.   I am so sorry you are waiting for results.    Wish I could give you a hug and glad you will be busy!   

Jenny

lifelover

Thanks Jenny. I'll take that hug!

Yesterday I got the appointment for a total body CT scan which will be a few weeks. Will be glad to know and then move on with some treatment so I can feel better.

Kim

KBeee

((((HUGS)))) I hate that they are making you wait so long to give you the results. Keep us posted on how things go.

lifelover

Great news - my scans were clear! There was something on my kidney that looks like scar tissue and is likely the case because I've suffered quite a lot of infections since I was in my 20's - also possibly from radiation I had in 1995 for HL.

I've got a CT angiogram on Monday to see what my heart looks like because i've been tachycardic for years. Just started beta blockers to bring down heart rate and I can't believe how much better I feel.

I'm moving on now and so grateful for the support on this site.

Anonymous

Great news lifelover! Enjoy your weekend.